Off topic: Autism presentations to my daughters grade 1 class

[Guest guest]

On thurdsay my daughter's grade one class will be having a

presentation on autism.(1 of 2) My daughter is not autistic, but

there is a boy in her class who is.

They say their " goal is to increase peer awareness on this topic "

and " that through understanding and acceptance, we can all work

together to ensure that our children learn to work cooperatively with

each other while respecting our differences. "

This boy is pretty nasty...last year he would blow on my daughter

non-stop, kick her...etc. This year he is pretty much the same...he

likes to through playdough at my daughter(wheat is dangerous for

her)...he spends the day going around the room bugging one kid after

the next. I have talked to my daughter many times about this boy

because she is always telling me he is bad. I have told her before he

can't always stop himself from doing what he does...that he doesn't

hurt people on purpose...that he just needs more time to learn to be

nicer.

My daughter really doesn't get what I mean...she says " mommy he is

just bad "

I know you guys are experts on autism ...!!

Question...are 6 years old's really too young to understand this?

I feel that they are wasting school time with these

presentations...that the children are too young yet..for this.

I've always told my children to play with the kids who are nice to you

and if someone isn't nice don't bother with them until they are nice.

I feel bad for the boy, but I don't expect my daughter to accept him

as her friend if he isn't nice.

Maybe my problem with these presentations is just that I know too much

about the Mom and boy, as my neighbour babysat the boy for 5 years.

The mom has IBS...a ton of food intolerances..She knows the boy has

many food issues....she feed him rice milk as a baby, no wheat etc.

But I guess it is easier for her to just feed him everything, have a

teacher on pager to come to the rescue when he is bad,drug him, and to

give presentations to his class...to tell the other kids to be his

friend. Am I being too hard on her? I would never share this opinion

with her.

I feel bad for the boy who probably just needs allergy testing and/or

maybe the SCD. This boy was normal until age 4...

My son was very much like this boy until he was gluten free. And

doctors were ready and willing to label my son and give him drugs..and

wouldn't ever consider that food was causing it. But I am half dutch

and very stubborn , I refused the drugs and told them they were wrong.

So I guess I better just stay away from the presentations....and be

nice...maybe it's not her fault that she is not strong enough or

stubborn enough to question the doctors . I imagine those doctors can

be pretty darn convincing..some people will never make it to the

" Pecanbread " site. I shouldn't judge her..as I probably really don't

understand what autism is really like.

I just feel that they are accomplishing nothing with these presentations?

What do you think?

Thanks,

Cathy

aug 2006

, -celiac

[Guest guest]

Cathy,

We agree with you that SCD can make a difference for a child with

autism! Even an adult with ASD can be tamed with this diet. Pam Ferro

treats adults who live in group

homes. She once told the following story to Elaine:

An adult had come to her clinic for treatment;he had several aides to

accompany him because he was so violent.. After a month with SCD,he

returned with only one aide;he was no longer violent. When it was

time to leave,he gave Pam a hug!

Unfortunately,far too many parents are not aware of the benefit of SCD

for children with autism,ADD,CP and IBD. Yes,we need awareness to

spread the word about SCD. However,we have no funds and not enough

volunteers. Some of us are mothers of young children and have little

time. We are so busy answering the list questions and updating the

website that we do not have the time to let the world know about SCD.

A child whodoes not receive the proper treatment at a young age costs

taxpayers lots of money! A life that could have been happy is spent in

pain and isolation. We need your help!! We need volunteers who can

post SCD info on other lists. It only takes a few minutes. We need

parents who can give their email address when we make a petition or

ask for testimonials. We need your help! We cannot do this alone.

Please help us make a difference!!

Mimi

Can you please send the moderators a private email if you can spend 2

minutes a week posting SCD messages on other Yahoo lists. The posts

are already written so that you do not need to spend any time writing

them. You do not need to be a member of the autism community to

participate. Everyone is welcome!

