Laminated Pancreatitis Card

[Guest guest]

Laurie,

Thanks for your input. This is what I have now:

Front of card: (patient name, history, doctor, etc.)

Back if card:

1. Typical presentation of emergency needs and maybe even a web site.

2. Statement that research has confirmed that CP may not show elevated

enzyme levels then list a reference.

3. A short, concise assessment and care strategy outlined too, with

references if this is available or something that says it is endorsed by the

PAI. For

example

" In addition to the ABC's, the patient should be assessed for pain, nausea,

dehydration, etc..............and appropriate care should include pain

control, nausea control, etc. "

4. Our own personal flow chart would be ideal!

Let's brainstorm this some more.

What size? Wallet? Fold over type so it holds more?

More specific triaged and treatment protocol summary, also?

They can be individualized when they are prepared. So they can have the

patient's name, doctor, allergies, expected lab results, i.e., not elevated,

etc.

Keeping you in thought & prayer,

Karyn E. , RN,

Exec. Director PAI / 1-

KarynWms@...

http://www.pancassociation.org

[Guest guest]

I also suggest that the card states that you can be having an acute

attack even if you amylase and lipase levels are normal or below normal

as I know that, like me, many of us have burned out pancreases that are

no longer able to make enough enzymes to reach even normal enzyme

levels. I know that this is a major problem for some of us. Just my .02

cents worth.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Good idea!!!

Angie in SC

" The happiest of people don't necessarily have the

best of everything; they just make the best of everything that comes along

their way. "

[Guest guest]

Janet,

this sounds alot like the paper packet that I carry with me at all

times. Mine is ten pages long (one side only) however. It has my next of

kind, my medical insurance information on the first page. The next two

pages are all my prescriptions (yes I take a lot). This includes, the

medication's name, dosage amount, how often I take it, who prescribed

it, what it is prescribed for and if it's formulary or not. Page 4 is my

medical allergies(ie. allergy to medication) and my non-medical

allergies (I'm allergic to baby powder, etc). Page 5 is all my current

medical diagnoses (ie. CP, diabetes, etc.), and what the current

treatment for it is. This is also where I include a footnote about the

fact that my amylase and lipase levels don't elevate anymore and a

reference website confirming that this happens to many people with CP

(the Hopkin's GI website: http://hopkins-gi.org ) and how to get

to the exact location in this website. Page 6 is my list of my

surgeries, the hospital it was done at and the type of surgery and why

it was done.

Page 7 is a list of all my hospitalizations for Acute Pancreatitis

(which led to my having Chronic Pancreatitis). I've included the dates

of the hospitalization, the hospital I was at and the doctor who treated

me. Page 8 is a list of all my current physicians (I have many because I

have a lot of problems), the doctor's name, specialty and their phone

number. I don't list their address because I'm a Kaiser patient so all

my physicians are at the same address, which is located on page one with

my insurance information. Page 9 & 10 is a list of all my previous

physicians, including, specialty, name, dates of care and affiliated

hospital/Location. After this list on Page 10, I have a list of all

hospitals I've been admitted to and their address and phone number.

I give a copy of this packet to each doctor I visit and an updated list

of medications every time I visit them. I also bring a new copy to the

ER that they can keep since I have all this information on computer and

a copy in my purse at all times. I've found that all the doctors and ER

personnel have been very happy to get this since I have such a long list

of medications and medical problems. If anyone wants a blank copy of

this (ie, has the format, but not my personal information), let me know

and I'll send you a copy of the file to your personal email address.

It's a MSWord 2000 file, so you'll need that program to access the

information.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.