RE: My baby's going in

[Guest guest]

Explain it that he has bacteria (the bad guys) in his body and you are going

to go to the Hospital cause they have the really strongest good guys that will

kill, smash and step on that rotten bacteria. My boys are always " battling "

things so if I put treatments in terms they get it makes it easier.

Try not to make the Hospital the " bad " place. My husband always tells

them " if you don't do your meds you willhave to go to the hospital " . Thats good

isn't it? Then they go in and feel that they are being punished!

I use rewards...small rewards..baseball cards, candy, etc.

It sucks.........being torn between the child in the hospital and the one at

home and worrying all the time. I think thats why we say take it one day at a

time cause we can't handle things about the next day.

Hang in there.

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

Hey there gal,

It will be fine. You just tell them, they are going in & see what the doc

thinks is making

him feel badly. & try to fix it. It is natural that you'd feel this way.

We all do, BUT you will get thru it. I am sure these folks will also give

you their ideas & experiences . Take care & do relax over weekend

Sending special thoughts to you & yours

LOVE & HUGS

GrandmomBEV

My baby's going in

Hey guys,

I have butterflies in the stomach now because I just got off the phone with

the CF clinic. I had to take Jonah in on Monday for a culture because he

was

couging a lot Sunday. Well, Psedomonas showed up for the first time in over

a

year, so they are putting hm in to treat it aggressively. Nothing was done

the

other two times he cultured it because he was not sick. He's not really

sick

now, but he is coughing more than usual. I am glad that it showed up since

it is there so that it can be treated, but I am so scared to death about him

having to get his PICC line in. He has to be sedated for that and I have a

horrible time with it. I worry that he won't wake up and I have wasted some

time

that I could have had with him. I know, it sounds crazy, but I can't help

it.

He's my baby. His brother was in back in August, and it was so hard

balancing time between the two of them. I don't want to bring the other one

to the

hospital to get sick, but they are identical twins who have hardly spent any

time apart since conception. I have a hard time being away from them too,

cherish every moment. Well, I have the weekend to prepare myself since he

won't be

going in until Monday. By the way, how do you handle telling a five year

old

they have to go in the hospital?

Take Care,

Peggy mom of Jonah and 5yrs wcf

[Guest guest]

Peggy, " AGGRESSIVE! " Now that is a GOOD world in the cf world--with

highest hopes for you and Jonah, Love, n Rojas

My baby's going in

Hey guys,

I have butterflies in the stomach now because I just got off the phone with

the CF clinic. I had to take Jonah in on Monday for a culture because he was

couging a lot Sunday. Well, Psedomonas showed up for the first time in over a

year, so they are putting hm in to treat it aggressively. Nothing was done the

other two times he cultured it because he was not sick. He's not really sick

now, but he is coughing more than usual. I am glad that it showed up since

it is there so that it can be treated, but I am so scared to death about him

having to get his PICC line in. He has to be sedated for that and I have a

horrible time with it. I worry that he won't wake up and I have wasted some

time

that I could have had with him. I know, it sounds crazy, but I can't help it.

He's my baby. His brother was in back in August, and it was so hard

balancing time between the two of them. I don't want to bring the other one

to the

hospital to get sick, but they are identical twins who have hardly spent any

time apart since conception. I have a hard time being away from them too,

cherish every moment. Well, I have the weekend to prepare myself since he

won't be

going in until Monday. By the way, how do you handle telling a five year old

they have to go in the hospital?

Take Care,

Peggy mom of Jonah and 5yrs wcf

[Guest guest]

Peggy,

Hope all goes well for Monday. Eilish always gets a general anaesthetic

when she goes in for PICC line. She likes hsp. and is happy to fo there

so we have never had the problem of her being upset. Now her mother is

a different story.

(Australia)

My baby's going in

Hey guys,

I have butterflies in the stomach now because I just got off the phone

with

the CF clinic. I had to take Jonah in on Monday for a culture because

he was

couging a lot Sunday. Well, Psedomonas showed up for the first time in

over a

year, so they are putting hm in to treat it aggressively. Nothing was

done the

other two times he cultured it because he was not sick. He's not really

sick

now, but he is coughing more than usual. I am glad that it showed up

since

it is there so that it can be treated, but I am so scared to death about

him

having to get his PICC line in. He has to be sedated for that and I

have a

horrible time with it. I worry that he won't wake up and I have wasted

some time

that I could have had with him. I know, it sounds crazy, but I can't

help it.

He's my baby. His brother was in back in August, and it was so hard

balancing time between the two of them. I don't want to bring the other

one to the

hospital to get sick, but they are identical twins who have hardly spent

any

time apart since conception. I have a hard time being away from them

too,

cherish every moment. Well, I have the weekend to prepare myself since

he won't be

going in until Monday. By the way, how do you handle telling a five

year old

they have to go in the hospital?

