Re: RE ANSWER FROM GOUTBUSTER

[Guest guest]

Hi Tracie,

This is easy for me to say, I know, and I do not say it lightly....but

from all the stories I have heard from members on this board (as

well as other boards) and based on my own experiences with

seeking care from doctors not very knowledgeable about

pancreas divisum and CP, I encourage you to seriously consider

figuring out how to see someone like Dr Lehman or the guru

himself. All the money that you may spend, and emotion grief

that you endure may make any out of pocket costs or the wait

until you can re-enroll into a plan that includes Dr L seem like

time / money well spent. If you are remaining stable, you will be

amazed at how long you can endure this disease. Although it

seems overwhelming now, after some time, you will be amazed

at what you consider " normal " now. The pain that I feel

everyday....is pain that just four years ago would have driven me

into the emergency room. Not that I advocate abusing yourself, or

denying yourself appropriate medical care....it is just that the

reality of this disease is endurance....not necessarily cure. As

hard as it is to become reconciled to, the level of pain that we

feel day to day, hour by hour, etc does not necessarily

correspond to an immediate dangerous physical state of being.

That is basically the only hints I can give....learn to endure,

become educated about the disease, what can be done, what

cannot be done, change your lifestyle to adapt (as it seems you

are doing) and keep looking and hoping to find the right doctor.

Serioously consider finding the way and means to see someone

like Dr Lehman or himself....I think that is your best option right

now (yea right, who am I to tell you what to do? but I write this

with all sincerety......)

Laurie