Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 Hi , I am very familiar with your experience with the diet that you mention. I will refer to it as Diet X. A few years ago, Diet X was the Fad Diet. It was touted as being better than SCD. However, it did not turn out to be that way. Many SCDers who tried it got sick when they tried to eat the foods that were SCD illegal but encouraged by Diet X. One child developed appendicitis and other children developed other types of regressions. After a year I stopped monitoring that list; another fad diet appeared and I spent my extra time monitoring the list for the new fad diet. A few months ago, I checked the Yahoo list for Diet X and there was hardly any posts there. I remember your posts on that list and was concerned about you. I wanted to contact you and encourage you to do SCD but did not have the courage. SCD is different from other diets for autism. The latest science research backs SCD and not the other diets. I hope to soon add this to our website. Mimi > Hi I am new here. I wanted to know what to expect in the initial stages of > this diet for this specific reason... When my 5 YO ASD son was younger, we > went to a very low carb diet (also GF/CF/SF/CF/sugar-free, etc...). The > entire family did the diet, as I presumed it would be easier on everyone. > We ate this way for over a year and saw no gains, me and the kids just all > felt grouchy and on edge all day long and everybody craved food 24/7 > (husband was fine)! I was pregnant during some of the months and I > developed ketones and had to add some complex carbs to control the ketones. > We also all had heartburn all day long. I was quite suprised that we never > stopped feeling this way! By SCD standards, it was not an unhealthy diet > (lots of organic veggies and meat). > > I would like to try SCD to see if there is some magic in the way it is > implemented (the stages) or the goat yogurt, etc. Can anyone give some > advice about getting started so that we do not suffer needlessly & get to > the point where we actually feel good eating this way? > > Also, is anyone out there on this diet who eats like me (eat, eat, eat but > skinny)? That is part of why I don't do so well on low carb. I am so > hungry all of the time. I don't crave sweets at all (I actually detest > sweets), and I don't like a ton of carbs -- just some to make my stomach > stop rumbling. When I eat only protein and vegetables, my stomach actually > growls as if it is empty during and after the meal! Any thoughts? > > - > > > --------------------------------- > Finding fabulous fares is fun. > Let Yahoo! FareChase search your favorite travel sites to find flight and > hotel bargains. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 Hi Mimi, Oh thank you for reminding me about the wost period in my life ever! Let's see, 25 weeks of pregnancy-related vomiting that ends just in time to hear what the dev. pediatrician has to say about my 2.5 YO, after a 6 month wait to get in. He says autism. I spend the rest of my pregnancy doing everything I can think of to prevent #3 child from having autism, only to learn that she instead has a GI/lung defect that gives her a 50/50 chance of survival and a 95% chance of medical complications if she does survive -- what a fun time in our lives to be embarking on a very difficult/bizarre diet! Our original DAN doctor (Usman) was the one who put us on that diet. Strangely enough, she also puts kids on SCD. How she decides who does which is beyond me. Funny thing is nobody was actually on that diet -- they were on whatever hybrid version of the diet they could manage. NO kids would eat the actual diet and most parents couldn't adhere 100%, so everyone was reporting their experience of the diet they were on -- but nobody was doing the same diet! The moderator claims her child recovered on the diet, but she admitted that he only did about 20% of the diet. She took that to mean that the diet was so powerful that even 20% adherence could recover a child. Oh well, I was new to the game back then and we were simply following the doctor's instructions. I whole-heartedly agree that the science is there in SCD, but I still wonder how I personally will do on a high protein diet after my last experience. I was primarily eating meat and veggies, I just wonder why I felt like I was going to faint all day long?! People do Adkins/South Beach and say they feel great after a few weeks of adjustment. I never adjusted to the complete elimination of starches. I am awaiting my book in the mail (supposed to arrive March 4) and I have located a local person on the diet, so I hope to being the intro diet in about a month. I won't make any judgement until we try the actual SCD and see what happens -- maybe I will do just great. Right now we are just reducing carbs getting ready for the big plunge! - pecan post wrote: Hi , I am very familiar with your experience with the diet that you mention. I will refer to it as Diet X. A few years ago, Diet X was the Fad Diet. It was touted as being better than SCD. However, it did not turn out to be that way. Many SCDers who tried it got sick when they tried to eat the foods that were SCD illegal but encouraged by Diet X. One child developed appendicitis and other children developed other types of regressions. After a year I stopped monitoring that list; another fad diet appeared and I spent my extra time monitoring the list for the new fad diet. A few months ago, I checked the Yahoo list for Diet X and there was hardly any posts