Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Hello We did SCD for several months laat year and I am sure it really helped Tom's gut. Proper stools for the first time in years and rosy face with no dark circles. HOwever, he lost weight and he's tiny already, he's been about 42lbs for the past year and in that time he's grown upwards by 2 inches. In consultatoin with his school we stopped it and reverted to GF/Cf. But we know he craves things like rice cakes which seem to just show immediately on his face as dark eye circles. It's a very precarious exercise trying to feed him up whilst not overloading his ammonia. He had a major impaction in the summer - which we think we've now cleared. We're really keen to try SCD again but now discover that he has high ammonia. So we're assuming that SCD would be a real no no. Is there a way round this? I want that healthy faced boy back but preferably with more weight on his bones and not exacerbating his aggression which we think is triggered by ammonia. Any thoughts? thanks , UK mum of Tom, 8, finally making great progress but getting really aggressive from time to time. Quote Link to comment Share on other sites More sharing options...
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