Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Hi everyone, Since this incident involved me... and many of you were sent private e-mails by the other individual, I feel I need to briefly address it here. I did try to handle it privately, but since it's now been brought up on the list, I want to clarify. This individual just very recently joined our list, and that is why her posts were being moderated. Every new member is automatically moderated for their first few posts. That is how we are able to protect you from the dozens and dozens of spammers who target our list by joining and then immediately sending messages advertising all manner of things that, trust me, you don't WANT to see the ads for. There is no other reason that she was being moderated. She was not being singled out. The list is automatically set up to do that, by the list owner. This person has posted before.... one very long message that pertained to the Sonrise treatment method.... that had nothing at all to do with SCD and was basically a promotional message, with links to the Sonrise treatment/training center. That message was deleted... was never sent through to the list. The reason has nothing to do with judgement for or against that method.... just that this is an SCD list and we try to stick to the topic. We also don't allow anything that is promotional in nature, except for a very few resources that are directly related to SCD foods and resources. Most spammers are immediately removed from list membership. She was not. She posted again yesterday, with similar material.... but including a message that said the treatment center was now supporting SCD. It included the same link to the treatment center's website at the bottom. Basically, the message really did not directly relate to SCD.... as it was more intended (in my opinion) to be a positive plug for Sonrise. I wrote to her, while holding her message in our pending file..... and asked her to please modify it so that it did not look so much like a promotional message. We have strict rules about no advertising... in order to protect the 3000 members here. It's important that we stick to those rules so that any number of others who happen to be list members don't get the idea that we allow that now..... and start sending other advertisement of promotional messages across the list. I was willing to allow her to communicate what she wanted to say about the Kaufman's now being supportive of SCD.... but simply had asked her to clip off the links and excess information that made it look more promotional in nature, and then to resend the message. I believe I told her that she could include her own e-mail address so that people could contact her privately if they wanted more information. I did ask her if she was working for them somehow. I didn't mean it to sound accusatory... it was a legitimate question. I really thought maybe she was. She did not respond to my message. At that point, she just went ahead and started using our membership list to e-mail a lot of you privately, describing the situation from her point of view..... which was actually quite different than how I perceived the whole thing. Now, whether I agree with Sonrise or not is not the point.... in fact, I happen to think it's a terrific intervention approach, for those who can afford it. I've looked into it myself and have read several of their books and seen the videos. I have nothing against them except for not personally having the $$$ that would be required to take their training. The point is..... NO one is allowed to use our list for advertising or promoting a product or service....or even giving a blatant plug to someone else who provides the product or service, without asking us first. And then, if it doesn't relate to SCD, we can't allow it. And secondly.... if anyone abuses their membership here by using our member list to privately e-mail people for purposes of promoting a product (whether they have a financial interest or recieve some sort of benefit from that activity or not)... that activity will NOT be tolerated. It's unethical, to say the least. Up until now, we have kept the membership list open.... so that member e-mails are listed openly, and members CAN e-mail each other off list, to talk about common concerns they share, or connect with others who live near them, etc. It will be a sad day when we have to change that and make that list inaccessible to the general membership. Our list is not a general autism list. We can't broaden our focus to include all other interventions. None of us would have time to read the billions of e-mails that would generate. Even if we restrict the focus to SCD, there is still SO much e-mail that many parents are overwhelmed and either leave the list, or set themselves to " web only " because they just can't keep up. I think it's too bad.... because they might miss something that would really be helpful. This diet is VERY challenging to implement for many parents. We know that and we choose to keep the focus very clearly on the diet to make it more likely for MORE families to be successful on it. There are certainly many fine e-mail support groups out there that discuss various approaches to autism recovery.... and those are the appropriate places to discuss ABA, Sonrise, Floortime, chelation, HBOT, etc, etc, etc, etc. I really hope you all understand. I'm sad that someone chose to bash me for simply doing my job as a list moderator. Maybe it's hard for her not to feel like she was being censored or excluded.... but she may have misunderstood the focus of our list, or misunderstood my intentions in asking her to modify her message and to resend it. thanks everyone... Patti, one of several list moderators Re: Criticial Email I agree with Patti and Carol concerning this email. This site is about SCD and how to do this diet. If parents want to find other treatments or diets they can go to a more general group. I am not stupid and can do my own research. I post and read entries from this Pecanbread group to learn about SCD. If it wasn't that way I would have to go through many more posts to find the subject I was looking for. I know I will only find posts related to SCD. I am a simple person and like simple approaches. I feel this person invaded my privacy and space by bringing her complaints and " problems " into my home. I am blocking her address. Hinojosa 3yr old boy, ASD, Began SCD Feb 14, 2007 Recent Activity a.. 19New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2007 Report Share Posted February 28, 2007 Patti, Thanks for your hard work! I appreciate all that I have been able to read as my daughter and I have struggled through our first days on this diet! Keep up the good work! Re: Criticial Email- OT Hi everyone, Since this incident involved me... and many of you were sent private e-mails by the other individual, I feel I need to briefly address it here. I did try to handle it privately, but since it's now been brought up on the list, I want to clarify. This individual just very recently joined our list, and that is why her posts were being moderated. Every new member is automatically moderated for their first few posts. That is how we are able to protect you from the dozens and dozens of spammers who target our list by joining and then immediately sending messages advertising all manner of things that, trust me, you don't WANT to see the ads for. There is no other reason that she was being moderated. She was not being singled out. The list is automatically set up to do that, by the list owner. This person has posted before.... one very long message that pertained to the Sonrise treatment method.... that had nothing at all to do with SCD and was basically a promotional message, with links to the Sonrise treatment/training center. That message was deleted... was never sent through to the list. The reason has nothing to do with judgement for or against that method.... just that this is an SCD list and we try to stick to the topic. We also don't allow anything that is promotional in nature, except for a very few resources that are directly related to SCD foods and resources. <<original clipped for length by moderator, to save digest space>> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.