> On thurdsay my daughter's grade one class will be having a

> presentation on autism.(1 of 2) My daughter is not autistic, but

> there is a boy in her class who is.

> They say their " goal is to increase peer awareness on this topic "

> and " that through understanding and acceptance, we can all work

> together to ensure that our children learn to work cooperatively with

> each other while respecting our differences. "

>

> This boy is pretty nasty...last year he would blow on my daughter

> non-stop, kick her...etc. This year he is pretty much the same...he

> likes to through playdough at my daughter(wheat is dangerous for

> her)...he spends the day going around the room bugging one kid after

> the next. I have talked to my daughter many times about this boy

> because she is always telling me he is bad. I have told her before he

> can't always stop himself from doing what he does...that he doesn't

> hurt people on purpose...that he just needs more time to learn to be

> nicer.

> My daughter really doesn't get what I mean...she says " mommy he is

> just bad "

>

> I know you guys are experts on autism ...!!

> Question...are 6 years old's really too young to understand this?

> I feel that they are wasting school time with these

> presentations...that the children are too young yet..for this.

> I've always told my children to play with the kids who are nice to you

> and if someone isn't nice don't bother with them until they are nice.

> I feel bad for the boy, but I don't expect my daughter to accept him

> as her friend if he isn't nice.

>

> Maybe my problem with these presentations is just that I know too much

> about the Mom and boy, as my neighbour babysat the boy for 5 years.

> The mom has IBS...a ton of food intolerances..She knows the boy has

> many food issues....she feed him rice milk as a baby, no wheat etc.

> But I guess it is easier for her to just feed him everything, have a

> teacher on pager to come to the rescue when he is bad,drug him, and to

> give presentations to his class...to tell the other kids to be his

> friend. Am I being too hard on her? I would never share this opinion

> with her.

>

> I feel bad for the boy who probably just needs allergy testing and/or

> maybe the SCD. This boy was normal until age 4...

> My son was very much like this boy until he was gluten free. And

> doctors were ready and willing to label my son and give him drugs..and

> wouldn't ever consider that food was causing it. But I am half dutch

> and very stubborn , I refused the drugs and told them they were wrong.

>

> So I guess I better just stay away from the presentations....and be

> nice...maybe it's not her fault that she is not strong enough or

> stubborn enough to question the doctors . I imagine those doctors can

> be pretty darn convincing..some people will never make it to the

> " Pecanbread " site. I shouldn't judge her..as I probably really don't

> understand what autism is really like.

>

> I just feel that they are accomplishing nothing with these presentations?

>

> What do you think?

> Thanks,

>

> Cathy

> aug 2006

> , -celiac

>

>

>

>

[Guest guest]

Cathy,

Autism is a very mysterious and unique diagnosis. I have never met two

kids/adults with autism that are the same, and I know quite a few of them.

Every child, every family, and every situation is unique. What one suffers from

another does not, and what one responds to another does not. Even what one

responds to now, he/she may not respond to later. Things change.

Losing a child to regressive autism is a cruel thing for a parent to go

through. There is a lot of self blame.

The terms " nasty " , " mean " , and " not nice " imply that there is purpose and

intent of the child to be hurtful to another. This may or may not be the case.

With a disability it usually isn't. The child may have sensory issues, be over

stimulated, or be reinforced by an outcome of his actions.

I am not excusing his behaviors, and I would hope that those involved in his

program are addressing each and every one of them. But where a typically

developing child may understand that he/she cannot do something after being told

several times, a child with autism must be shown several hundred if not several

thousand times. They take longer.

I would suggest writing down your concerns and giving them to the teacher

before the presentation. Perhaps some of them can be addressed during the

presentations. You should attend this with your daughter and keep an open mind.

Be there to answer your daughter's questions and concerns. She is the one that

has to be in the classroom every day, help her learn to cope with and accept the

childs differences. Looking for progress in the child's behaviors, even minute

ones, may help her to feel less angry with him. Be aware that even allowing the

presentation is very gutsy on the parents part.

