Re: Diagnosis question response

[Guest guest]

Thanks and Sue for your advice.

I think as time goes on I will get past the sadness of that day.

Last year at this time I was a upset all the time reliving the

traumatic events of Zach's premature birth and his NICU stay.

It was hard to really enjoy his birthday because of it. This year

is so much better. I am not feeling blue at all.

Once I get passed the first anniversary I will probably feel

better.

I can only imagine how much worse things could be if he weren't

diagnosed properly. Last year we thought Zach had the worst case of

colic on record. He was almost one, not sitting up, taking a bottle

every 3 hours, and crying off and on 24/7. After he was diagnosed

he changed into a happy little boy and still is (onery, but happy).

Sara

> Sara,

> That is a hard question. How did I handle the diagnosis with it

being so close to Christmas? Well, I am not sure. I think since

the diagnosis, holidays have come to be not quite as happy feeling.

was in the hospital this past Thanksgiving and it didn't

even bother me that it was a holiday. I don't know if this has

anything to do with it, but holidays just don't seem as important

anymore. I think I try to focus on making the most of everyday, not

just holidays. I have never really thought about it. I am thankful

was diagnosed so early, so they could start treatments

early, before major damage was done. This is why I don't think it

bothers me. Instead of thinking of the " dreary day when we were

diagnosed " I think it may have been a " live saving day when we were

diagnosed. " This is just my opinion, and I realize other people may

look at it differently, but I have to always look for the positive

or I will be very depressed.

> Thanks for making me think about this. It actually makes me feel

kind of good.

> L & H

> Sue Pettit of Tupelo, Mississippi

> mom to - 17 wocf, driving and being the most responsible

17 yo I have ever known, pitching her first season as a fast-pitch

pitcher for her softball team at school; - 13 wocf, playing

school baseball, trumpet in the band, and trying very hard to work

through the horrible hormone effects 13 yo have; - 12 yo

wcf and cfrd, diagnosed with cf at 8 days old at LeBonheur

Children's Medical Center in Memphis, TN on Christmas Eve, 1991,

currently playing basketball, softball, the flute in the school

band, and enjoying life to the fullest, now seeing Drs. Lyrene,

Makris, and Hagood at UAB Children's Hospital in Birmingham,

Alabama - all of whom are excellent doctors

>