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Got STARband two days ago for brachy, feeling bad - bit of a rant

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I can't stop feeling like I hate this. It's only been a couple days, so we are

still in the breaking-in period, and I find myself counting down the minutes for

my son's hour break to take his helmet off. I am dreading day 5 when he goes to

23 hours a day. I know it's not that bad, and we will get used to it, and blah

blah blah.

I think what's hard for me is not having a definite end date to look forward to.

I don't like the " 4-6 month range " we were given. I want it to take 4 months, no

more. I'm also mad at myself that we didn't do this sooner. I was in a bit of

denial after my son's ped noticed his brachy at his 4 month appt and referred us

to a neurosurgeon, but I kept putting it off, and now he is 6.5 months old and

will have to wear it longer than if I would have just listened to the ped.

I keep hearing how much harder brachy is to treat, that it takes longer, etc.

etc. and I can't help feeling discouraged. I just don't want my kid in a helmet

that long, I'm sorry. Maybe I'm selfish, but I can't imagine having to wear a

helmet 23 hours a day, so what makes us think it doesn't bother our babies? They

just can't do anything about it.

How long were your kids in their helmet? Just wondering. I need a bit of

positive encouragement.:)

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