Hi group!!! i would like to introduce myself

[Guest guest]

Hello everyone. My name is Susie and a wonderful woman gave me the

link for this group which she says she thinks will be of help to me.

I was telling her about my symptoms and how the medical world is not

trying their best to help me and i was wondering if any of you could

give me your opinion of what you think. Over the past few years i

have had these horrible pain attacks which start in my stomach. They

only used to last a short time until last year around thanksgiving.

I started having these double over stabbing pain attacks in my

stomach and i couldnt eat anything, not even babyfood. They put me

in the hospital and after repeating an ultrasound for the third time

they told me i had sludge in my gallbladder and i had it removed 3

days later. Right afterward, i started having these horrible pain

attacks 2 or 3 times a week. they would blow me away for the rest of

the day. They were way worse when i was taking morphine too. When i

stopped taking the morphine i have only been having them once a week

but the pain is so horrible. it doubles me over and i cant move. i

have been to the er several times for the pain and they keep telling

me i have acid reflux yet the medications that they have given me for

acid reflux dont seem to help at all. Also the attacks are starting

to get worse. Can someone give me some insight to the horrible

pain????

Thank you for listening, i know this was really long and im sorry for

that. im just trying to find some answers.

Thank you again,

Susie - south jersey

[Guest guest]

Susie;

I live in Mullica Hill NJ, where do you live. If you would like to email me

directly let me know. I am 17 years old and had a tp/ict in May. I would be

glad to speak to you.

[Guest guest]

Thank you Heidi. I have had every test over two times. i have had cat

scans, xrays, colonoscopy, endoscopy, ultra sounds many time, hyda scans three

times, blood work everytime i go to the er. I was told i had acid reflux and

thats it. the see nothing else wrong. they gave me valium after my

gallbladder surgery because they said it was just my nerves. There is one er

doctor

that is very nice and does everything he can to make sure im comfortable but

the other one whom i always seem to get is horrible. He tells me to go home,

that this is the same pain i always have and quit complaining. im just so

frustrated. My poor father had all the same things that i have and suffered

horribly his whole life. i dont want to be like that.

thank you again,

susie - south jersey

[Guest guest]

Welcome Susie,

Doubling over stabbing pain sounds like pancreatitis pain in a nutshell! This

pain can mimic other complications, so I would suggest a thorough check up

with a gastroenterologist first. I wouldn't recommend taking your complaints to

a PCP, even if he's your regular family doctor. It takes a specialist to

diagnose

this disease, and even some of them have trouble doing so.

Other than the ultrasounds, what other tests or procedures have been done

on you to determine what's wrong?

You might go to:

www.top5plus5.com/

and read up there on what all the symptoms are, what tests can be done to

determine whether it's chronic pancreatitis, and what kind of treatments are

available. If you can't find the answers there, you can always ask your

questions here, and most of us can share our own experiences with you and

give you suggestions about what to do next, where to go, and what to ask for

and expect.

Don't let anyone tell you that this is all in your head, or that you've got IBS,

unless you've had every possible test come back negative two or more times.

Even then, don't believe them if they say " it's all in your head " ! It's your

body

and no one knows it better than you do, but sometimes you really have to fight

the system to get anyone to listen.

Except for here............there's always someone listening, and ready to jump

in

with answers or suggestions whenever we feel it can help. Let us know how

we can help you.

With love, hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina Rep.

SE Regional Rep., PAI

Note: All comment or advice is based on personal experience or opinion, and

should not be substituted for consultation with a medical professional.