Aspergillus culture

[Guest guest]

My son's culture came back showing he has Aspergillus. I know this topic has

been discussed before but I have a few questions I'd appreciate so help with.

He is four years old and inhaling tea tree oil mist isn't his thing right now.

I picked up a little crock pot to use in his room at night and this is where my

questions come in.

1. How many drops of tea tree oil have others been using when doing the

" crock pot " method?

2. Have you been letting the crock pot run all night or just for a few

hours?

3. Do you put the crock pot near the bed or assume that as long as the room

smells like tea tree oil, he will inhale sufficient amounts to do the job?

4. How many times a week do you do this?

My other question pertains to magnesium supplements. I found a compounding

pharmacy in our area that can make a liquid magnesium supplement for us (since

Matt doesn't swallow pills yet and doesn't eat " gummy bear " textures - we're

still dealing with texture issues as a result of being intubated very early in

life). The pharmacy needs a prescription from the CF Clinic, though, and our

nutritionist is willing to work with us on doing this. The magnesium concerns

are not something our clinic has not worked with a lot but she is willing to do

some research. I'm just curious to see how much others are supplementing to

their young ones. I'm not exactly comfortable assuming that the RDA quantity is

enough considering he does not eat a balance diet at all. If you all wouldn't

mind sharing with me what you are doing it will give me a little guidance when I

talk to the nutritionist again.

Thanks in advance for your input!

Sincerely,

R, mom to Matt, 4 with CF and really into trains & planes

[Guest guest]

,

Please let your nutritionist or doctor which magnesium type you want them to

use.

Compounding pharmacies must follow doctor's orders, and if doctors doesn't know

the differences in magnesium

types, they might ask pharmacists for the most common type -- and if the

pharmacist says, " magnesium oxide, "

then the doctor might go with that instead of doing his/her homework.

Remember, you don't want magnesium salts, as this could result in loose stools,

making Mg deficiency worse.

After all, ' Milk of Magnesia -- the old time panacea for constipation

-- is simply 400 mg. magnesium oxide

per teaspoon.

Over a year ago, I checked with a couple compounding pharmacies (one was Bev's

CF pharmacy). Each

compounding pharmacy told me they'd have to make the 'script based on doctor's

recommendation. When I

asked about magnesium creams and how you could determine a " mg " dose, they told

me that they'd mix the

magnesium with a carrier cream, then likely put it into premeasured syringes.

Then you'd just squirt out so

many cc's to get the dose and rub the cream into the skin.

For those who have aversions to swallowing pills, you can try the following:

1) crush Solgar magnesium glycinate into a powder to add to fruit smoothies,

fruit sauces, warm cereals or into

a feeding tube. Dawn (mom of Patti) crushes the Solgar tablets and mixes it with

grape juice and confectioner's

sugar to form a paste; she says Patti doesn't have a problem eating this to get

her magnesium.

2) you can make your own magnesium creams and lotions (I've got a recipe around

here somewhere)

3) you can soak in a warm tub of epsom salts for about 20 minutes (add a few

drops tea tree oil for added

benefit to lungs and sinuses in the steamy bath -- just don't let little ones

splash or drink the bath water.).

Magnesium *is* absorbed through the skin and I've seen a couple references

showing that after soaking for

20 minutes in epsom salts (magnesium sulphate), magnesium levels were measurably

elevated.

As for the crock pot and TTO, I'd put it as near the head of the bed as possible

-- but make sure it's out of reach

of curious little hands and that pets don't accidently mistake it for drinking

water.

You could also put a drop or two on a cotton ball and wave it under the nose for

as long as they'll sit still for it.

Good luck with the aspergillus culture. I was heartbroken when cultured

it. I'm glad we got rid of it so

quickly!

Kim

> My son's culture came back showing he has Aspergillus. I know this topic has

been discussed before but I have a few questions I'd

appreciate so help with. He is four years old and inhaling tea tree oil mist

isn't his thing right now. I picked up a little crock pot to use

in his room at night and this is where my questions come in.

> 1. How many drops of tea tree oil have others been using when doing the

" crock pot " method?

> 2. Have you been letting the crock pot run all night or just for a few

hours?

> 3. Do you put the crock pot near the bed or assume that as long as the

room smells like tea tree oil, he will inhale sufficient

amounts to do the job?

> 4. How many times a week do you do this?

>

> My other question pertains to magnesium supplements. I found a compounding

pharmacy in our area that can make a liquid

magnesium supplement for us (since Matt doesn't swallow pills yet and doesn't

eat " gummy bear " textures - we're still dealing with

texture issues as a result of being intubated very early in life). The pharmacy

needs a prescription from the CF Clinic, though, and our

nutritionist is willing to work with us on doing this. The magnesium concerns

are not something our clinic has not worked with a lot

but she is willing to do some research. I'm just curious to see how much others

are supplementing to their young ones. I'm not

exactly comfortable assuming that the RDA quantity is enough considering he does

not eat a balance diet at all. If you all wouldn't

mind sharing with me what you are doing it will give me a little guidance when I

talk to the nutritionist again.

>

> Thanks in advance for your input!

> Sincerely,

> R, mom to Matt, 4 with CF and really into trains & planes

>

>

[Guest guest]

Omg... I just now went back to read my response to . Heck, I

do know proper grammar but no one would know it by my post!

And it took forever for me to write my response -- I kept backspacing

and rewriting and backspacing some more because I wanted to be sure I

didn't mess up. I wrote it while heavily influnced by massive doses

of ibuprofen! Yesterday on the way home from work, I was striding

along and rammed my left foot into the cement in the uneven sidewalk,

crashing chin down right to the cement. The gaping hole under my chin

wouldn't stop bleeding so I ended up in the ER where they superglued

my chin wound and after an x-ray, told me I broke a bone in my foot.

But that's *not* stopping me from flying to Phoenix tomorrow morning

for six days of pampering in the sun!

Sorry for the awkward post, . But I duz no how 2 speak and

spel.

Kim