Re:Wonderful Parents

[Guest guest]

Hi ,

Glad to hear Cody is doing well. I have started thinking about

taking Zach to the same play group his cousin is in, but I hestitate

because of the same reasons you mention. What is the right thing to

do? Wipe his hands and toys all the time in front of the other

kids? Insist the other kids do it too? It seems so harsh. I guess

I am learning that even if I were to do those things, he still might

get sick anyway. I think I am going to try the playgroup with the

focus being on play. I will be cringing inside every time another

child sneezes or coughs, but if Zach has fun playing maybe that is

all that really matters.

About the smoking -- that is really tough.

Everyone has their own opinion about this. I guess if the smoking

even outside is making you nervous then that may be the most

important thing. You don't want to make your houseguests

uncomfortable, but it is still your house and your rules. Do what

YOU are comfortable with, so that you do not need to be nervous the

whole time they are visiting.

Sara - mommy of Zach 23 months

> Hi,

>

> I would just like to say that everyone that is in this chat room

are wonderful parents. I don't post that much but I do like to read

them, my time is limited on the computer. Everyone has such

wonderful advise and such kind words. It's so nice to know that we

are not alone in this world. Alot of the advise I have received on

this site has alot to do with how well my son is doing and I wanted

to say thank you. Also I am in charge of my local support group and

everyone is very surprised at some of the information I have and how

young my son is. So again thank you. I need some advise on a few

things and would love some feedback. First, my son COdy is now 22

months old, he weights close to 27lbs and in the 40%-50%, he had

only had one cold and really has had no major issues, curently is on

live meds. Slight elevated liver enzymes. Chest physical therapy

once a day, he did culture Pseudemonus at 10 months of age and has

not cultured since. I made a decition to enrole him to a arts &

craft class and a play class once a week, about 10 children in a

class, I dont ask anything to be cleaned but I try to make sure he

does not put anything or his hands in his mouth and when he is done,

I thouroughly wash and sanitize his hands afterward. There has been

a couple of occations where I could not catch him in time. Is this

a mistake? Should I be very concerned? Next question is at the end

of the month I have three family members staying with me at the end

of this month, they all smoke and know that they have to go

outside, should I have a rule about their clothes smelling. I am

just so nervous about all these people staying at my house. I also

gave the rules about handwashing, is there anything else I should be

doing.

>

> Thank you for your support,

>

> w/Cody 22 months w/cf

[Guest guest]

Re: Weight gain...

Hi,

I totally agree with . The CF-kids often crave for salt and

other spices.

Fiona had big problems with chunky food, we had to blend everything

and she lived mainly on baby formula until the age of five. But as

long as she ate we didn't care whether it was " appropriate to her

age " or not.

Another problem was, that Fiona was not interested in eating, she

never felt hungry. So we had to spoonfeed her and she always had toys

or books with her during the meal.

Sounds weird, but in retroperspective we are quite happy that we did

it that way. Today, at almost 7 Fiona is a normal eater with no oral

aversions and good weight (25 to 50% height to weight). It's only

that her behavior at the dining table is really bad (can't sit still

for five minutes), but we are working on it.

Peace

Torsten, dad of Fiona 6wcf and Sebastian 8mo wocf

> Have you tried things that you do not think that he will like? The

reason that I ask is that, because I was at my wit's end with

at about the same age, I let her try mild salsa, even though I " knew "

that she wouldn't like it. Well, was I wrong! I suddenly found out

that she loved the stuff. If I put it in eggs, she would eat them.

Rice too. Even if I cooked chicken or steak with it. She also

likes things like broccoli. The nutritionist at our center explained

that lots of kids with CF like spicier, stronger flavored things. I

hope that this helps some.

>

> Mom of 5 with CF and one on the way

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be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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