Guest guest Posted January 27, 2007 Report Share Posted January 27, 2007 > > Dear CCFA, > > I just completed reading your article on the SC diet, and am compelled to write. It is disappointing that Debra Gordon felt unable to write a more positive piece on this diet, which is so commonly used for IBD. > > She couldn't find a doctor who fully supports the use of this diet? How odd. There are online lists of gastroenterologists who support the use of the SC diet in their patients, and my daughter's doctor as Mass General in Boston is among them (he, in fact, tries to get ALL his patients with IBD to follow the diet, and works with a dietician at the hospital who is also very knowledgeable about implementing the SC diet with children). > > The article mentions how difficult following the diet could be for a child already taking 15-20 pills a day. Doesn't taking 20 pills a day have a negative effect on a person?! And the potential benefits are not mentioned in relation to this. My daughter takes one pill a day--50 mg. of Imuran--and this is a distinct change from the handful she needed to take before starting the diet. My daughter has been on the diet 8 months, and, while it was not easy in the beginning to change our diet to be fully SCD-compliant, it now just feels like " the way we eat " . > > As a medical journalist myself, I would not have felt satisfied submitting a piece as one- sided as this. There is another side of the SC story, and, with very little sleuthing, Debra Gordon could have found it. > > I look forward to hearing that CCFA, which is so interested in playing " an important role in fostering research on nutrition and IBD " . has given funding for a much-needed double- blind study of the SC diet. > > Sincerely Yours, > > Ellen S. Zagorsky Goldberg, MSN, RN > That letter is excellent and thank you Ellen. If they answer, I owe you an order of Snackeroons from Digestive Wellness! Carol F. SCD 7 years, celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2007 Report Share Posted January 27, 2007 Excellent! Thanks to all those who have taken the time to write the CCFA about the SCD. article on SC diet Quote Link to comment Share on other sites More sharing options...
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