Ending Day 4 and my daughter refuses to drink most fluids and eats very little

[Guest guest]

Lack of weight gain is my main reason for starting this. She

absolutley can't afford to lose weight. (only 17 pounds at age 20

months) After being on an extremely high calorie diet (comprised

mainly of sugars, carbs, milk) and not gaining, we wanted to try

something differnt.

Now after 4 days, she's still just picking at food and refuses any

liquids. (She does take a little, maybe a total of 2-3 oz/day!)

I've tried broths, the Welches 100% grape, both white and purple

watered down, homemade Jello, and grape juice popsicles. The

popsicles are the only thing really working. (She ate 3 today.)

I've made the electrolyte which she did take some of from a syringe.

I made the baby formula in the book, but she refused. Water works

for about a moment. I've bought a coconut, (I can't seem to find

UNsweetened coconut anywhere and gave up looking), in hopes of making

coconut milk. She doesn't trust anything in any kind of bottle, cup,

you name it. I've purchased totally new cups and it isn't doing much

better.

She's eating some chicken, carrots, beef, bananas (she'd eat those

all day!), and maybe a piece of apple if you sneak it in. She won't

eat egg, anything made with egg, (I cooked an egg with pureed chicken

and apple), or applesauce. I just bought zucchini, squash, spinach,

and avocado to begin preparing for later, (or sooner, if need be).

Do I need to start worrying? (Believe me, I'm well past that

point!) When do I need to say enough is enough?

She's always had a constipation problem and that continues so far.

She's on Miralax for that, but I used to mix it in with her formula.

I've tried using a syringe, and basically, forcing it into her since

she won't drink anything.

Please help!

Cheryl

Mother of Alysson (almost 5) and Dorthia (20 months--SCD 4 days)

[Guest guest]

A little weight loss in the very beginning is not uncommon on SCD, but I can see

why you would be extremely worried about any loss for her. Thing is, if the gut

is very damaged, and has an overgrowth of pathogens, *some* weight loss can

actually occur just from the bacterial colonies dying off and leaving the body.

So... in a way, some of the current weight she has on board could theoretically

be the mass of " bad guys " that are happily living like parasites in her gut,

being fed (before you started SCD) on all of her old favorites. You DO want

them to go away.... for sure. So, just be prepared for that. That shouldn't

account for very much weight, though, in a child that small.

Gee, I can't imagine making coconut milk from scratch.... from a whole coconut!!

I guess it can be done... but what a chore! I wouldn't know where to begin! The

liquid inside might be very good for her to drink, too. I just saw a show on TV

over the weekend that referred to people being stranded on desert islands,

surviving on coconuts.... the liquid and the fresh meat. Very good stuff. You

can order coconut from www.digestivewellness.com in the " nut flours " section.

I personally would go ahead and try some ripe avocado..... now. It's a

wonderful food, and *generally* easy to digest.... but high fat/calories. I

hope you can get her to eat it. It's so hard to get some kids to be open to

eating the new foods sometimes. You may have no choice but to force feed her a

bit.... and definitely are going to have to push the fluid issue, or you'll have

even more severe constipation. Plus, when you get really dehydrated, you lose

your sense of thirst.... so it becomes harder and harder to get them to drink.

I've been at that point with my daughter in the past.... and had to syringe in

the fluids, one cc at a time.

Squash would also be a good choice right now..... butternut squash is my pick.

It's got the finest, smoothest texture. Less fibrous than some of the other

squashes.

Beware of her eating too many bananas..... and applesauce. Both tend to be

somewhat " binding " . In other words, they will tend to firm up the stool... so in

her case, might exacerbate the constipation. Plus, any food that a kid tends to

limit themselves to.... especially a sweet food like banana, can become a

problem. Hopefully, she would allow you to make her a banana smoothie, with some

other things mixed in. Cooked, pureed squash goes well in a smoothie, and you

might be able to sneak some chicken broth in, if it's not highly seasoned. If

she refuses to drink a smoothie, you might make it thick enough to be spoonable

by freezing the bananas in chunks and dropping them into the blender with a

little broth and/or water.... and some of the pureed squash.

If you made the baby formula recipe, I wonder if a little bit of it could be

snuck into a banana smoothie, too?? I wouldn't aim for drinkable.... go for

spoonable, as nothing is going to be a satisfying replacement for her old drink.

I'm just trying to think of ANYthing that might possibly work.