I hope this helps you and your daughter. Good luck with the presentations.

Lori

2 kids with autism. One on SCD, one not

P.S. Does the child have a one on one aide during the day to help him

participate in an acceptable manner? If not, I would definately question why?

cjb202207 wrote:

On thurdsay my daughter's grade one class will be having a

presentation on autism.(1 of 2) My daughter is not autistic, but

there is a boy in her class who is.

They say their " goal is to increase peer awareness on this topic "

and " that through understanding and acceptance, we can all work

together to ensure that our children learn to work cooperatively with

each other while respecting our differences. "

This boy is pretty nasty...last year he would blow on my daughter

non-stop, kick her...etc. This year he is pretty much the same...he

likes to through playdough at my daughter(wheat is dangerous for

her)...he spends the day going around the room bugging one kid after

the next. I have talked to my daughter many times about this boy

because she is always telling me he is bad. I have told her before he

can't always stop himself from doing what he does...that he doesn't

hurt people on purpose...that he just needs more time to learn to be

nicer.

My daughter really doesn't get what I mean...she says " mommy he is

just bad "

I know you guys are experts on autism ...!!

Question...are 6 years old's really too young to understand this?

I feel that they are wasting school time with these

presentations...that the children are too young yet..for this.

I've always told my children to play with the kids who are nice to you

and if someone isn't nice don't bother with them until they are nice.

I feel bad for the boy, but I don't expect my daughter to accept him

as her friend if he isn't nice.

Maybe my problem with these presentations is just that I know too much

about the Mom and boy, as my neighbour babysat the boy for 5 years.

The mom has IBS...a ton of food intolerances..She knows the boy has

many food issues....she feed him rice milk as a baby, no wheat etc.

But I guess it is easier for her to just feed him everything, have a

teacher on pager to come to the rescue when he is bad,drug him, and to

give presentations to his class...to tell the other kids to be his

friend. Am I being too hard on her? I would never share this opinion

with her.

I feel bad for the boy who probably just needs allergy testing and/or

maybe the SCD. This boy was normal until age 4...

My son was very much like this boy until he was gluten free. And

doctors were ready and willing to label my son and give him drugs..and

wouldn't ever consider that food was causing it. But I am half dutch

and very stubborn , I refused the drugs and told them they were wrong.

So I guess I better just stay away from the presentations....and be

nice...maybe it's not her fault that she is not strong enough or

stubborn enough to question the doctors . I imagine those doctors can

be pretty darn convincing..some people will never make it to the

" Pecanbread " site. I shouldn't judge her..as I probably really don't

understand what autism is really like.

I just feel that they are accomplishing nothing with these presentations?

What do you think?

Thanks,

Cathy

aug 2006

, -celiac

[Guest guest]

I think it's a little young to explain autism. My niece and nephew that are

ages eight and six don't understand exactly what is going on with iel.

They just know that he's very sick, and it makes his brain not be able to work

like it should. He's not even agressive or severely autistic. He's very sweet,

friendly, interactive, ect. I'd just tell your daughter what my brother and his

wife told their children, and tell her that she should be kind to him even if

he's mean to her. Of course, she doesn't have to seek out play time with him if

he only mistreats her.

Meleah

Off topic: Autism presentations to my daughters grade 1

class

On thurdsay my daughter's grade one class will be having a

presentation on autism.(1 of 2) My daughter is not autistic, but

there is a boy in her class who is.

They say their " goal is to increase peer awareness on this topic "

and " that through understanding and acceptance, we can all work

together to ensure that our children learn to work cooperatively with

each other while respecting our differences. "

This boy is pretty nasty...last year he would blow on my daughter

non-stop, kick her...etc. This year he is pretty much the same...he

likes to through playdough at my daughter(wheat is dangerous for

her)...he spends the day going around the room bugging one kid after

the next. I have talked to my daughter many times about this boy

because she is always telling me he is bad. I have told her before he

can't always stop himself from doing what he does...that he doesn't

hurt people on purpose...that he just needs more time to learn to be

nicer.

