Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 First of all I want to thank everyone for the precious teddy bear that surprised me in the mail. I feel so guilty because I know that they are lots of you who are worse off than me and not just letting anyone know. But then I just feel so special and love you all for the thoughts and prayers and friendship. I promise to stay out of the hospitals......... I have named her POLLY for POLYCHODRITIS and she will stay with me from now on and get me through the hard times. I havent seen Kim yet but she is home and I just finished talking to her. She thinks I am nuts for worring about her and involving ever one else. Oh well thats probably why I have this stupid disease to begin with. STRESS is my middle name. Okay My rhuemmy visit went okay. He said that the cytoxan isnt doing its job since the flares wont go away. So he wants me to try ENBREL Has anyone tried this besides Squeek? I don't know if my insurance will pay for it or even if I can get it. They are going to let me know then I have to go to a class to learn about it and how to give the shots. He said that I have polychondritis and probably will always just be the chronic kind but we need to get it to respond to something. You would know my luck. The GYN is waiting for blood test to see how my hormone level is Then he dont know what kind or if I can even take estrogen with this disease especially if I have heart problems also. SO we are back to more test. I have to have a bone density next week also. So I am still waiting to see if it is the heart, hormones, or RP causing all the problems or a mixture of all 3. I am going to try to read some posts and catch up. love and hugs to all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 Hi ! I am going to be going on Enbrel, also! I've heard good things about it. I hope it works for us! M > Okay My rhuemmy visit went okay. He said that the cytoxan isnt doing > its job since the flares wont go away. So he wants me to try ENBREL > Has anyone tried this besides Squeek? > I don't know if my insurance will pay for it or even if I can get it. > They are going to let me know then I have to go to a class to learn > about it and how to give the shots. He said that I have > polychondritis and probably will always just be the chronic kind but > we need to get it to respond to something. You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 , it's good to hear from you again. How are you doing? I'm coming to your neck or the woods today. I'll be in Mt View today and have an appt at Stanford tomrrow. Maybe someday we can arrange to meet. Hope you are doing okay and are having a nice weekend. hugs Quote Link to comment Share on other sites More sharing options...
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