Patti

Ending Day 4 and my daughter refuses to drink most

fluids and eats very little

Lack of weight gain is my main reason for starting this. She

absolutley can't afford to lose weight. (only 17 pounds at age 20

months) After being on an extremely high calorie diet (comprised

mainly of sugars, carbs, milk) and not gaining, we wanted to try

something differnt.

Now after 4 days, she's still just picking at food and refuses any

liquids. (She does take a little, maybe a total of 2-3 oz/day!)

I've tried broths, the Welches 100% grape, both white and purple

watered down, homemade Jello, and grape juice popsicles. The

popsicles are the only thing really working. (She ate 3 today.)

I've made the electrolyte which she did take some of from a syringe.

I made the baby formula in the book, but she refused. Water works

for about a moment. I've bought a coconut, (I can't seem to find

UNsweetened coconut anywhere and gave up looking), in hopes of making

coconut milk. She doesn't trust anything in any kind of bottle, cup,

you name it. I've purchased totally new cups and it isn't doing much

better.

She's eating some chicken, carrots, beef, bananas (she'd eat those

all day!), and maybe a piece of apple if you sneak it in. She won't

eat egg, anything made with egg, (I cooked an egg with pureed chicken

and apple), or applesauce. I just bought zucchini, squash, spinach,

and avocado to begin preparing for later, (or sooner, if need be).

Do I need to start worrying? (Believe me, I'm well past that

point!) When do I need to say enough is enough?

She's always had a constipation problem and that continues so far.

She's on Miralax for that, but I used to mix it in with her formula.

I've tried using a syringe, and basically, forcing it into her since

she won't drink anything.

Please help!

Cheryl

Mother of Alysson (almost 5) and Dorthia (20 months--SCD 4 days)

[Guest guest]

Thanks, that helps. I just finished the cooking of the spinach,

squash, zucchini, more pears, carrots, and I don't remember what

else! (I'm exhausted!) The avocatos I picked, well, weren't as ripe

as I thought. Yes, the coconut, will tackle that tomorrow...

I'm just so nervous about this. I find myself questioning whether

I'm helping or hurting her. Logic tells me this diet is good, but if

she refuses food and liquids, that's bad.

I'm keeping her under her pediatrician's close care, but she isn't so

familiar with this diet. She's recommended Juice Plus as a vitamin

and I read that that's SCD illegal. I know she wants to help, but I

shoot everything down that she suggests because of the strickness of

this diet.

Forgive me for asking this, but is there anyone (doctors, or such),

that deal with this as a specialty?

Cheryl

>

>

> A little weight loss in the very beginning is not uncommon on SCD,

but I can see why you would be extremely worried about any loss for

her. Thing is, if the gut is very damaged, and has an overgrowth of

pathogens, *some* weight loss can actually occur just from the

bacterial colonies dying off and leaving the body. So... in a way,

some of the current weight she has on board could theoretically be

the mass of " bad guys " that are happily living like parasites in her

gut, being fed (before you started SCD) on all of her old favorites.

You DO want them to go away.... for sure. So, just be prepared for

that. That shouldn't account for very much weight, though, in a child

that small.

>

> Gee, I can't imagine making coconut milk from scratch.... from a

whole coconut!! I guess it can be done... but what a chore! I

wouldn't know where to begin! The liquid inside might be very good

for her to drink, too. I just saw a show on TV over the weekend that

referred to people being stranded on desert islands, surviving on

coconuts.... the liquid and the fresh meat. Very good stuff. You can

order coconut from www.digestivewellness.com in the " nut flours "

section.

>

> I personally would go ahead and try some ripe avocado..... now.

It's a wonderful food, and *generally* easy to digest.... but high

fat/calories. I hope you can get her to eat it. It's so hard to get

some kids to be open to eating the new foods sometimes. You may have

no choice but to force feed her a bit.... and definitely are going to

have to push the fluid issue, or you'll have even more severe

constipation. Plus, when you get really dehydrated, you lose your

sense of thirst.... so it becomes harder and harder to get them to

drink. I've been at that point with my daughter in the past.... and

had to syringe in the fluids, one cc at a time.

>

> Squash would also be a good choice right now..... butternut squash

is my pick. It's got the finest, smoothest texture. Less fibrous than

some of the other squashes.

>

> Beware of her eating too many bananas..... and applesauce. Both

tend to be somewhat " binding " . In other words, they will tend to firm

up the stool... so in her case, might exacerbate the constipation.

