Re: Any suggestions would be appreciated

[Guest guest]

Hi Heidi,

I just came back from the doc today and he is re-testing my anylase &

lipase. I also asked for a triglyceride test, as well as the liver &

hepatitis tests. I am still quite concerned as I am not feeling any better.

In fact, today I feel much worse...nauseous all day & hardly eating

anything. I actually lost 8 lbs. in the last 2 weeks because I am not

eating much. I had a few crackers for breakfast with a few sips of 7-up &

then supper was a 1/2 of turkey sandwich, which I didn't even finish because

I am getting some pinching pains again in the upper right & left quadrants.

My doc is suspecting that it is drug induced, but I might have had something

starting to brew for a while now & the supplements or whatever just caused

it to get worse. He wants me to see my GI doc, so I left a message for my

GI doc to see when I can get in to see him..hopefully soon.

My doc mentioned the ERCP because he thinks I might have a spasm in the

sphincter. Does the ERCP hurt afterwards??? How many of you all have had

it done & how many have been successful??? I am getting quite scared right

now...:0(. I mentioned that this is quite a blow to me because, even though

I don't have an exact diagnosis as yet, I seem to be just constantly not

feeling well with something over the last 10 years...from CFIDS, Fibro, IC,

and the list goes on and on. So, this is just something else to add to my

long list of ailements that cause me great stress every day of my life.

The supplements I was taking, I was told, were to help support my gall

bladder and help it function better. I really am not sure why I need gall

bladder support, but was (stupidly) trusting in this nutritionist to help me

improve my overall health, since the last 10 years have been more and more

debilitating for me. So, I guess what I was hoping and praying would help

me feel better, actually made me worse.

I was also wondering what you all eat, as I am not finding much to tolerate.

Thanks for any help you can give me! I am sorry to be sounding so upset

when there are many of you out there who are in more pain & upheavel than I

am, however, right now, I just don't know how much more I can take.

Thank you for listening,

[Guest guest]

,

I have had at least 17 ERCPs in a 18 month period and at the end of

all but 2 of them it brought on an attack. The two that didn't was

only because they couldn't find my pancreatic duct at the time and

therefore, they didn't get prodded or poked.

Most times I ended up staying in hospital for a few days afterwards.

An ERCP is performed so a doctor can see inside the pancreas and

ducts for any strictures and they can also measure if there is any

pressure on the duct, which would tell them if you are having

Sphincter of Oddi attacks.

I would be preparing for a hospital stay just to be on the safe side.