Re: Central Illinois

[Guest guest]

,

We live in ville, IL and use Cardinal Glennon in St Louis. I

missed your original post, but I hope the sweat test was done at a

cf clinic. If you are concerned about inaccurate results the dna

test is a good option. Try to get them to test for as many

mutations as possible to be thourough.

Hope continues to improve!

Sara

> ,

> Did you say that you were from Central Illinois? If so, there is

a CF center in Peoria. Where do you live? We are from a small town

in Fulton county. Our son is 5 and has been doing really well since

he was 2 1/2. knock on wood!

> Deb

>

> Thank you!

>

>

> Hello,

>

> I just wanted to thank those of you for taking the time to

help.

> 's doctor is treating him for asthma. She put him on

> Singulair. I hope that this works, but I am not so sure. I

would

> think that with Pulmacort and Albuterol given to him daily, he

would

> get better. Also, he does not have GERD or any detectable

allergies.

>

> His brother, my five year old, has asthma and is HIGHLY allergic

to

> both indoor and outdoor molds. He is tremendously better on

> Singulair. However, like I told 's doc, 's (my five

year

> old)asthma is very different from 's breathing problems.

She

> responded by telling me that that was one of the reasons she

wanted

> to have the sweat chloride test done, but that now we know

that

> it is negative.

>

> You have to be well informed anymore when it comes to your

health or

> the health of someone you love. Unfortuneately, the doctors

advice

> can not always be solely relied upon. Being a nurse has been an

eye

> opener!! I will suggest the DNA testing at his next appointment.

>

> Thanks again and God bless all of you and your precious little

ones!

>

[Guest guest]

hi heather my name is michelle and we live in peoria ILL we have for girls

the youngest is 2 (anna) and she has cf we go to the clinic here in peoria

and have DR.chatrath and we love him he is the best man you will ever meet

i trust him and his judgement about anything with anna it is a good fellin

g to completley trust the person takeing care of your child well i just

wanted to say hello and good luke with everything

michelle

mom to 4 girls the youngest w/cf Thank you!

> >

> >

> > Hello,

> >

> > I just wanted to thank those of you for taking the time to

> help.

> > 's doctor is treating him for asthma. She put him on

> > Singulair. I hope that this works, but I am not so sure. I

> would

> > think that with Pulmacort and Albuterol given to him daily, he

> would

> > get better. Also, he does not have GERD or any detectable

> allergies.

> >

> > His brother, my five year old, has asthma and is HIGHLY allergic

> to

> > both indoor and outdoor molds. He is tremendously better on

> > Singulair. However, like I told 's doc, 's (my five

> year

> > old)asthma is very different from 's breathing problems.

> She

> > responded by telling me that that was one of the reasons she

> wanted

> > to have the sweat chloride test done, but that now we know

> that

> > it is negative.

> >

> > You have to be well informed anymore when it comes to your

> health or

> > the health of someone you love. Unfortuneately, the doctors

> advice

> > can not always be solely relied upon. Being a nurse has been an

> eye

> > opener!! I will suggest the DNA testing at his next appointment.

> >

> > Thanks again and God bless all of you and your precious little

> ones!

> >

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

>