For Trude and (other) Beth

[Guest guest]

You can go to message 47957 in this group to read my post from last

month which describes my experience. It's rather long and I'd hate to

repost and take up space .

The things that have changed since that post is that I have recently

undergone an upper GI and have been diagnosed with severe reflux. I

also have a " deep gastric fold " at the junction of the the intestine

and stomach. I'm not sure what that means but I will find out . My

PCP has increased my dose of Prevacid and Carafate to see if that

will control the vomiting. My hair continues to fall out and my

energy

level is still not up to par. My diet is still limited but I have

lost 4 more pounds since that post.

To the other Beth who posted I want you to know that you are soooo

right in your assesment of what it feels like to be in that 3%. I'm

sure it's no where near as painful as losing a child but it is

sometimes difficult. Thank you for your kind words.

As for the " other " list and the suggestion that I should have started

it ... all I can say is I haven't got THAT much energy ... lol. There

is some good information to be found there if you're still

researching

in spite of the strong personalities that exert themselves (sometimes

without poise or eloquence). Once again, I do not agree with her

tactics but I support her right to express herself.