Angry/Confused with Cranial Tech

[Guest guest]

We went in for our son's scan on Tuesday for them to tell us that they can not

band him right now due to his torticollis. He is 5 1/2 months old and has been

going to PT since he was 3 1/2 months old for his torticollis. They said to

continue PT until he is 7 months and them come back to CT and see if we can band

him then. Well by then the main window of opportunity is over! I don't

understand why they can't band him with his torticollis. My ped thinks it would

help him if they band himm now. My husband refuses to go anywhere but CT for a

band even though I have a Hanger place 20 minutes from my house (CT is 25

minutes). He believe they are the best at what they do (even though he has no

experience with anywhere else and is going by what others have told him). Anyone

else been through this also? I'm not impressed so far with the CT in ndale,

VA as the lady there says " I'm not a doctor BUT this is what I think you should

do or this is what I think your child has, etc. " Well since you're not a

doctor, should you really be telling us things to make us worry more as she is

stating the worse case scenerio with torticolllis and what can happen in the

long run. I understand that but stop saying " I'm not a doctor but... " I guess

that's just irritating to hear.

Sorry for the babbling...I'm just upset with CT at this point. I don't want to

miss the opportunity to band my son at the right time. CT recommended a new PT

for me to try in Fairfax called Physiotherapy Associates. Has anyone had

experience with them? I have an appointment next Wednesday and I'm hoping for a

miracle and they will say go ahead and get your son banded while we work with

him.

Thanks for listening. :-)

[Guest guest]

Hi ,

We went to CT in VA and they never said anything about torticollis being an

issue in delaying the band. My son was four months old, but they did say that

he would need two bands because of the severity of the plagio. We also went to

Hanger in Reston and they didn't have an issue with torticollis. We got our

band from Star Cranial in Columbia and there was not delay either.

Ramona

[Guest guest]

Hi . I am sorry that you are so frustrated. I am a pediatric PT in VA as

well as had my son banded from July-Oct 09 (10-14 months). We had a positive

experience at CT in ndale. As a PT I am not sure why they would not band

him while he was still in PT. Is the plagio mild, moderate, or severe? My son

had mild/moderate plagio from very mild tort and we/I did PT on him with the

band. They made sure to give me stretching exercises at CT for the tort even

though I told them I was already doing them. To me the only reason I could

think of where they would not band would be if the plagio is mild and the tort

is severe to the point where he will quickly grow out of the band while still

having a significant tilt and will regress when the band comes off. I am happy

to answer any other questions both from a PT or a parent perspective if you

would like.

Good Luck

Laughlin

>

> We went in for our son's scan on Tuesday for them to tell us that they can not

band him right now due to his torticollis. He is 5 1/2 months old and has been

going to PT since he was 3 1/2 months old for his torticollis. They said to

continue PT until he is 7 months and them come back to CT and see if we can band

him then. Well by then the main window of opportunity is over! I don't

understand why they can't band him with his torticollis. My ped thinks it would

help him if they band himm now. My husband refuses to go anywhere but CT for a

band even though I have a Hanger place 20 minutes from my house (CT is 25

minutes). He believe they are the best at what they do (even though he has no

experience with anywhere else and is going by what others have told him). Anyone

else been through this also? I'm not impressed so far with the CT in ndale,

VA as the lady there says " I'm not a doctor BUT this is what I think you should

do or this is what I think your child has, etc. " Well since you're not a

doctor, should you really be telling us things to make us worry more as she is

stating the worse case scenerio with torticolllis and what can happen in the

long run. I understand that but stop saying " I'm not a doctor but... " I guess

that's just irritating to hear.

>

> Sorry for the babbling...I'm just upset with CT at this point. I don't want to

miss the opportunity to band my son at the right time. CT recommended a new PT

for me to try in Fairfax called Physiotherapy Associates. Has anyone had

experience with them? I have an appointment next Wednesday and I'm hoping for a

miracle and they will say go ahead and get your son banded while we work with

him.

>

> Thanks for listening. :-)

>

>

[Guest guest]

It sounds as though you might be dealing with some serere tort? I think in more

severe cases CT generally advises more PT before starting band treatment. Also,

did you actually have the DSi done on Tuesday? Because I was told that it's

really important that they get good posture in the scan in order to make the

band just right. The head molds they use to create the bands incorporate a

little bit of the upper neck and if the baby is slouched or if the tort makes it

impossible for them to keep their head up straight enough for the DSi, it would

be impossible to make a good fitting band for them. I'm not sure any of this is

the case for your son, but I'm just throwing ideas out there.

