Clinic visit just venting

[Guest guest]

Today I took my nine month old son for a routine visit to the CF

clinic. We

met with the Pulmo Doctor and the RT on the same floor. I like the

both of

them very much and it was a productive visit. Now here is where the

fun

begins. The hospital only has one dietitian that see's CF patients

and she

does not see them in the CF clinic the days my pulmo dr is there. How

frustrating. Anyway we had to leave the clinic and go to a different

part

of the hospital. In fact we went to where the CF clinic was until the

breakout of Burkholderia cepacia in October. Yes my hair was standing

up on

end the whole time I was there. Then we have to have blood drawn so

it's to

another part of the hosptial we go. I get there and there are not one

or

two but three children all sneezing, coughing and having running

noses. At

this point I have the blanket over my son out of fear of what is going

around. I did not wait there i went down a hall and told them where

Iwould

be. Now is it me or what. You would think that a large hospital like

that

would have a one stop visit for kids with CF. Why not have several

dietitians that work the clinics so the familys would not have to

leave

that department. Would it be to hard to have a floating Plebotomist

(s?)

that could come down to the clinic to do blood draws? I have only been

dealing with CF for nine months now but I beleive my son is in more

danger

of catching something there then anywhere else. This is the year 2004

one

does not need to be Einstein to figure this one out!

Do you think Im asking to much. Lets face it as an inpatient they

dont

make you go down to the lab....

Ok had to get that off my chest. Oh yeah Ethan is doing well I have my

fingers crossed that his culture does not grow anything!

Thanks for being all ears.

mom of 4 boys one with CF.

..