Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Bev, I wouldn't dream of asking anyone for meds. You guys there pay a fortune for all your stuff and need to keep it for yourselves. Don't you worry we will get this damn thing. I went in there today and got some hypertonic saline. She hasn't been to bad today. I started her on the Augmentin Duo as well. School starts back here on the 2nd Feb. and I really want her to bed raring to go. I have missed a few posts but whoever was the sweetie who suggested sending us the stuff please thank them for me. A lovely gesture. (Australia) had enough of this I have had enough of Cf. Eilish has a wet cough back. She has been of IV's 2 days only and wham its here. I truly think its coming from her sinuses. It starts the same way, husky voice then the cough. When I heard it last night I felt like screaming. I just don't know what else to do. 4 weeks of IV's in 9 weeks is heaps and the minute it ********stops its back. I am so angry. I don't know who to be angry with so I am angry with the disease. Any suggestions for sinuses? rang the cf centre and they said to put her on Augmentin. I am not wanting to do this. Although I absolutely trust her Dr. I feel she doesn't need more antibiotics she needs something to thin down the mucus to move it. So I have given her inhaled Ventolin to break it up. I've also spray saline up her nose. At this stage I am open for suggestions. said on Monday he will ring them back (I have had enough) and tell them to do something. Pulmozyme is not on the government listing her so the hsp. has to pay $1000.00 per month for it. They give it out sparingly. But is on the war path for at least a trial of it. Sorry about the moaning but I have had it . Well better go 'bash' her now. She's lucky I love her so much LOL! (Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Hi I found today that I am only getting some mail not all so I had to goto the website to read.Today has been busy clearing out the laundry room as if I will ever be finished with dirty laundry.The church said they have two families with 2 beds so the girls should be covered by that.The pastor told me to write down the kids sizes as there is someone who wants to buy the kids an easter outfit.That will be nice as we usually don't do easter like that.The whole Easter Bunny thing is too commercial so I make baskets with things like a bible or bible book for the younger ones and pencils etc(not candy ) just items relating to what the day represents to us.I am still trying to see if there is an emergency fund at DSS to cover beds etc.I am still waiting to hear back from them.I am calling the red cross to see if they can help.I am asking every where I can think as someone will say Yes eventually.Love BeckyB. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Becky, I thought you had beds coming? A futon and two other beds? Did that not work out? Bev Hi I found today that I am only getting some mail not all so I had to goto the website to read.Today has been busy clearing out the laundry room as if I will ever be finished with dirty laundry.The church said they have two families with 2 beds so the girls should be covered by that.The pastor told me to write down the kids sizes as there is someone who wants to buy the kids an easter outfit.That will be nice as we usually don't do easter like that.The whole Easter Bunny thing is too commercial so I make baskets with things like a bible or bible book for the younger ones and pencils etc(not candy ) just items relating to what the day represents to us.I am still trying to see if there is an emergency fund at DSS to cover beds etc.I am still waiting to hear back from them.I am calling the red cross to see if they can help.I am asking every where I can think as someone will say Yes eventually.Love BeckyB. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 It seems to me that I recall being told that MSN was not well received (electron ically) in Europe and outside the United States, so I chose high speed internet instead. But there are many ISPs that work well everywhere! Just a thought, n Rojas Bev Hi I found today that I am only getting some mail not all so I had to goto the website to read.Today has been busy clearing out the laundry room as if I will ever be finished with dirty laundry.The church said they have two families with 2 beds so the girls should be covered by that.The pastor told me to write down the kids sizes as there is someone who wants to buy the kids an easter outfit.That will be nice as we usually don't do easter like that.The whole Easter Bunny thing is too commercial so I make baskets with things like a bible or bible book for the younger ones and pencils etc(not candy ) just items relating to what the day represents to us.I am still trying to see if there is an emergency fund at DSS to cover beds etc.I am still waiting to hear back from them.I am calling the red cross to see if they can help.I am asking every where I can think as someone will say Yes eventually.Love BeckyB. Quote Link to comment Share on other sites More sharing options...
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