Re: Today's pet peeve

[Guest guest]

Although I am new to CP and SOD I can tell you that Zelnorm (the

drug for women with IBS) is contraindicated in those who suffer from

sphincter of Oddi dysfunction.

Had a friend call me at work one day after I told her my diagnosis

of SOD and read it to me from the package insert in her Zelnorm

sample...........

Just another to add to the list!

Zoie

[Guest guest]

And to add some to your peeve Heidi,

It makes it doubly worse when we can't get the chance to look up the

possible side effects of the medications, and even worse when we

tell them and then they go ahead anyway.

I was being prepped for day surgery, and the nurse of course asked

for my allergy medicines, which were already listed on the outside

of my folder in big black writing with a yellow sticker near it. I

repeated everything, starting with Valium. Then they give me Toredol

as a calming medicine before surgery. I immediately started getting

restless & fidgety, all the horrible symptoms that plague me and

thought, oh well, at least they'll be knocking me out in the next

few minutes, but that didn't happen. My blood wasn't clotting

according to a blood test, and I had to put up with that feeling for

the next 2 hours. I thought well I just need to add that to my list

of can't take medications, yet when I was in hospital for more

tumour removal a couple of months ago, to help with my pain, which

was getting hard to get under control, the doctor on call told a

resident to try toredol and up my dilaudid. The resident spoke up

just as I was about to say no to the toredol, and told the doctor

that because I had an allergic reaction with valium, I couldn't

possibly be given Toredol.

Next...I go for a CT scan 3 month ago, and for the first time I

react to the dye injected into me. I get a fat lip feeling and a

welt shows itself above my lip. After the CT scan, it went away

within a few hours. Unfortunately, I needed another cT scan a month

ago, and I tell the radiologist as she prepares to inject the dye

that I reacted to the dye last time, and am concerned it might

happen again. She injected it anyway, telling me to let them know if

it happens again. I was expecting her to consult with a doctor

first, or not use the dye.

The reaction was worse. Same fat lip, welt above my lip, and this

time I broke out into spots that were as itchy as if mosquitos had

bitten my entire face. When being wheeled back to the waiting area

for the nurse to remove my iv, she saw my face and me scratching at

it and exlaimed " now I know you didn't come in here looking like

that " . I told her about the dye and she went and got a doctor

immediately. They wanted to use Benedryl, but the histamine in that

might have made me restless again, so they said no to that. As I had

to see the oncologist, they suggested that I let him know about it

and if it got worse they would have me sent back to them and find

something else that might work. My oncologist was in the same

hospital so i didn't have to leave the " safeness " of the medical

profession.

The reaction went away within a couple of hours, but have now been

advised to not let them give me the dye without premedication first.

Which is Benedryl *LOL*...oh well, on occasion I can handle it, just

when having it regularly affects my mechanics.