Plus, any food that a kid tends to limit themselves to.... especially

a sweet food like banana, can become a problem. Hopefully, she would

allow you to make her a banana smoothie, with some other things mixed

in. Cooked, pureed squash goes well in a smoothie, and you might be

able to sneak some chicken broth in, if it's not highly seasoned. If

she refuses to drink a smoothie, you might make it thick enough to be

spoonable by freezing the bananas in chunks and dropping them into

the blender with a little broth and/or water.... and some of the

pureed squash.

>

> If you made the baby formula recipe, I wonder if a little bit of it

could be snuck into a banana smoothie, too?? I wouldn't aim for

drinkable.... go for spoonable, as nothing is going to be a

satisfying replacement for her old drink. I'm just trying to think

of ANYthing that might possibly work.

>

> Patti

>

>

> Ending Day 4 and my daughter refuses to

drink most fluids and eats very little

>

>

> Lack of weight gain is my main reason for starting this. She

> absolutley can't afford to lose weight. (only 17 pounds at age 20

> months) After being on an extremely high calorie diet (comprised

> mainly of sugars, carbs, milk) and not gaining, we wanted to try

> something differnt.

>

> Now after 4 days, she's still just picking at food and refuses

any

> liquids. (She does take a little, maybe a total of 2-3 oz/day!)

> I've tried broths, the Welches 100% grape, both white and purple

> watered down, homemade Jello, and grape juice popsicles. The

> popsicles are the only thing really working. (She ate 3 today.)

> I've made the electrolyte which she did take some of from a

syringe.

> I made the baby formula in the book, but she refused. Water works

> for about a moment. I've bought a coconut, (I can't seem to find

> UNsweetened coconut anywhere and gave up looking), in hopes of

making

> coconut milk. She doesn't trust anything in any kind of bottle,

cup,

> you name it. I've purchased totally new cups and it isn't doing

much

> better.

>

> She's eating some chicken, carrots, beef, bananas (she'd eat

those

> all day!), and maybe a piece of apple if you sneak it in. She

won't

> eat egg, anything made with egg, (I cooked an egg with pureed

chicken

> and apple), or applesauce. I just bought zucchini, squash,

spinach,

> and avocado to begin preparing for later, (or sooner, if need

be).

>

> Do I need to start worrying? (Believe me, I'm well past that

> point!) When do I need to say enough is enough?

>

> She's always had a constipation problem and that continues so

far.

> She's on Miralax for that, but I used to mix it in with her

formula.

> I've tried using a syringe, and basically, forcing it into her

since

> she won't drink anything.

>

> Please help!

>

> Cheryl

> Mother of Alysson (almost 5) and Dorthia (20 months--SCD 4 days)

>

>

>

>

>

>

[Guest guest]

Who are you seeing now? We use Dr. O'Hara in CT. She also has a

registered dietician on her staff. They new Elaine personally, and are very

familiar with what is and isn't SCD legal. Vikki(the RD) is always careful to

find an SCD legal form of a supp or med that Dr. O'Hara wants us to use. The

only illegal we are using right now is Valtrex, and that's because it simply

cannot be compounded into an SCD legal form. Even with that, she didn't RX it

until we'd been SCD for seven months, and after several different labs to make

sure that he really did need this antiviral. Vikki does see clients who aren't

patients of Dr. O'Hara. She can do a phone consultation with you if you aren't

close by. Let me know if you want her contact info.

Meleah

Ending Day 4 and my daughter refuses to

drink most fluids and eats very little

>

>

> Lack of weight gain is my main reason for starting this. She

> absolutley can't afford to lose weight. (only 17 pounds at age 20

> months) After being on an extremely high calorie diet (comprised

> mainly of sugars, carbs, milk) and not gaining, we wanted to try

> something differnt.

>

> Now after 4 days, she's still just picking at food and refuses

any

> liquids. (She does take a little, maybe a total of 2-3 oz/day!)

> I've tried broths, the Welches 100% grape, both white and purple

> watered down, homemade Jello, and grape juice popsicles. The

> popsicles are the only thing really working. (She ate 3 today.)

> I've made the electrolyte which she did take some of from a

syringe.

> I made the baby formula in the book, but she refused. Water works

> for about a moment. I've bought a coconut, (I can't seem to find

> UNsweetened coconut anywhere and gave up looking), in hopes of

making

> coconut milk. She doesn't trust anything in any kind of bottle,

cup,

> you name it. I've purchased totally new cups and it isn't doing

much

> better.