Take Care,

Peggy mom of Jonah and 5yrs wcf

[Guest guest]

Peggy,

Have you asked if they would do the IV's at home. I know my doctor

rather do that than put the kids in the hospital, just a thought.

> Hey guys,

>

> I have butterflies in the stomach now because I just got off the

phone with

> the CF clinic. I had to take Jonah in on Monday for a culture

because he was

> couging a lot Sunday. Well, Psedomonas showed up for the first

time in over a

> year, so they are putting hm in to treat it aggressively. Nothing

was done the

> other two times he cultured it because he was not sick. He's not

really sick

> now, but he is coughing more than usual. I am glad that it showed

up since

> it is there so that it can be treated, but I am so scared to death

about him

> having to get his PICC line in. He has to be sedated for that and

I have a

> horrible time with it. I worry that he won't wake up and I have

wasted some time

> that I could have had with him. I know, it sounds crazy, but I

can't help it.

> He's my baby. His brother was in back in August, and it was so

hard

> balancing time between the two of them. I don't want to bring the

other one to the

> hospital to get sick, but they are identical twins who have hardly

spent any

> time apart since conception. I have a hard time being away from

them too,

> cherish every moment. Well, I have the weekend to prepare myself

since he won't be

> going in until Monday. By the way, how do you handle telling a

five year old

> they have to go in the hospital?

>

> Take Care,

> Peggy mom of Jonah and 5yrs wcf

>

>

>

[Guest guest]

,

I did a few days of 's at home in August, but was told then that they like

to keep them in at least seven days before they send them home on IVs. I kind

of worry about that too because 's line was backed up the day before we

went home, so the PICC teacm had to come down and put something in the line to

break up the clot. What would you do if you were at home and that happened?

Also, had a severe allergic reaction to Cephapine and I know Jonah is

allergic to Bactrim.

Thanks,

Peggy

[Guest guest]

Grandma Bev,

Thank you for your kind words. Everyone has been so nice.

Love,

Peggy

[Guest guest]

Peggy,

I think a is also allergic to sulpha. She had conjunctivitis,

pink eye, a few years ago, before diagnosis. The doctor gave her

some drops that had sulpha and she developed an ulcer in her eye,

very scary.

Well, I hope everything works out, I know I would be a nerveous

wreck, too.

Love,

-- In cfparents , jojay9@c... wrote:

> ,

>

> I did a few days of 's at home in August, but was told then

that they like to keep them in at least seven days before they send

them home on IVs. I kind of worry about that too because 's

line was backed up the day before we went home, so the PICC teacm had

to come down and put something in the line to break up the clot.

What would you do if you were at home and that happened? Also,

had a severe allergic reaction to Cephapine and I know Jonah is

allergic to Bactrim.

>

> Thanks,

> Peggy

[Guest guest]

, I am no authority on anything, but my family has so many conditions

(we collect them) that I can hardly avoid knowing some odd things. For

example, a probably is allergic to at least some of the sulfas, but I would

have myself and the child tested for G6PD deficiency which makes

one intolerant to: blue dye, sulfas, primoquin, etc. and can cause a condition

similar to sicle cell; the difference is that it can be totally controlled by

avoiding the triggers which are listed on the web under the

name of the condition. VERY FEW WOMEN have this; for a girl child to have

this, the mother and the father must both have it; otherwise if only the mother

has it, only the boys get it--honest--We are jews of Spanish descent

wiuth a little North African, Portuguese and Italian thrown in--we ALL have

it on both sides of both families--so, what did I do--you guessed it, married

a guy who had it and had always wondered why fava beans took him to the

hospital? We have had almost as major a testing/education thing in our

clan on this one as on cf, as it is lethal if not controlled, but highly

UNLIKELY in a girl. Now, this list could have gone for years without all this!

n, who must really be wound up--maybe it is all that tea! (Green)!

Re: My baby's going in

Peggy,

I think a is also allergic to sulpha. She had conjunctivitis,

pink eye, a few years ago, before diagnosis. The doctor gave her

some drops that had sulpha and she developed an ulcer in her eye,

very scary.

Well, I hope everything works out, I know I would be a nerveous

wreck, too.

Love,

-- In cfparents , jojay9@c... wrote:

> ,

>

> I did a few days of 's at home in August, but was told then

that they like to keep them in at least seven days before they send

them home on IVs. I kind of worry about that too because 's

line was backed up the day before we went home, so the PICC teacm had

to come down and put something in the line to break up the clot.

What would you do if you were at home and that happened? Also,

had a severe allergic reaction to Cephapine and I know Jonah is

allergic to Bactrim.

>

> Thanks,

> Peggy

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PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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