My daughter really doesn't get what I mean...she says " mommy he is

just bad "

I know you guys are experts on autism ...!!

Question...are 6 years old's really too young to understand this?

I feel that they are wasting school time with these

presentations...that the children are too young yet..for this.

I've always told my children to play with the kids who are nice to you

and if someone isn't nice don't bother with them until they are nice.

I feel bad for the boy, but I don't expect my daughter to accept him

as her friend if he isn't nice.

Maybe my problem with these presentations is just that I know too much

about the Mom and boy, as my neighbour babysat the boy for 5 years.

The mom has IBS...a ton of food intolerances..She knows the boy has

many food issues....she feed him rice milk as a baby, no wheat etc.

But I guess it is easier for her to just feed him everything, have a

teacher on pager to come to the rescue when he is bad,drug him, and to

give presentations to his class...to tell the other kids to be his

friend. Am I being too hard on her? I would never share this opinion

with her.

I feel bad for the boy who probably just needs allergy testing and/or

maybe the SCD. This boy was normal until age 4...

My son was very much like this boy until he was gluten free. And

doctors were ready and willing to label my son and give him drugs..and

wouldn't ever consider that food was causing it. But I am half dutch

and very stubborn , I refused the drugs and told them they were wrong.

So I guess I better just stay away from the presentations....and be

nice...maybe it's not her fault that she is not strong enough or

stubborn enough to question the doctors . I imagine those doctors can

be pretty darn convincing..some people will never make it to the

" Pecanbread " site. I shouldn't judge her..as I probably really don't

understand what autism is really like.

I just feel that they are accomplishing nothing with these presentations?

What do you think?

Thanks,

Cathy

aug 2006

, -celiac

[Guest guest]

I am a school psychologist and work in self-contained and regular education

classrooms quite often helping teachers address behaviors of autism as well as

other behaviors in the class. It wasn't until my son started exhibiting classic

autistic traits that I began searching and found SCD. I want to scream from the

mountain tops about this diet to some of the parents.

G has only been on the diet for 3 weeks and I have yet to see any real

positive changes other than normal pooh (his went from runny mashed potatoes to

constipation-never consistent). Despite the lack of change yet, this diet makes

sense to me. Some parents are using the GFCF diet, but like someone said, with

that diet you are not " fixing " the problem you are " treating it " .

I am in a great position to promote this diet, however, I have to be very

careful as to what comes out of my mouth in that unless I say it just right the

school district would have to end up paying for the support of the diet. I am

in conferences determining appropriate programming and placement of these kids

and soooo many times I have thought " I wonder what's going in his mouth " . I

think these behaviors could be so different if their diet were closely

monitored. The other vibe I get is these parents are overwhelmed and despite

wanting better behavior, some of these parents don't want to spend the time

necessary to do this kind of diet correctly. I hear lots of parents threatening

with spanking, inappropriate use time out etc... for behaviors these kids have

very limited control over. UUUGH....I know everyone can't be as dedicated as we

are but it makes me SAD to see what I see. If anyone knows of a good way for

someone like me to get more word out about SCD let

me know. I am all for it. I think my stratedgy is going to be talking to them

one parent of autism to another and after our meetings, just suggesting that

they take a look into the benifits this could possibly offer.

Becky

3 year old son , ASD

SCD 3 weeks

pecan post wrote:

Cathy,

We agree with you that SCD can make a difference for a child with

autism! Even an adult with ASD can be tamed with this diet. Pam Ferro

treats adults who live in group

homes. She once told the following story to Elaine:

An adult had come to her clinic for treatment;he had several aides to

accompany him because he was so violent.. After a month with SCD,he

returned with only one aide;he was no longer violent. When it was

time to leave,he gave Pam a hug!

Unfortunately,far too many parents are not aware of the benefit of SCD

for children with autism,ADD,CP and IBD. Yes,we need awareness to

spread the word about SCD. However,we have no funds and not enough

volunteers. Some of us are mothers of young children and have little

time. We are so busy answering the list questions and updating the

website that we do not have the time to let the world know about SCD.

