Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 I know so many people here love Dr. Lehman. I've also been hearing quite a bit about Dr. Mathews in Cincinatti. We are abandoning our clueless local GI docs, but don't know where to go. Both of these doctors are exactly the same distance from our city. I was wondering if anyone here had seen both of them and had a preference? Also, Dr. s seems to be one of the ones doing the TP more frequently, while I've not heard about Dr. Lehman with this procedure...so does Dr. Lehman not do this, or just use it more sparingly? Thank you for insight you can provide. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Hi , I just recently saw Dr Lehman for a second opinion. He is about a seven hour drive from me so I was basically looking for some expert advice that I could use to manage my care from my region. I haven't seen the other Dr that you mentioned so I will limit my comments to Dr L (obviously, I guess, duh on me). First of all, if you are not a city person, driving and parking at the hospital is a nightmare. And everything costs unbelievably much......and everything costs (Had to pay for things that I wasn't used to having to pay for). Leave time to get about as many of the roads near the hospital are one way and have similar names and are a little confusing. Other than that it was pretty easy to find, and getting around in the hospital itself was easy. The clinic areas are not fancy and modern - his is in the basement near the radiology area. Very convenient for any procedures that he requests. He seemed to be a very nice person but fairly distracted. Maybe I caught him at the wrong time but I never felt that he really heard a word I said as he kept repeating the same questions to me over and over again and never moved to the stuff that I wanted to talk about. Depending on your specific situation he recommends basically three options: 1). long term narcotics for pain control with enzyme supplementation (if you are stable); 2). a course of sandostatin (which is controversial and very expensive so many insurance companies will not cover it); 3). a J-tube for a year to rest the pancreas (obviously this is pretty radical but if there is a need it is an option). He never mentioned at what point surgery will or if ever be an option to me...but that can be because I have already undergone a series of stenting. He then offered to do a CT scan to see if there are anything obvious that could be causing my problems that an ERCP with stents could fix. We did that on the night of the appointment and I met with him briefly the next day to learn the results. He basically said that there is nothing that he could offer me and didn't follow through on my request for guidance on managing the disease - what tests I should get at what intervals, etc. (still waiting for the letter and it has been over a month now). Basically he just advised to forget about it until / unless an emergency situation should come - up and that things could get better or worse or stay the same..that there is no way to predict and .that I am fortunate because things could be worse. I liked the guy overall, but felt that he wasn't really in the same room with me and was a little rude to me during his " interrogation " , never asked to look over the radiology films that I brought with me and never bothered to consider my main reasons for seeking his opinion,...that is, how did my surgery from five years ago by a quack cause the damage to my pancreas, what if anything can be done to fix this damage and what should I do in the years left to me to minimize the effects that this disease has on my life. I hope nobody takes what I just wrote badly. I do not mean to protray Dr L. poorly. I respect who he is and am very impressed with his credentials and his research and his willingness to treat a problem that alot of physicians do not believe exists. I think I may have just seen him on one of his bad days. Disappointing to me, but he is human after all. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 , Yes, I know that they are completely different practices, but I was wondering which one to go with. Laurie, your experience with Dr. Lehman sounds horrible! I'm so sorry that happened. It sounds like the situation with our local doctors. is doing very well. He doesn't have any pain. We eat a relatively low fat diet, and he is taking lots of vitamin suppliments. He also takes protonix and 2 lipram-ul 20 with meals, 1 with snacks. He had one ERCP which showed narrowing of the main panc duct w/ a small amount of inflamation around it. The doc wanted to do and EUS, but we just didn't like him. Most doctors seem to want to take the " let's just wait and see " approach, but from what I can see from , and from all of the experiences on this list.....it JUST GETS WORSE! Quote Link to comment Share on other sites More sharing options...
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