Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 Welcome??? This will get easier to cope with and your children are born in the right era--there ARE new antibiotics, anti-inflammatories, drugs for the liver, and there IS hope for a cure. Thank you for joining us, though we are always saddened to hear of more new diagnoses. We are here for you and you will not be alone--not on this list, the best cystic fibrosis list in cyberspace, and the safest! Love to you, n Rojas wcf, age 66 (yes!), mom of two carriers, aged 42 and just under 40, and one nearly 39 wcf as well--so take heart; many do live longer; we are just " invisible, " it would seem! Love to you; you will get to meet many others, including one member older than I by some years! n, who keeps signing her name twice! New member Hello! I am new to the group. I have two children my son will be 3 in two weeks, w/o CF and my daughter who is 5 months w/ CF. I am having a hard time knowing what to do with all the emotions that this diagnosis brings and would like some advise from those who have been through it. Our daughter was diagnosed at 1 week of age and has been on Creon since 3 weeks. She is very healthy for which we are very thankful, but I feel like I am waiting for the ball to drop and just woudl like to know what to expect. Any advise on how to focus on the positive instead of the negative aspects of this disease would also be appreciated. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 Whoops! That was supposed to be " Welcome!!! " n New member Hello! I am new to the group. I have two children my son will be 3 in two weeks, w/o CF and my daughter who is 5 months w/ CF. I am having a hard time knowing what to do with all the emotions that this diagnosis brings and would like some advise from those who have been through it. Our daughter was diagnosed at 1 week of age and has been on Creon since 3 weeks. She is very healthy for which we are very thankful, but I feel like I am waiting for the ball to drop and just woudl like to know what to expect. Any advise on how to focus on the positive instead of the negative aspects of this disease would also be appreciated. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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