A child whodoes not receive the proper treatment at a young age costs

taxpayers lots of money! A life that could have been happy is spent in

pain and isolation. We need your help!! We need volunteers who can

post SCD info on other lists. It only takes a few minutes. We need

parents who can give their email address when we make a petition or

ask for testimonials. We need your help! We cannot do this alone.

Please help us make a difference!!

Mimi

Can you please send the moderators a private email if you can spend 2

minutes a week posting SCD messages on other Yahoo lists. The posts

are already written so that you do not need to spend any time writing

them. You do not need to be a member of the autism community to

participate. Everyone is welcome!

> On thurdsay my daughter's grade one class will be having a

> presentation on autism.(1 of 2) My daughter is not autistic, but

> there is a boy in her class who is.

> They say their " goal is to increase peer awareness on this topic "

> and " that through understanding and acceptance, we can all work

> together to ensure that our children learn to work cooperatively with

> each other while respecting our differences. "

>

> This boy is pretty nasty...last year he would blow on my daughter

> non-stop, kick her...etc. This year he is pretty much the same...he

> likes to through playdough at my daughter(wheat is dangerous for

> her)...he spends the day going around the room bugging one kid after

> the next. I have talked to my daughter many times about this boy

> because she is always telling me he is bad. I have told her before he

> can't always stop himself from doing what he does...that he doesn't

> hurt people on purpose...that he just needs more time to learn to be

> nicer.

> My daughter really doesn't get what I mean...she says " mommy he is

> just bad "

>

> I know you guys are experts on autism ...!!

> Question...are 6 years old's really too young to understand this?

> I feel that they are wasting school time with these

> presentations...that the children are too young yet..for this.

> I've always told my children to play with the kids who are nice to you

> and if someone isn't nice don't bother with them until they are nice.

> I feel bad for the boy, but I don't expect my daughter to accept him

> as her friend if he isn't nice.

>

> Maybe my problem with these presentations is just that I know too much

> about the Mom and boy, as my neighbour babysat the boy for 5 years.

> The mom has IBS...a ton of food intolerances..She knows the boy has

> many food issues....she feed him rice milk as a baby, no wheat etc.

> But I guess it is easier for her to just feed him everything, have a

> teacher on pager to come to the rescue when he is bad,drug him, and to

> give presentations to his class...to tell the other kids to be his

> friend. Am I being too hard on her? I would never share this opinion

> with her.

>

> I feel bad for the boy who probably just needs allergy testing and/or

> maybe the SCD. This boy was normal until age 4...

> My son was very much like this boy until he was gluten free. And

> doctors were ready and willing to label my son and give him drugs..and

> wouldn't ever consider that food was causing it. But I am half dutch

> and very stubborn , I refused the drugs and told them they were wrong.

>

> So I guess I better just stay away from the presentations....and be

> nice...maybe it's not her fault that she is not strong enough or

> stubborn enough to question the doctors . I imagine those doctors can

> be pretty darn convincing..some people will never make it to the

> " Pecanbread " site. I shouldn't judge her..as I probably really don't

> understand what autism is really like.

>

> I just feel that they are accomplishing nothing with these presentations?

>

> What do you think?

> Thanks,

>

> Cathy

> aug 2006

> , -celiac

>

>

>

>

---------------------------------

Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.

[Guest guest]

I went to the Autism Presentation as Lori, suggested. I am glad I

did. I was the only Parent who went. I was a little disappointed

that no other parents attended...but the note that was send home only

said that " we must all work together to help our children... " and call

me if you have questions or concerns. I am hoping that the next note

home for presentation 2 will say that all are welcome to attend, as I

suggested this to the teacher.

I learned a lot from beening there. It wasn't the presentation that

affected me...it was the boy and his mom....although the mom did not

say even one word I think I really do understand more about autism

,and what is really going on in the classroom.

