Re: Compounding Pharmacys New-Help

[Guest guest]

I did call scriptech because I had used them before. I asked if they

were familiar with this diet. The pharmacist said they make medicines

for kids on various diets, but she never would name this diet. She

said if I knew what the base was they could make it. I called Lee

Silsby and talked with someone there and I am not sure if he can help

either. I thought they compounded all of the medicines in to one. He

said they cannot do that. He also said that the vitamins my daughter

is taking would be too labor intensive to make and that it would not

be cost effective nor covered by insurance. He directed me to their

website to look at what scd legal vitamins they have available. In my

previous email I listed what's she taking. Am I doing something

wrong? Is there some guidelines for Pharmacies that I could just take

to scriptech?

Sheryl

> > Hello,

> > I will be starting the diet with my daughter tomorrow. I have just

> > made my first batch of soup (and I mean that literally, never in

my

> > life have I made home made soup. Had to call my cousin to find out

> > how to make the beef broth.)I am waiting on BTVC and my yogurt

maker

> > which I ordered earlier. I have on hand the scd legal supplements

> > from Kirkman and the progurt from GI health. I have been reading

old

> > posts here, the pecan bread webiste and Elaine's website. So I

guess

> > I am ready to dive in.

> > My daughter's diagnosis is mitochondrial disease, she has seizures

> > and is dev delayed. As of the last year since being on canned

formula

> > has had a terrible time with vomiting, and constipation. She does

not

> > have a diagnosis of autism, but to me she has some of the

symptoms.

> > Also she is tube fed. Before learning of this diet I had firmly

> > convinced our GI to assist me with putting her on foods I cook at

> > home and blend. Also waiting on commercial blender (that can even

> > blend up a rake).Then I heard about this and I felt I had finally

> > arrived at the right thing. Previously my daughter was on the

> > Ketogenic diet for 2 years with moderate success and so I feel

> > confident in going into this.

> > My first questions have to do with medications and supplement.

She is

> > on many (Keppra, Tranxene, Trileptal, Carnitine, COQ10, vitamin

B2,

> > Vitamin C, Vitamin E, Alpha Lipoic Acid, Prevacid). Do you think

that

> > I some of them compounded? Not sure how to tell the pharmicist to

> > make them fit with this diet. Any suggestions to help me get off

to a

> > good start is appreciated.

> > Sheryl

> >

> >

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

You should have no problem getting ALA compounded by Silsby or Wellness. You

can get it in a transdermal(lotion) form. My son is using that right now. You

can also get a B complex compounded this way. You should be able to get the Vit

C and Vit E over the counter in SCD legal form. I got GNC brand of ester C that

is SCD legal. It's a pill, and I just crush it into a powder. I know Kirkman

carries a COQ10. Have you checked to see if it is SCD legal? If you're not

sure, call to ask them. They are very familiar with SCD, and know which of

their products comply. I'm not familiar with your other meds and supps, so I

can't give any direction on that. There is no way that a pharmacy could

compound all of these meds into one substance. You'd need to give them a list

of everything, and ask which ones they can compound to comply with SCD for you.

Certainly a transdermal form is legal because it isn't ingested, so ask about

that, too. Get everything that you can compounded. What can't be compounded to

meet SCD requirements you will just have to weigh carefully the benefits of the

med in its illegal form verses dropping it to see if the healing of SCD will off

set that.

Meleah

Re: Compounding Pharmacys New-Help

I did call scriptech because I had used them before. I asked if they

were familiar with this diet. The pharmacist said they make medicines

for kids on various diets, but she never would name this diet. She

said if I knew what the base was they could make it. I called Lee

Silsby and talked with someone there and I am not sure if he can help

either. I thought they compounded all of the medicines in to one. He

said they cannot do that. He also said that the vitamins my daughter

is taking would be too labor intensive to make and that it would not

be cost effective nor covered by insurance. He directed me to their

website to look at what scd legal vitamins they have available. In my

previous email I listed what's she taking. Am I doing something

wrong? Is there some guidelines for Pharmacies that I could just take

to scriptech?

Sheryl

> > Hello,

> > I will be starting the diet with my daughter tomorrow. I have just

> > made my first batch of soup (and I mean that literally, never in

my

> > life have I made home made soup. Had to call my cousin to find out

> > how to make the beef broth.)I am waiting on BTVC and my yogurt

maker

> > which I ordered earlier. I have on hand the scd legal supplements

> > from Kirkman and the progurt from GI health. I have been reading

old

> > posts here, the pecan bread webiste and Elaine's website. So I

guess

> > I am ready to dive in.

> > My daughter's diagnosis is mitochondrial disease, she has seizures

> > and is dev delayed. As of the last year since being on canned

formula

> > has had a terrible time with vomiting, and constipation. She does

not

> > have a diagnosis of autism, but to me she has some of the

symptoms.

> > Also she is tube fed. Before learning of this diet I had firmly

> > convinced our GI to assist me with putting her on foods I cook at

> > home and blend. Also waiting on commercial blender (that can even

> > blend up a rake).Then I heard about this and I felt I had finally

> > arrived at the right thing. Previously my daughter was on the

> > Ketogenic diet for 2 years with moderate success and so I feel

> > confident in going into this.

> > My first questions have to do with medications and supplement.

She is

> > on many (Keppra, Tranxene, Trileptal, Carnitine, COQ10, vitamin

B2,

> > Vitamin C, Vitamin E, Alpha Lipoic Acid, Prevacid). Do you think

that

> > I some of them compounded? Not sure how to tell the pharmicist to

> > make them fit with this diet. Any suggestions to help me get off

to a

> > good start is appreciated.

> > Sheryl

> >

> >

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Thank you, I did do some research. I like the idea of the transdermal

kind and I will check in to that. As far as CoQ10 I feel we will need

to stay on the one we are on. It is by tischon and I get it at

www.epic4health.com the concentrated one. Supposed to be only CoQ10

with no additives. I checked on seizure medications and they don't

come anyother way. The compounding pharmacist said what he would make

would not be much different. So it looks like the vitamins I can get

scd legal.

Sheryl

>

> You should have no problem getting ALA compounded by Silsby or

Wellness. You can get it in a transdermal(lotion) form. My son is

using that right now. You can also get a B complex compounded this

way. You should be able to get the Vit C and Vit E over the counter

in SCD legal form. I got GNC brand of ester C that is SCD legal.

It's a pill, and I just crush it into a powder. I know Kirkman

carries a COQ10. Have you checked to see if it is SCD legal? If

you're not sure, call to ask them. They are very familiar with SCD,

and know which of their products comply. I'm not familiar with your

other meds and supps, so I can't give any direction on that. There

is no way that a pharmacy could compound all of these meds into one

substance. You'd need to give them a list of everything, and ask

which ones they can compound to comply with SCD for you. Certainly a

transdermal form is legal because it isn't ingested, so ask about

that, too. Get everything that you can compounded. What can't be

compounded to meet SCD requirements you will just have to weigh

carefully the benefits of the med in its illegal form verses dropping

it to see if the healing of SCD will off set that.

> Meleah

>