Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Hi everyone. My 10 month old son, twin a, has had torticollis since birth which has caused plagio. From birth I noticed that the entire left side of his face is anterior to the left. His pediatrician acknowleged his condition but wanted to "wait things out" to see if he outgrew it. At around 5 months, only after I kept asking questions, his pediatrician finally refered him to a physical therapist. He went to pt once a week, for a total of 7 sessions before his therapist told me "there is nothing more we can do for him, he will outgrow it as he begins to walk and has more control over his own body". After researching torticollis a great deal I learned that neither his pedi or pt knew what they were talking about. I insisted his pedi refer us someplace that would help us. Last week we went to Cranial Tech in CT, an hour from home but well worth the drive. The nurse there agreed with me, that my son should still be in therapy as well as in a DOCBand. Thanks to everyone at Cranial Tech we are finally on the right path. However, I am extremely worried that it is too late being that my son is 10 months old and will be 11 months old by the time he actually gets his band. Has anyone elses child begun treatment at this age? If so how long was the band necassary and how successful was treatment? I am so angry with my son's pediatrician. I feel he should have refered us to Cranial Tech much sooner and to a pediatric pt rather than one who not only rarely worked with children but one who only dealt with torticollis once in an adult patient. I also feel guilty for not standing up to him sooner and getting my son the help he needed sooner. I am a first time mother who was blessed with twins. I counted on our pediatrician to make the best decisions for my son. I should have went with my motherly intuition. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.