I will never use the word " nasty " again, with regards to any child

again. Sorry I'm the one who is nasty.

I have often seen this boy at his worst in the hall, just before

lunch...as my kids often come home for lunch. And my daughter comes

home everyday and tells me how bad he is. It is so easy for an

ignorant parent to call him bad too.

I took the time to ask my daughter what the boy does that is so bad...

she said that he was banging on his desk or throwing his pencil case

on the floor many times a day just to bug her...I know now that she

just needs to learn to be more tolerant, and to accept the boy does

not mean to bother her.

The boy is a very loveable and enthusiastic child....(you could see

how happy he was to be part of the class)who is really challenged, and

who could benefit greatly if the other parents were more aware about

autism and gave their children better answers and advice on how to

interacte with such a child.

If more parents would spend some time in this classroom, just maybe

some of their attitudes would change. The presentations are a good

idea, but I think the children would get more out of it if the parents

were part of this too.

Happy Holidays to all,

Cathy

In pecanbread , lori choruby wrote:

>

> Cathy,

>

> Autism is a very mysterious and unique diagnosis. I have never

met two kids/adults with autism that are the same, and I know quite a

few of them. Every child, every family, and every situation is

unique. What one suffers from another does not, and what one responds

to another does not. Even what one responds to now, he/she may not

respond to later. Things change.

> Losing a child to regressive autism is a cruel thing for a parent

to go through. There is a lot of self blame.

> The terms " nasty " , " mean " , and " not nice " imply that there is

purpose and intent of the child to be hurtful to another. This may or

may not be the case. With a disability it usually isn't. The child

may have sensory issues, be over stimulated, or be reinforced by an

outcome of his actions.

> I am not excusing his behaviors, and I would hope that those

involved in his program are addressing each and every one of them.

But where a typically developing child may understand that he/she

cannot do something after being told several times, a child with

autism must be shown several hundred if not several thousand times.

They take longer.

>

> I would suggest writing down your concerns and giving them to the

teacher before the presentation. Perhaps some of them can be

addressed during the presentations. You should attend this with your

daughter and keep an open mind. Be there to answer your daughter's

questions and concerns. She is the one that has to be in the

classroom every day, help her learn to cope with and accept the childs

differences. Looking for progress in the child's behaviors, even

minute ones, may help her to feel less angry with him. Be aware that

even allowing the presentation is very gutsy on the parents part.

>

> I hope this helps you and your daughter. Good luck with the

presentations.

>

> Lori

> 2 kids with autism. One on SCD, one not

>

> P.S. Does the child have a one on one aide during the day to help

him participate in an acceptable manner? If not, I would definately

question why?

>

>

>

> cjb202207 wrote:

> On thurdsay my daughter's grade one class will be having a

> presentation on autism.(1 of 2) My daughter is not autistic, but

> there is a boy in her class who is.

> They say their " goal is to increase peer awareness on this topic "

> and " that through understanding and acceptance, we can all work

> together to ensure that our children learn to work cooperatively with

> each other while respecting our differences. "

>

> This boy is pretty nasty...last year he would blow on my daughter

> non-stop, kick her...etc. This year he is pretty much the same...he

> likes to through playdough at my daughter(wheat is dangerous for

> her)...he spends the day going around the room bugging one kid after

> the next. I have talked to my daughter many times about this boy

> because she is always telling me he is bad. I have told her before he

> can't always stop himself from doing what he does...that he doesn't

> hurt people on purpose...that he just needs more time to learn to be

> nicer.

> My daughter really doesn't get what I mean...she says " mommy he is

> just bad "

>

> I know you guys are experts on autism ...!!

> Question...are 6 years old's really too young to understand this?

> I feel that they are wasting school time with these

> presentations...that the children are too young yet..for this.

> I've always told my children to play with the kids who are nice to you

> and if someone isn't nice don't bother with them until they are nice.

> I feel bad for the boy, but I don't expect my daughter to accept him

> as her friend if he isn't nice.

