RE: New Doctor visit today and I am not impressed!!!!!!!!!--Howdee BeckyB

[Guest guest]

GEE, I am so sorry that doctor turned out to be a dud. Perhaps you could

ask to speak to the other in house or talk to the RN coor at the

clinic.For that matter , even the Social worker..Gosh, your right

though. Parents DO know their kiddo's & what works for them. I hope

that gets worked out.How far away is the nearest other CF Center. Oh, I

know, you need to call Jenn Uphoff. She had problems with one also .They

she refused to see him & used the other one. Call her & ask her about

him. She is great to talk to about all that. She really knows them. In

fact a nice one lives next to her. (now, you cant see each others homes,

but it is next to them. They are pretty far out I think .on a lake. Give

me a Call at work & I will give you the number if it isn't in phone

book/ RON UPHOFF or JenUphoff.on W. Gallagher Ferry Rd.

How are the slip covers coming?? Did you get my mail yet ? Have you

heard from Aunt B yet? Questions, questions, -heehee

LOVE & HUGS, grandmoMBEV

New Doctor visit today and I am not

impressed!!!!!!!!!

Hi Everyone ! Today Rebekah was seen by the cf dr here.I have to say I

am not

impressed at all.He told me they do bronch's and routine IV's .I don't

agree

with that as we all know that using antibotics like that can and does

lead to

resistant bacteria.I heard him in the hall asking what is the protocol

for

b.cepacia(duh) I had just explained that I have worked very hard the

last 3 years

keeping her out of the hospital using oral antibotics.He was not

impressed. I

have a feeling we are speaking a foriegn language to each other.It is

not a

great feeling to know the doctor knows less about her cepacia than I

do(this

did make me feel intelligent but imagine how I feel about his lack of

education)

I guess I get to teach another doctor his business! I don't agree with

doing

a bronch unless it is necessary( treatment isn't working,fever, etc.) I

know

Rebekah has psuedo and cepacia I can't remember anything else.I feel she

is

doing great . I am after all the one person who has taken care of her

since

before she was born I do feel qualified to judge if she is sick or not.I

also feel

qualified to say NO to what I feel is invasive and unnecessary.This

disease

has been in my life thru my kids for over 20 years and it has become MY

speciality and I am concerned enough to pick the brains of the best

doctors,scientists,and researchers for the most up to date

information.Perhaps the other doctor

is more up on things.I think I vented enough .BeckyB.-Mama to 8

-2w/cf---and

Nana to 2. Rebekah will be 7 on March 11th WOW time is flying by.