Have you seen an improvement in his tort since you started PT? If not, you

should be (if even a little), so switching to the new PT is a good idea. And

keep up with the exercises at home as much as possible. Hopefully you'll see

some good improvements in the tort really soon. I do think CT really has your

and your son's best interests at heart. But it probably would have been better

if she could have explained them a little more clearly.

Good luck!

Jake-3.5 (DOCBand Grad 9/08)

Raleigh, NC

>

> We went in for our son's scan on Tuesday for them to tell us that they can not

band him right now due to his torticollis. He is 5 1/2 months old and has been

going to PT since he was 3 1/2 months old for his torticollis. They said to

continue PT until he is 7 months and them come back to CT and see if we can band

him then. Well by then the main window of opportunity is over! I don't

understand why they can't band him with his torticollis. My ped thinks it would

help him if they band himm now. My husband refuses to go anywhere but CT for a

band even though I have a Hanger place 20 minutes from my house (CT is 25

minutes). He believe they are the best at what they do (even though he has no

experience with anywhere else and is going by what others have told him). Anyone

else been through this also? I'm not impressed so far with the CT in ndale,

VA as the lady there says " I'm not a doctor BUT this is what I think you should

do or this is what I think your child has, etc. " Well since you're not a

doctor, should you really be telling us things to make us worry more as she is

stating the worse case scenerio with torticolllis and what can happen in the

long run. I understand that but stop saying " I'm not a doctor but... " I guess

that's just irritating to hear.

>

> Sorry for the babbling...I'm just upset with CT at this point. I don't want to

miss the opportunity to band my son at the right time. CT recommended a new PT

for me to try in Fairfax called Physiotherapy Associates. Has anyone had

experience with them? I have an appointment next Wednesday and I'm hoping for a

miracle and they will say go ahead and get your son banded while we work with

him.

>

> Thanks for listening. :-)

>

>

[Guest guest]

, I think what you said is the case actually but it's still makes me a little angry as we did get the scan done on Monday and because of his posture they didn't want to move forward. They said the could but the band wouldn't be as effective. I was just disappointed after all of that time spent there on Monday and walked away with "come back in 4-6 weeks" especially when our first visit there was at 3 1/2 months old. I really didn't think posture was an issue but I guess it is. It's good to hear it from someone else. I appreciate your email response. I hope this new PT can help "straighten" my son out so we can move forward by July. The other PT we were going to said he was doing great so hopefully this new one will see what needs to be taken care of now.

From: nwilkens2275 <nwilkens2275@...>Subject: Re: Angry/Confused with Cranial TechPlagiocephaly Date: Sunday, May 23, 2010, 12:18 PM

It sounds as though you might be dealing with some serere tort? I think in more severe cases CT generally advises more PT before starting band treatment. Also, did you actually have the DSi done on Tuesday? Because I was told that it's really important that they get good posture in the scan in order to make the band just right. The head molds they use to create the bands incorporate a little bit of the upper neck and if the baby is slouched or if the tort makes it impossible for them to keep their head up straight enough for the DSi, it would be impossible to make a good fitting band for them. I'm not sure any of this is the case for your son, but I'm just throwing ideas out there. Have you seen an improvement in his tort since you started PT? If not, you should be (if even a little), so switching to the new PT is a good idea. And keep up with the exercises at home as much as possible. Hopefully you'll see some good improvements in the tort

really soon. I do think CT really has your and your son's best interests at heart. But it probably would have been better if she could have explained them a little more clearly. Good luck!Jake-3.5 (DOCBand Grad 9/08)Raleigh, NC>> We went in for our son's scan on Tuesday for them to tell us that they can not band him right now due to his torticollis. He is 5 1/2 months old and has been going to PT since he was 3 1/2 months old for his torticollis. They said to continue PT until he is 7 months and them come back to CT and see if we can band him then. Well by then the main window of opportunity is over! I don't understand why they can't band him with his torticollis.

