Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Welcome Heidi! We are glad to have you with us, this is a great group for all parents but I think especially new parents. Lots of us have been through what you are going through. Are you allowed to feed your daughter by mouth as you say it seems like she wants to. Tell us more about her, how was she diagnosed and etc? My name is , I have 2 kids, Nick is 21 nocf and is 20 w/cf. She was diagnosed by sweat tests at 8 months. She is doing well now. She was last in the hospital for a tune up (what we call going in for a week or 2 (or more) for IV's and lots of chest PT. She doesn't have to go in very often. looking forward to hearing more about you and your family! love, M Orange County CA Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.