Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Well everything went well again. We will find out his culture results by the end of the week. After about two weeks of being sick we are happy to see that he is doing much better so the Dr.s had nothing to complain about. weighs just over 33 lbs and is 3 and 1/2 feet tall. Now his CF doc says that since he is staying on his curve of 25%for weight and 50% for height then he isn't concerned. But the nutritionist is throwing a temper tantrum and his saying that is borderline a nutritional failure. So our doctor is going to D.C. next week to take what he knows about and talk to the foundation and see what they say. As far as we are concerned he is like his parents and a lean kid. He heats so-so but he takes in enough to suffice and keep his weight from slipping. mom to 4wcf and Brenna 8wocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hey , It sounds to me like he is doing really well. Who at the CFF office would have a clue any more than your own dietician .There is only one doc at CFF & he is Dr . But , it seems even your doctor would know more about the weight thing,....since he knows the patient & hasn't lost..GEESE------------ OH well.. Bless you all & stay as well as you are Love & hugs, grandmoMBEV 's appt Well everything went well again. We will find out his culture results by the end of the week. After about two weeks of being sick we are happy to see that he is doing much better so the Dr.s had nothing to complain about. weighs just over 33 lbs and is 3 and 1/2 feet tall. Now his CF doc says that since he is staying on his curve of 25%for weight and 50% for height then he isn't concerned. But the nutritionist is throwing a temper tantrum and his saying that is borderline a nutritional failure. So our doctor is going to D.C. next week to take what he knows about and talk to the foundation and see what they say. As far as we are concerned he is like his parents and a lean kid. He heats so-so but he takes in enough to suffice and keep his weight from slipping. mom to 4wcf and Brenna 8wocf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Your son sounds just like mine. He'll be 4 in March and he weighs about 32 lbs. and is about 40 " tall. (His dad is 6'3 " and weighs about 160. String bean.) Like father like son, I think. JC appears to be pancreatic sufficient (normal bowels, etc.) Our clinic watched him very carefully for a while and finally conceded he just takes after dad. Angie P. (Ma to JC, almost 4, wcf) > Well everything went well again. We will find out his culture results > by the end of the week. After about two weeks of being sick we are > happy to see that he is doing much better so the Dr.s had nothing to > complain about. weighs just over 33 lbs and is 3 and 1/2 > feet tall. Now his CF doc says that since he is staying on his curve > of 25%for weight and 50% for height then he isn't concerned. But the > nutritionist is throwing a temper tantrum and his saying that > is borderline a nutritional failure. So our doctor is going > to D.C. next week to take what he knows about and talk to > the foundation and see what they say. As far as we are concerned he > is like his parents and a lean kid. He heats so-so but he takes in > enough to suffice and keep his weight from slipping. > > mom to 4wcf and Brenna 8wocf Quote Link to comment Share on other sites More sharing options...
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