>

> She's eating some chicken, carrots, beef, bananas (she'd eat

those

> all day!), and maybe a piece of apple if you sneak it in. She

won't

> eat egg, anything made with egg, (I cooked an egg with pureed

chicken

> and apple), or applesauce. I just bought zucchini, squash,

spinach,

> and avocado to begin preparing for later, (or sooner, if need

be).

>

> Do I need to start worrying? (Believe me, I'm well past that

> point!) When do I need to say enough is enough?

>

> She's always had a constipation problem and that continues so

far.

> She's on Miralax for that, but I used to mix it in with her

formula.

> I've tried using a syringe, and basically, forcing it into her

since

> she won't drink anything.

>

> Please help!

>

> Cheryl

> Mother of Alysson (almost 5) and Dorthia (20 months--SCD 4 days)

>

>

>

>

>

>

[Guest guest]

We're seeing a pediatrician here in Columbus, Ohio. I really like

her and she did take some time to read up on the diet. But I'd like

to consult with someone with more background on SCD and who can tell

me when it's time to worry. Please, I'd love to have Dr O'Hara and

her dietician's info. This doesn't mean that I don't find your

advise and that of this groups invaluable, I REALLY appreciate the

help and will continue (you can count on it!) to use this support. I

just have to do all I can for Dorthia. Thank you!

Cheryl

> >

> >

> > A little weight loss in the very beginning is not uncommon on

SCD,

> but I can see why you would be extremely worried about any loss

for

> her. Thing is, if the gut is very damaged, and has an overgrowth

of

> pathogens, *some* weight loss can actually occur just from the

> bacterial colonies dying off and leaving the body. So... in a

way,

> some of the current weight she has on board could theoretically

be

> the mass of " bad guys " that are happily living like parasites in

her

> gut, being fed (before you started SCD) on all of her old

favorites.

> You DO want them to go away.... for sure. So, just be prepared

for

> that. That shouldn't account for very much weight, though, in a

child

> that small.

> >

> > Gee, I can't imagine making coconut milk from scratch.... from

a

> whole coconut!! I guess it can be done... but what a chore! I

> wouldn't know where to begin! The liquid inside might be very

good

> for her to drink, too. I just saw a show on TV over the weekend

that

> referred to people being stranded on desert islands, surviving on

> coconuts.... the liquid and the fresh meat. Very good stuff. You

can

> order coconut from www.digestivewellness.com in the " nut flours "

> section.

> >

> > I personally would go ahead and try some ripe avocado..... now.

> It's a wonderful food, and *generally* easy to digest.... but

high

> fat/calories. I hope you can get her to eat it. It's so hard to

get

> some kids to be open to eating the new foods sometimes. You may

have

> no choice but to force feed her a bit.... and definitely are

going to

> have to push the fluid issue, or you'll have even more severe

> constipation. Plus, when you get really dehydrated, you lose your

> sense of thirst.... so it becomes harder and harder to get them

to

> drink. I've been at that point with my daughter in the past....

and

> had to syringe in the fluids, one cc at a time.

> >

> > Squash would also be a good choice right now..... butternut

squash

> is my pick. It's got the finest, smoothest texture. Less fibrous

than

> some of the other squashes.

> >

> > Beware of her eating too many bananas..... and applesauce. Both

> tend to be somewhat " binding " . In other words, they will tend to

firm

> up the stool... so in her case, might exacerbate the

constipation.

> Plus, any food that a kid tends to limit themselves to....

especially

> a sweet food like banana, can become a problem. Hopefully, she

would

> allow you to make her a banana smoothie, with some other things

mixed

> in. Cooked, pureed squash goes well in a smoothie, and you might

be

> able to sneak some chicken broth in, if it's not highly seasoned.

If

> she refuses to drink a smoothie, you might make it thick enough

to be

> spoonable by freezing the bananas in chunks and dropping them

into

> the blender with a little broth and/or water.... and some of the

> pureed squash.

> >

> > If you made the baby formula recipe, I wonder if a little bit

of it

> could be snuck into a banana smoothie, too?? I wouldn't aim for

> drinkable.... go for spoonable, as nothing is going to be a

> satisfying replacement for her old drink. I'm just trying to

think

> of ANYthing that might possibly work.

