Re: Are you serious?

[Guest guest]

Yes, I can see why this is all upsetting.I'm no even sure with HIPAA

laws, that they legally could email you at an address that you hadn't

given them, but that's a whole other issue. As always, just throwing

out some suggestions that may or may not fit. I think that you have

come so far in overcoming challanges with the band, that it would be

a bummer to scrap it at this point.

I would probably set up a meeting with the provider to discuss

everything. I would jot down all the main points prior and make sure

that you get a response to each. It seems like you are going to have

to initiate constructive communication, because it seems like they

won't do that. Because you liked the ortho, there may be a way to

salvage the relationship. Since it sounds like it was the company

that contacted you, you would probably need your ortho to go to bat

for you to continue treatment. You can explain why you were upset

with how things were going, that you were scared for your little one,

etc. I might not suggest all of this if this office wasn't the only

option for you, but I think that it is worth a shot if it means

treating your little one.

I'm also wondering how involved the pediatrician (or any other

providers) has been in the treatment. I would maybe consider

contacting their office and getting them involved. Perhaps (if it is

the case) the pedi would be willing to share that because the blister

situation is under control with wearing the band 20 hours, and that

they do not want Hanger to deny treatment, because that is what they

are doing for one reason or another.

I would also suggest addressing the group issue with the

office, maybe at the end. You could tell them that we (as parents)

come to this board to be able to speak openly and honestly with other

parents to recieve support and to get advice, and that they took that

away from you by reading and reacting to what you posted, and that it

violated your trust with them (since it sounds like it did just that).

Best of luck,

H.

> >

> > My son has went about a month without an adjustment and actually

things

> > were going pretty good. I mean I didnt leave the helmet on 23

hours a

> > day because of the blisters and boils he would get if I left it

on too

> > long. But I figured some wear would be better than none at all.

Well

> > today i get an email from Hanger. On and email I dont even use,

and

> > I've never given them (so of course they check these boards)

telling me

> > that they discussed the issue with my sons ped and they decided

to

> > discontinue the use of the helmet. IM the mother. Excuse ME???

That

> > needs to be discussed with ME first. Not just leave me an email

telling

> > ME what they are going to do about MY son! What the heck??? I

mean, if

> > they had been in contact with me they would know my son hasnt had

any

> > blisters/boils in about a month! My son to me, hasnt gotten that

much

> > of correction yet, but I was holding out hope because there have

been

> > so many other success stories. If you were me what would you do

at this

> > point? I think the ortho is upset at my posting here. BUT I have

only

> > shared whats going on with my son which has been true.

> >

>