>

> Maybe my problem with these presentations is just that I know too much

> about the Mom and boy, as my neighbour babysat the boy for 5 years.

> The mom has IBS...a ton of food intolerances..She knows the boy has

> many food issues....she feed him rice milk as a baby, no wheat etc.

> But I guess it is easier for her to just feed him everything, have a

> teacher on pager to come to the rescue when he is bad,drug him, and to

> give presentations to his class...to tell the other kids to be his

> friend. Am I being too hard on her? I would never share this opinion

> with her.

>

> I feel bad for the boy who probably just needs allergy testing and/or

> maybe the SCD. This boy was normal until age 4...

> My son was very much like this boy until he was gluten free. And

> doctors were ready and willing to label my son and give him drugs..and

> wouldn't ever consider that food was causing it. But I am half dutch

> and very stubborn , I refused the drugs and told them they were wrong.

>

> So I guess I better just stay away from the presentations....and be

> nice...maybe it's not her fault that she is not strong enough or

> stubborn enough to question the doctors . I imagine those doctors can

> be pretty darn convincing..some people will never make it to the

> " Pecanbread " site. I shouldn't judge her..as I probably really don't

> understand what autism is really like.

>

> I just feel that they are accomplishing nothing with these

presentations?

>

> What do you think?

> Thanks,

>

> Cathy

> aug 2006

> , -celiac

>

>

>

>

>

>

>

>

[Guest guest]

Cathy -

Kudo's to you for going to the presentation with your daughter! I am positive

this meant a lot to her and made her feel that you are truly interested in her

frustrations. I am sooooo glad it was a positive presentation. Asking the

teacher to invite the parents was brilliant and I hope more will attend next

time. Six year olds have a knack for saying things in their own way, which can

be a little confusing to us non-six-year-olds. Being in the classroom with them

occasionally, helps us to make sense of what they are saying, feeling, and

meaning.

You are not nasty. You are a concerned and involved parent, and there should

be a whole lot more like you out there.

Hugs from us!

Lori

cjb202207 wrote:

I went to the Autism Presentation as Lori, suggested. I am glad I

did. I was the only Parent who went. I was a little disappointed

that no other parents attended...but the note that was send home only

said that " we must all work together to help our children... " and call

me if you have questions or concerns. I am hoping that the next note

home for presentation 2 will say that all are welcome to attend, as I

suggested this to the teacher.

I learned a lot from beening there. It wasn't the presentation that

affected me...it was the boy and his mom....although the mom did not

say even one word I think I really do understand more about autism

,and what is really going on in the classroom.

I will never use the word " nasty " again, with regards to any child

again. Sorry I'm the one who is nasty.

I have often seen this boy at his worst in the hall, just before

lunch...as my kids often come home for lunch. And my daughter comes

home everyday and tells me how bad he is. It is so easy for an

ignorant parent to call him bad too.

I took the time to ask my daughter what the boy does that is so bad...

she said that he was banging on his desk or throwing his pencil case

on the floor many times a day just to bug her...I know now that she

just needs to learn to be more tolerant, and to accept the boy does

not mean to bother her.

The boy is a very loveable and enthusiastic child....(you could see

how happy he was to be part of the class)who is really challenged, and

who could benefit greatly if the other parents were more aware about

autism and gave their children better answers and advice on how to

interacte with such a child.

If more parents would spend some time in this classroom, just maybe

some of their attitudes would change. The presentations are a good

idea, but I think the children would get more out of it if the parents

were part of this too.

Happy Holidays to all,

Cathy

In pecanbread , lori choruby wrote:

>

> Cathy,

>

> Autism is a very mysterious and unique diagnosis. I have never

met two kids/adults with autism that are the same, and I know quite a

few of them. Every child, every family, and every situation is

unique. What one suffers from another does not, and what one responds

to another does not. Even what one responds to now, he/she may not

respond to later. Things change.