> >

> > Patti

> >

> >

> > Ending Day 4 and my daughter refuses to

> drink most fluids and eats very little

> >

> >

> > Lack of weight gain is my main reason for starting this. She

> > absolutley can't afford to lose weight. (only 17 pounds at age

20

> > months) After being on an extremely high calorie diet

(comprised

> > mainly of sugars, carbs, milk) and not gaining, we wanted to

try

> > something differnt.

> >

> > Now after 4 days, she's still just picking at food and refuses

> any

> > liquids. (She does take a little, maybe a total of 2-3 oz/day!)

> > I've tried broths, the Welches 100% grape, both white and

purple

> > watered down, homemade Jello, and grape juice popsicles. The

> > popsicles are the only thing really working. (She ate 3 today.)

> > I've made the electrolyte which she did take some of from a

> syringe.

> > I made the baby formula in the book, but she refused. Water

works

> > for about a moment. I've bought a coconut, (I can't seem to

find

> > UNsweetened coconut anywhere and gave up looking), in hopes of

> making

> > coconut milk. She doesn't trust anything in any kind of bottle,

> cup,

> > you name it. I've purchased totally new cups and it isn't doing

> much

> > better.

> >

> > She's eating some chicken, carrots, beef, bananas (she'd eat

> those

> > all day!), and maybe a piece of apple if you sneak it in. She

> won't

> > eat egg, anything made with egg, (I cooked an egg with pureed

> chicken

> > and apple), or applesauce. I just bought zucchini, squash,

> spinach,

> > and avocado to begin preparing for later, (or sooner, if need

> be).

> >

> > Do I need to start worrying? (Believe me, I'm well past that

> > point!) When do I need to say enough is enough?

> >

> > She's always had a constipation problem and that continues so

> far.

> > She's on Miralax for that, but I used to mix it in with her

> formula.

> > I've tried using a syringe, and basically, forcing it into her

> since

> > she won't drink anything.

> >

> > Please help!

> >

> > Cheryl

> > Mother of Alysson (almost 5) and Dorthia (20 months--SCD 4 days)

> >

> >

> >

> >

> >

> >

[Guest guest]

I completely understand where you're coming from. I have the same mindset that

I must do whatever it takes to help our son recover. You can get tons of info

on Dr. O'Hara, Vikki, and all of the other staff on their web site

www.drohara.com

In the " about us " section you can read the bios on all of the staff. There's a

lot of other helpful info at the site as well. Of course, there will also be

contact info.

Meleah

Ending Day 4 and my daughter refuses to

> drink most fluids and eats very little

> >

> >

> > Lack of weight gain is my main reason for starting this. She

> > absolutley can't afford to lose weight. (only 17 pounds at age

20

> > months) After being on an extremely high calorie diet

(comprised

> > mainly of sugars, carbs, milk) and not gaining, we wanted to

try

> > something differnt.

> >

> > Now after 4 days, she's still just picking at food and refuses

> any

> > liquids. (She does take a little, maybe a total of 2-3 oz/day!)

> > I've tried broths, the Welches 100% grape, both white and

purple

> > watered down, homemade Jello, and grape juice popsicles. The

> > popsicles are the only thing really working. (She ate 3 today.)

> > I've made the electrolyte which she did take some of from a

> syringe.

> > I made the baby formula in the book, but she refused. Water

works

> > for about a moment. I've bought a coconut, (I can't seem to

find

> > UNsweetened coconut anywhere and gave up looking), in hopes of

> making

> > coconut milk. She doesn't trust anything in any kind of bottle,

> cup,

> > you name it. I've purchased totally new cups and it isn't doing

> much

> > better.

> >

> > She's eating some chicken, carrots, beef, bananas (she'd eat

> those

> > all day!), and maybe a piece of apple if you sneak it in. She

> won't

> > eat egg, anything made with egg, (I cooked an egg with pureed

> chicken

> > and apple), or applesauce. I just bought zucchini, squash,

> spinach,

> > and avocado to begin preparing for later, (or sooner, if need

> be).

> >

> > Do I need to start worrying? (Believe me, I'm well past that

> > point!) When do I need to say enough is enough?

> >

> > She's always had a constipation problem and that continues so

> far.

> > She's on Miralax for that, but I used to mix it in with her

> formula.

> > I've tried using a syringe, and basically, forcing it into her

> since

> > she won't drink anything.

> >

> > Please help!

> >

> > Cheryl

> > Mother of Alysson (almost 5) and Dorthia (20 months--SCD 4 days)

> >

> >

> >

> >

> >

> >