Re: Amazing-KURT - NYC Care if you're still looking.

March 9, 2004

My brother lives in Manhattan, and in his research to prepare for his

nephews first trip to visit (hasn't happened yet, only 18

months)...his close friend is a surgeon (un-related area); but said

that Columbia has both a children and adult CF care w/ an excellent

reputation.

I'm of no help on specific Dr.'s though...good luck.

> Isn't it amazing how in the midst of everything going on with Shana

Kurt is

> able to appreciate the GOOD?

>

> I read his email and was so impressed. So many times people don't

appreciate

> the good things.

>

> I do. 's pfts were 64% - her lowest yet.......thankfully

our Ped.

> was there since our CF Dr. is a not. Dr. said its a sinus

infection. She looks

> like death - so pale.......She is usually pale.........of course,

my husband

> acts like a MORON..........I was thinking of many choice words but

I figured

> since prayer is out cursing would be out too...........LOL

>

> Anyone in the NY City area - 5 boroughs and Long Island......with

any

> feedback on any Centers I would appreciate. I need a Dr. who is

there not a part

> time Dr. Rather than complain I am going to have to take action.

I respect

> this Dr., like the Dr. but I need a Dr....

>

> Rosemary in NY with 3 children (13, 11 and 7)

> with CF. I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

> my new favorite quote is

> Any idiot can face a crisis -

> it's day to day living that wears you out.

> Anton Chekhov

>

March 9, 2004