> Losing a child to regressive autism is a cruel thing for a parent

to go through. There is a lot of self blame.

> The terms " nasty " , " mean " , and " not nice " imply that there is

purpose and intent of the child to be hurtful to another. This may or

may not be the case. With a disability it usually isn't. The child

may have sensory issues, be over stimulated, or be reinforced by an

outcome of his actions.

> I am not excusing his behaviors, and I would hope that those

involved in his program are addressing each and every one of them.

But where a typically developing child may understand that he/she

cannot do something after being told several times, a child with

autism must be shown several hundred if not several thousand times.

They take longer.

>

> I would suggest writing down your concerns and giving them to the

teacher before the presentation. Perhaps some of them can be

addressed during the presentations. You should attend this with your

daughter and keep an open mind. Be there to answer your daughter's

questions and concerns. She is the one that has to be in the

classroom every day, help her learn to cope with and accept the childs

differences. Looking for progress in the child's behaviors, even

minute ones, may help her to feel less angry with him. Be aware that

even allowing the presentation is very gutsy on the parents part.

>

> I hope this helps you and your daughter. Good luck with the

presentations.

>

> Lori

> 2 kids with autism. One on SCD, one not

>

> P.S. Does the child have a one on one aide during the day to help

him participate in an acceptable manner? If not, I would definately

question why?

>

>

>

> cjb202207 wrote:

> On thurdsay my daughter's grade one class will be having a

> presentation on autism.(1 of 2) My daughter is not autistic, but

> there is a boy in her class who is.

> They say their " goal is to increase peer awareness on this topic "

> and " that through understanding and acceptance, we can all work

> together to ensure that our children learn to work cooperatively with

> each other while respecting our differences. "

>

> This boy is pretty nasty...last year he would blow on my daughter

> non-stop, kick her...etc. This year he is pretty much the same...he

> likes to through playdough at my daughter(wheat is dangerous for

> her)...he spends the day going around the room bugging one kid after

> the next. I have talked to my daughter many times about this boy

> because she is always telling me he is bad. I have told her before he

> can't always stop himself from doing what he does...that he doesn't

> hurt people on purpose...that he just needs more time to learn to be

> nicer.

> My daughter really doesn't get what I mean...she says " mommy he is

> just bad "

>

> I know you guys are experts on autism ...!!

> Question...are 6 years old's really too young to understand this?

> I feel that they are wasting school time with these

> presentations...that the children are too young yet..for this.

> I've always told my children to play with the kids who are nice to you

> and if someone isn't nice don't bother with them until they are nice.

> I feel bad for the boy, but I don't expect my daughter to accept him

> as her friend if he isn't nice.

>

> Maybe my problem with these presentations is just that I know too much

> about the Mom and boy, as my neighbour babysat the boy for 5 years.

> The mom has IBS...a ton of food intolerances..She knows the boy has

> many food issues....she feed him rice milk as a baby, no wheat etc.

> But I guess it is easier for her to just feed him everything, have a

> teacher on pager to come to the rescue when he is bad,drug him, and to

> give presentations to his class...to tell the other kids to be his

> friend. Am I being too hard on her? I would never share this opinion

> with her.

>

> I feel bad for the boy who probably just needs allergy testing and/or

> maybe the SCD. This boy was normal until age 4...

> My son was very much like this boy until he was gluten free. And

> doctors were ready and willing to label my son and give him drugs..and

> wouldn't ever consider that food was causing it. But I am half dutch

> and very stubborn , I refused the drugs and told them they were wrong.

>

> So I guess I better just stay away from the presentations....and be

> nice...maybe it's not her fault that she is not strong enough or

> stubborn enough to question the doctors . I imagine those doctors can

> be pretty darn convincing..some people will never make it to the

> " Pecanbread " site. I shouldn't judge her..as I probably really don't

> understand what autism is really like.

>

> I just feel that they are accomplishing nothing with these

presentations?

>

> What do you think?

> Thanks,

>

> Cathy

> aug 2006

> , -celiac

>

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