there. I remember your posts on that list and was concerned about you. I wanted to contact you and encourage you to do SCD but did not have the courage. <<original posts clipped for length by moderator>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 , I know you'll soon learn this, when you read the book... but SCD is not a low-carb diet at all. It is also not a " high protein " diet..... unless someone limits themselves to mainly eating the protein foods, which is not recommended. We follow a balance of protein and carbs for sure.... and there are plenty of carbs available in the allowed foods... just not from grains. Patti Re: hunger & SC Hi Mimi, Oh thank you for reminding me about the wost period in my life ever! Let's see, 25 weeks of pregnancy-related vomiting that ends just in time to hear what the dev. pediatrician has to say about my 2.5 YO, after a 6 month wait to get in. He says autism. I spend the rest of my pregnancy doing everything I can think of to prevent #3 child from having autism, only to learn that she instead has a GI/lung defect that gives her a 50/50 chance of survival and a 95% chance of medical complications if she does survive -- what a fun time in our lives to be embarking on a very difficult/bizarre diet! Our original DAN doctor (Usman) was the one who put us on that diet. Strangely enough, she also puts kids on SCD. How she decides who does which is beyond me. Funny thing is nobody was actually on that diet -- they were on whatever hybrid version of the diet they could manage. NO kids would eat the actual diet and most parents couldn't adhere 100%, so everyone was reporting their experience of the diet they were on -- but nobody was doing the same diet! The moderator claims her child recovered on the diet, but she admitted that he only did about 20% of the diet. She took that to mean that the diet was so powerful that even 20% adherence could recover a child. Oh well, I was new to the game back then and we were simply following the doctor's instructions. I whole-heartedly agree that the science is there in SCD, but I still wonder how I personally will do on a high protein diet after my last experience. I was primarily eating meat and veggies, I just wonder why I felt like I was going to faint all day long?! People do Adkins/South Beach and say they feel great after a few weeks of adjustment. I never adjusted to the complete elimination of starches. I am awaiting my book in the mail (supposed to arrive March 4) and I have located a local person on the diet, so I hope to being the intro diet in about a month. I won't make any judgement until we try the actual SCD and see what happens -- maybe I will do just great. Right now we are just reducing carbs getting ready for the big plunge! - pecan post wrote: Hi , I am very familiar with your experience with the diet that you mention. I will refer to it as Diet X. A few years ago, Diet X was the Fad Diet. It was touted as being better than SCD. However, it did not turn out to be that way. Many SCDers who tried it got sick when they tried to eat the foods that were SCD illegal but encouraged by Diet X. One child developed appendicitis and other children developed other types of regressions. After a year I stopped monitoring that list; another fad diet appeared and I spent my extra time monitoring the list for the new fad diet. A few months ago, I checked the Yahoo list for Diet X and there was hardly any posts there. I remember your posts on that list and was concerned about you. I wanted to contact you and encourage you to do SCD but did not have the courage. <<original posts clipped for length by moderator>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2007 Report Share Posted February 25, 2007 > > I whole-heartedly agree that the science is there in SCD, but I still wonder how I personally will do on a high protein diet after my last experience. , it sounds like you have had one awful time of it and no wonder are filled with anxiety and concerns. I can put one of them to rest hopefully. SCD is not a high protein or low carb diet: Are There Carbohydrates On This Diet? SCD is about the type of carbohydrates that will heal and not hurt. It is not about the quantity of carbohydrates and should not be confused with " low carb diets " or even the Paleo or " Caveman " diets to which it is sometimes compared. Elaine Gottschall was emphatic in stressing that SCD is a balanced and wholesome diet. Thinking of SCD as a low carb diet is one of the most common mistakes made by those who are not sufficiently informed. Eliminating carbohydrates can lead to a condition called " ketosis " which is why it is essential to include adequate carbohydrates in the daily menu. Carbohydrates contribute energy, essential nutrients, and fiber. People who have validated concerns about yeast may moderate the use of fruit and honey until things improve but should not have to eliminate them. Rest assured! You may include plenty of carbohydrates on SCD. Former choices of starchy foods like rice and potato are replaced with filling items like squash, bananas, peas, apples (and applesauce), avocados, almond flour muffins and others. These are carbohydrates that are easier to digest and more nutritious. Their nutrients are absorbed directly into the bloodstream without taxing a compromised digestive system. That is why the word " SPECIFIC " was chosen to name SCD. Carol F. SCD 7 years, celiac Quote Link to comment Share on other sites More sharing options...
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