My ped thinks it would help him if they band himm now. My husband refuses to go anywhere but CT for a band even though I have a Hanger place 20 minutes from my house (CT is 25 minutes). He believe they are the best at what they do (even though he has no experience with anywhere else and is going by what others have told him). Anyone else been through this also? I'm not impressed so far with the CT in ndale, VA as the lady there says "I'm not a doctor BUT this is what I think you should do or this is what I think your child has, etc." Well since you're not a doctor, should you really be telling us things to make us worry more as she is stating the worse case scenerio with torticolllis and what can happen in the long run. I understand that but stop saying "I'm not a doctor but..." I guess that's just irritating to hear.> > Sorry for the babbling...I'm just upset with CT at this point. I don't want to miss the opportunity to band my son

at the right time. CT recommended a new PT for me to try in Fairfax called Physiotherapy Associates. Has anyone had experience with them? I have an appointment next Wednesday and I'm hoping for a miracle and they will say go ahead and get your son banded while we work with him.> > Thanks for listening. :-)> >

[Guest guest]

,

After your last post about only doing one band, something else occurred to me. They typically like to see most cases of tort mostly resolved before they get out of the band. If you are only doing one, then this means that the time in the band will be limited to when he outgrows it, which would likely be fast because of his age.

So, it could be an issue with making the band (as suggests) since he would need to sit straight for a Dsi. Heck, maybe they only discovered the issue when they attempted the Dsi with him as it sounds like they did. Or, it could also be the case where CT is anticipating that he would graduate from the band with tort that is still significant enough to cause regression. If so, it would not make sense to proceed with treatment if they head is likely to get worse after graduation. If you were able to do more than one band (don't worry - I am not saying that you should), then they might have suggested a 2nd one until the tort was resolved.

Sometimes, professionals have to tell parents things that we don't want to hear. And, sometimes they forget that we need more explanation in order to understand it. It is like they do it all the time and they forget that these concepts and ideas are new for all of us. Plus, some of us need to understand things more than others. Some parents would have taken that explanation and been fine with it. It sounds like you are like me in that sense that you need to understand more. Why don't get give your technician a call and ask to speak with her. Ask her to explain a little bit more about why she wants you to wait. Ask if it is a fit issue or a possible regression issue, etc.

I do think that 7 months will be fine. It might result in spending a few more weeks in the band, but a few more weeks in a band really isn't that significant. And, the baby will still probably outgrow the band in less than the full 16 weeks so that the total amount of correction that you could get will probably be the same. It just may take a little bit longer. Believe me, I would have given anything to have started that young.

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<a href="http://www.baby-gaga.com/"><img src="http://tickers.baby-gaga.com/t/eleeleard20060414_-8_DS+is.png" alt="baby" border="0" /></a> Re: Angry/Confused with Cranial Tech

It sounds as though you might be dealing with some serere tort? I think in more severe cases CT generally advises more PT before starting band treatment. Also, did you actually have the DSi done on Tuesday? Because I was told that it's really important that they get good posture in the scan in order to make the band just right. The head molds they use to create the bands incorporate a little bit of the upper neck and if the baby is slouched or if the tort makes it impossible for them to keep their head up straight enough for the DSi, it would be impossible to make a good fitting band for them. I'm not sure any of this is the case for your son, but I'm just throwing ideas out there. Have you seen an improvement in his tort since you started PT? If not, you should be (if even a little), so switching to the new PT is a good idea. And keep up with the exercises at home as much as possible. Hopefully you'll see some good improvements in the tort really soon. I do think CT really has your and your son's best interests at heart. But it probably would have been better if she could have explained them a little more clearly. Good luck!Jake-3.5 (DOCBand Grad 9/08)Raleigh, NC>> We went in for our son's scan on Tuesday for them to tell us that they can not band him right now due to his torticollis. He is 5 1/2 months old and has been going to PT since he was 3 1/2 months old for his torticollis. They said to continue PT until he is 7 months and them come back to CT and see if we can band him then. Well by then the main window of opportunity is over! I don't understand why they can't band him with his torticollis. My ped thinks it would help him if they band himm now. My husband refuses to go anywhere but CT for a band even though I have a Hanger place 20 minutes from my house (CT is 25 minutes). He believe they are the best at what they do (even though he has no experience with anywhere else and is going by what others have told him). Anyone else been through this also? I'm not impressed so far with the CT in ndale, VA as the lady there says "I'm not a doctor BUT this is what I think you should do or this is what I think your child has, etc." Well since you're not a doctor, should you really be telling us things to make us worry more as she is stating the worse case scenerio with torticolllis and what can happen in the long run. I understand that but stop saying "I'm not a doctor but..." I guess that's just irritating to hear.> > Sorry for the babbling...I'm just upset with CT at this point. I don't want to miss the opportunity to band my son at the right time. CT recommended a new PT for me to try in Fairfax called Physiotherapy Associates. Has anyone had experience with them? I have an appointment next Wednesday and I'm hoping for a miracle and they will say go ahead and get your son banded while we work with him.> > Thanks for listening. :-)> >