no helmet

[Guest guest]

We went about two weeks ago to have a f/u consultation with the neurosurgeon at

texas childrens hospital. We were incredibly nervous b/c we didn't know what

exactly to expect. But shortly after we arrived we went in and spoke with

him....the gentleman with " star band " took new measurements of layla's head and

found a significant improvement in only 1 months time. After the neurosurgeon

looked at the comparison of the measurements he told us that layla would not

need a helmet after all. He also noticed a significant improvement in the

measurements of layla's head and that the aggresive positioning and therapy has

helped extremely. From that point he said just keep up with the therapy and the

positioning and to f/u with him next year feb. and by then we should see a total

change. We were extremely excited but we were also prepared for the possibilty

of having to go the other way. But in the begining it wasn't easy the neuro

wanted us to have her sleep completely on her left side so i took a really large

beach towel and rolled it up like a twinkie and laid her on her left side at

night and placed the towel behind her. Then i made a little pillow for her head

about 1 inch thick for her head that way her spine would stay aligned with the

rest of her body and sometimes i would put a little burp cloth between her legs.

She would sleep like that for about 7 hrs of the night and then roll onto her

back for the last 3-4 hours. So naturally after a couple of times she got used

to sleeping on her side and i would go in and check on her through out the night

and it also helped that we had a video baby monitor. Hopefully everyone else

will soon recieve good news like we did.

good luck

jill jackson