Re: Re: Can we talk #s?

[Guest guest]

Hi,

Yes, turns out 's untreated tort was throwing off muscle balance.

So, it is a great idea to resume PT.

's hand measurement was 15mm at 11.5 months, and after 13+ months

of treatment his head is pretty good, much better than 7mm. Actually,

in one conversation I was told we would aim for 7mm in 's helmet.

For us though, a scan showed the measurement was actually only 7-8mm to

start with.

Good luck!

Kathy

rharvell wrote:

My son had his eval at CT yesterday and his Cranial Vault

Assymetry was 14. He will be 1 tomorrow. She said the best we can hope

for is a 7 and even that was being pretty generous. And that would be

after 6 months of wearing a DOC Band (2 bands likely). So, end result

is that his head will never be perfect. He also had tort and even after

5.5 months of PT, she still saw him tilting on & off during our

eval. She was telling us that the tort can throw off muscle development

throughout the body and that we should resume PT with him to make sure

he stays on track. I thought Tyler's tort was corrected, but I'm

discovering that it's really a stubborn muscle to work with, especially

as they get older and more mobile.

So, first, congratulations on your amazing progress! You are blessed

that you started earlier. If I was in your boat, and that close to "0",

I'd keep going, especially if he seems to be tolerating the helmet ok.

I know it's probably a real pain having to deal with the helmet, but a

few months more effort now could potentially save you years of pain

& grief & guilt down the road.

Ultimately, though, only you can make the best decision for your child.

Best of luck and congrats!