Re: Need Plagio Advice HAWAII

[Guest guest]

What great parents you are to do all the research to find out a solution for your baby!!!

I've been here awhile and I think I remember a baby that was seen at childrens hospital in Hawaii... but I may be wrong.

Do a HAWAII search thru old messages and maybe your could email or private message them to see what they did to get help.

There is a Cranial Tech in Pasadena - near LA... also in San Diego.

Hope you find help!!! ANd keep us updated so other parents in the future can follow your footsteps.

Jen

Mom to Luli - 4 yrs old

Torticollis, Plagio, Syringomyelia

Need Plagio Advice

New to this group and in much need of help/advice.

My 5 month old son (born 11/8/09), has plagiocephaly/torticollis. Wife and I learned of his ailment while performing Internet research on his unusual head shape at 2 1/2 months old. At which time, We immediately started stretching exercises and repositioning. Pediatrician with the urging from us diagnosed the plagiocephaly and torticollis at his 3 month check up. The doctor was not concern about plagiocephaly and instructed us to continue with repositioning. Physical therapy was prescribed for torticollis. Thanks to PT (stretching, strengthening exercises as prescribed by therapist), the torticollis is basically resolved. Son has full neck motion and has met all physical development milestones. However, I see only a little improvement with plagiocephaly. Ear, forehead, and check are still pushed forward on his right side.

I'm currently stuck in a dilemma. I see his plagiocephaly as possible being moderate and in need of band/helmet intervention, but do not know for sure as they are no cranial clinics or specialists locally (in Hawaii) to assist with a diagnosis. Additionally, the pediatric community in Hawaii is highly against helmet treatment weather the plagiocephaly is mild, moderate or severe, so obtain a prescription locally appears impossible. The nearest area where treatment/prescription are available is Southern California. Before wife and I start the expensive band therapy journey (insurance will not cover any of the costs), I wish for member to take a look at son's photos (list in photos folder ) and let me know what you believe his condition to be and would they pursue band treatment. Please add any other advice or questions you have.

Thanks and Aloha,