Re: Lung Transplant question

[Guest guest]

Hi,

I believe what you would be told if you had evaluation today is that the

AVERAGE survival post lung transplant is 5 to 6 years. I wish they would look

at

that number again and be sure that is correct. Most people I know are 7 or 8

years out. But then again who knows across the U.S.

Post lung tx survival is based on some known factors and some unknown

factors.

The known being, if you are not compliant with meds or treatments, you could

shorten your time. The other known is that if you keep getting infections, it

could shorten your time. So that is why most centers, but not all are rules

that you need to follow closely post tx in regards to hygiene. Easy to do, and

common sense, but when some people are told " do this, do that " they seem to

need to go against the grain and rebel.....not sure what they are rebeling

against.... they are the ones who will lose out. The unknown is

something that is called BOS - Bronchiolitis obliterans syndrome - or sometimes

referred to as chronic rejection. It is an unknown why this occurs in lungs,

but

what basicaclly happens is that scarring forms in the small airways and then

you start losing PFT functions. You dont get CF again, but simply short of

breath and cough, but not like a CF cough.

Joanne

> Assuming all goes well, how long is the survival rate after a

> transplant?

>

Joanne M. Schum

Cystic Fibrosis

Bi-lateral Lung Transplant Recipient

September 12, 1997

University of North Carolina Hospitals Chapel Hill

Residence: Upstate New York

email: luckylungsforjo@...

Manager of: Transplant Support - Lung, Heart/Lung, Heart

http://groups.msn.com/TransplantSupportLungHeartLungHeart

" Taking Flight - Inspirational Stories of Lung Transplantation "

Compiled by Joanne Schum

Authored by lung recipients around the world

http://www.trafford.com/robots/02-0497.html

http://www.trafford.com/

[Guest guest]

Survival post-surgery is like 96%, so that's not the hard part. Many

people here live 10-20 years breathing easy, it's a miracle. I would

be in my 40's, but would breathe well the whole time. I can't complain

about that.

That will be the happiest day for me, that call. We'll see. I pray

for those lungs, and for those donors that lose their lives.

On Wednesday, January 7, 2004, at 06:51 PM, christen_28 wrote:

> Assuming all goes well, how long is the survival rate after a

> transplant? 

>

>

>

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