Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Clear DayHi all Well today is my little angel Lilys birthday, she would be 3 today if she were here. I had a huge wave of saddness come over me remembering what I was doing at this time, well I was about to go into labour, she was born in about 8 hours time. What a relief that was, but thats when it all went wrong, she wasnt latching on, having trouble breathing and within minutes she was taken away and the long road ahead started for us with the diagnosis of CF, Lily underwent two operations for meconium blockage and the second time she came back ventilated, ( where I am sure she got PA from) This is where she went down hill, we were called back and for 12 hours our family took turns holding our wee Lily Madison, it seemed like a big nightmare, just so unreal, these things happen to other people, not me!! We realised she was going to die and we both told her she could go, we let her go and soon after that she died in my hubbys arms with me crying over her. We took her home for 3 days, I talked with her, held her, slept with her, cryed with her, took her in the garden for a walk. All the things I should have been able to do, I know that those 3 days helped me grieve so much for my loss. Its been 3 yrs now, we have come along way in our grief, not only for Lily but for our genes, we now also have a son with CF who is very healthy I might add, and such a blessing. We wont be having any more children naturally, it is just to hard to cope, the fear is just to great that death can take our children away from this disease, I try so hard to beat that fear but it does raise its head now and then. I love my son so much, but it hurts to love him too because of my experiences, i am sure you guys understand. mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 days old now an angel watching over us xxxx I love you little girl. mummy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 I'm crying too. and sending birthday wishes for Lilly birthday rememberance Clear DayHi all Well today is my little angel Lilys birthday, she would be 3 today if she were here. I had a huge wave of saddness come over me remembering what I was doing at this time, well I was about to go into labour, she was born in about 8 hours time. What a relief that was, but thats when it all went wrong, she wasnt latching on, having trouble breathing and within minutes she was taken away and the long road ahead started for us with the diagnosis of CF, Lily underwent two operations for meconium blockage and the second time she came back ventilated, ( where I am sure she got PA from) This is where she went down hill, we were called back and for 12 hours our family took turns holding our wee Lily Madison, it seemed like a big nightmare, just so unreal, these things happen to other people, not me!! We realised she was going to die and we both told her she could go, we let her go and soon after that she died in my hubbys arms with me crying over her. We took her home for 3 days, I talked with her, held her, slept with her, cryed with her, took her in the garden for a walk. All the things I should have been able to do, I know that those 3 days helped me grieve so much for my loss. Its been 3 yrs now, we have come along way in our grief, not only for Lily but for our genes, we now also have a son with CF who is very healthy I might add, and such a blessing. We wont be having any more children naturally, it is just to hard to cope, the fear is just to great that death can take our children away from this disease, I try so hard to beat that fear but it does raise its head now and then. I love my son so much, but it hurts to love him too because of my experiences, i am sure you guys understand. mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 days old now an angel watching over us xxxx I love you little girl. mummy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 How beautiful!!!! Happy Birthday Lily, you sweet angel. Sue Pettit Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2004 Report Share Posted February 2, 2004 Oh , my HOW BEAUTIFUL & SAD. I join you all in tears . Memory sweet thoughts for this day to remember It is hard , but you know you always have your angel Lily with you Love, Hugs, & tears with you Grandmom Bev Re: birthday rememberance I'm crying too. and sending birthday wishes for Lilly birthday rememberance Clear DayHi all Well today is my little angel Lilys birthday, she would be 3 today if she were here. I had a huge wave of saddness come over me remembering what I was doing at this time, well I was about to go into labour, she was born in about 8 hours time. What a relief that was, but thats when it all went wrong, she wasnt latching on, having trouble breathing and within minutes she was taken away and the long road ahead started for us with the diagnosis of CF, Lily underwent two operations for meconium blockage and the second time she came back ventilated, ( where I am sure she got PA from) This is where she went down hill, we were called back and for 12 hours our family took turns holding our wee Lily Madison, it seemed like a big nightmare, just so unreal, these things happen to other people, not me!! We realised she was going to die and we both told her she could go, we let her go and soon after that she died in my hubbys arms with me crying over