Re: Our GI doc's opinion of SCD

[Guest guest]

Sherry,

Thank you so much for sharing! What is the doctor's name?

Mimi

> I couldn't wait to share this with this group. I'm not a very active

> participant I know but I am always reading. is almost 18 and has Down

> Syndrome and Autism. She's been on SCD for 3 years. We saw immediate

> improvement and then some ups and downs later on mainly due to my numerous

> nervous breakdowns LOL. Anyway they were all set to send her for a combo

> endo/colonoscopy and we, after a long process met with the doctor himself

> (like getting an audience with the Pope). He's the only peds GI for a 500

> mile radius and is overwhelmingly in demand and a great guy. Usually we see

> nurse practitioners etc. Yesterday dh grilled me on 's diet and had all

> the info with him so when the doc asked him about her diet dh mentioned SCD.

> The doc sais " oh? a low carb diet??? " and dh went into his Elaine schpeil

> (sp?) when the doc broke in and asked " is that from that book about

> something something vicious cycle? "

> dh said yes and the doctor was so enthusiastic. He said he had absolutely no

> data to prove that the diet worked but he knew for a fact that it did as he

> had several patients he had worked with for years and was unable to help who

> discovered the diet on their own and had healed themselves or their

> children. He was amazed that we were able to maintain it and do all the

> work for so long and he praised us up and down!! It was such a validation

> that I just had to share it with you all. He told us not to worry if we were

> going to continue on this SCD path! First time I've even run into a doc who

> is familiar with it let alone so supportive.

> Anyway, just thought I'd let you know.

> Sherry in Florida

>

>

[Guest guest]

His name is Dr. Tano at 1150 N 35th ave #545; Hollywood Fl

Just a warning for anyone in Fl attempting to see him- it wall take months to

get an appt. and at least a 3-4 hour wait at the office. He's the only peds GI

left who takes medicaid.

Sherry

[Guest guest]

This is great! The news is spreading. I hope he realizes that SCD

is not a " low carb " diet. That it is a " specific carb " diet.

This was our biggest problem in getting our pediatrician to agree

feeding SCDoet to our celac/pdd daughter. She had to understand that

this is not low carb. We eat carbohydrates....lots of them. That is

after the introductory diet. Unless a person is showing sensitivity

to honey, fruit, or is trying to loose weight, no reason to cut down

the carbs.

Antoinette mom to Kiki(SCD 2/06)