her. We took her home for 3 days, I talked with her, held her, slept with her, cryed with her, took her in the garden for a walk. All the things I should have been able to do, I know that those 3 days helped me grieve so much for my loss. Its been 3 yrs now, we have come along way in our grief, not only for Lily but for our genes, we now also have a son with CF who is very healthy I might add, and such a blessing. We wont be having any more children naturally, it is just to hard to cope, the fear is just to great that death can take our children away from this disease, I try so hard to beat that fear but it does raise its head now and then. I love my son so much, but it hurts to love him too because of my experiences, i am sure you guys understand. mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 days old now an angel watching over us xxxx I love you little girl. mummy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 My tears are flowing, she will always be an angel. Wake up every morning and know that she is watching over you, making sure you are taking care of your son and going on as best you can! Love to you, Cheryl, mom to 3 boys, Zac 8 yrs. wocf, Jake 3 yrs. wocf, , 2 years tomorrow, wcf birthday rememberance Clear DayHi all Well today is my little angel Lilys birthday, she would be 3 today if she were here. I had a huge wave of saddness come over me remembering what I was doing at this time, well I was about to go into labour, she was born in about 8 hours time. What a relief that was, but thats when it all went wrong, she wasnt latching on, having trouble breathing and within minutes she was taken away and the long road ahead started for us with the diagnosis of CF, Lily underwent two operations for meconium blockage and the second time she came back ventilated, ( where I am sure she got PA from) This is where she went down hill, we were called back and for 12 hours our family took turns holding our wee Lily Madison, it seemed like a big nightmare, just so unreal, these things happen to other people, not me!! We realised she was going to die and we both told her she could go, we let her go and soon after that she died in my hubbys arms with me crying over her. We took her home for 3 days, I talked with her, held her, slept with her, cryed with her, took her in the garden for a walk. All the things I should have been able to do, I know that those 3 days helped me grieve so much for my loss. Its been 3 yrs now, we have come along way in our grief, not only for Lily but for our genes, we now also have a son with CF who is very healthy I might add, and such a blessing. We wont be having any more children naturally, it is just to hard to cope, the fear is just to great that death can take our children away from this disease, I try so hard to beat that fear but it does raise its head now and then. I love my son so much, but it hurts to love him too because of my experiences, i am sure you guys understand. mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 days old now an angel watching over us xxxx I love you little girl. mummy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 My brother was supposed to be named Lily (if he was a girl) after a family friend so that name has a special place in my heart. I will always think of your little angel when I hear that name. Thank you for sharing her story with us. Sara > Clear DayHi all > Well today is my little angel Lilys birthday, she would be 3 today if she were here. I had a huge wave of saddness come over me remembering what I was doing at this time, well I was about to go into labour, she was born in about 8 hours time. What a relief that was, but thats when it all went wrong, she wasnt latching on, having trouble breathing and within minutes she was taken away and the long road ahead started for us with the diagnosis of CF, Lily underwent two operations for meconium blockage and the second time she came back ventilated, ( where I am sure she got PA from) This is where she went down hill, we were called back and for 12 hours our family took turns holding our wee Lily Madison, it seemed like a big nightmare, just so unreal, these things happen to other people, not me!! We realised she was going to die and we both told her she could go, we let her go and soon after that she died in my hubbys arms with me crying over her. > We took her home for 3 days, I talked with her, held her, slept with her, cryed with her, took her in the garden for a walk. All the things I should have been able to do, I know that those 3 days helped me grieve so much for my loss. > Its been 3 yrs now, we have come along way in our grief, not only for Lily but for our genes, we now also have a son with CF who is very healthy I might add, and such a blessing. We wont be having any more children naturally, it is just to hard to cope, the fear is just to great that death can take our children away from this disease, I try so hard to beat that fear but it does raise its head now and then. > I love my son so much, but it hurts to love him too because of my experiences, i am sure you guys understand. > > mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 days old now an angel watching over us > xxxx I love you little girl. > mummy > > > > Quote Link to comment Share on other sites More sharing options...
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