Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Dear Becky You are abound in prayers. I am just shuffling them out one right after the other. Rest well tonight .It is going to be all better soon LOVE & HUGS< GrandmomBEV Im home from the Transplant evaluation Hey There I'm back from my transpnat eval.I was there for almost 2 weeks ! ! ! My case went befiore the TX board today (Thursday). I hope to God they accept me. Without it they said I won't last 2 years...or so they say....lol I absolutetly love the whole team though.They are also thinking about a Pancrease TX too b/c of some extra stuff dealing with that. Unfortunately though, one of the docs was sick when I saw him last week. I ended up with a sore throat 2 days later...ughhhhhhhhh So I'm headed back in on Monday (Doctor in NC doesn't see patients on Friday....) They did give me a dose of Zosyn in Florida and Levaquin to tide me over until my retard of a doc can see me here. My poor nose is running so much it gets stuck on my 02 cannula and makes my nose raw...=( Ever tried to sneeze with oxygen up your nose...its kinda messy. I'm still realing from the total differences in results of my tests.I mean how do you miss a hole in the heart? I had an acho and bubble study at UNC ?Also, how do you miss only 25% of the air I breathe in goes to the Rt lung? There's a bunch of stuff.Blood flow problems, Pulmo hypertension,collapsed airways, yada yada yada Anyways...I'll write late about the whole thing.I totally recommend them to everyone. Say a prayer for me tonight ....I really need these lungs. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Becky, One prayer for your new lungs, coming right up! Gale > Hey There > I'm back from my transpnat eval.I was there for almost 2 weeks ! ! ! My case > went befiore the TX board today (Thursday). I hope to God they accept me. > Without it they said I won't last 2 years...or so they say....lol > I absolutetly love the whole team though.They are also thinking about a > Pancrease TX too b/c of some extra stuff dealing with that. Unfortunately though, > one of the docs was sick when I saw him last week. I ended up with a sore > throat 2 days later...ughhhhhhhhh > So I'm headed back in on Monday (Doctor in NC doesn't see patients on > Friday....) > They did give me a dose of Zosyn in Florida and Levaquin to tide me over > until my retard of a doc can see me here. My poor nose is running so much it gets > stuck on my 02 cannula and makes my nose raw...=( > Ever tried to sneeze with oxygen up your nose...its kinda messy. > I'm still realing from the total differences in results of my tests.I mean > how do you miss a hole in the heart? I had an acho and bubble study at UNC > ?Also, how do you miss only 25% of the air I breathe in goes to the Rt lung? > There's a bunch of stuff.Blood flow problems, Pulmo hypertension,collapsed airways, > yada yada yada > Anyways...I'll write late about the whole thing.I totally recommend them to > everyone. > Say a prayer for me tonight ....I really need these lungs. > > Becki > YOUR FAVORITE LilGooberGirl > YOUNGLUNG EMAIL SUPPORT LIST > www.topica.com/lists/younglung > Pediatric Interstitial Lung Disease Society > http://groups.yahoo.com/group/InterstitialLung_Kids/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 I hope they tell you what you want to hear w/Cody 22month w/cf Im home from the Transplant evaluation Hey There I'm back from my transpnat eval.I was there for almost 2 weeks ! ! ! My case went befiore the TX board today (Thursday). I hope to God they accept me. Without it they said I won't last 2 years...or so they say....lol I absolutetly love the whole team though.They are also thinking about a Pancrease TX too b/c of some extra stuff dealing with that. Unfortunately though, one of the docs was sick when I saw him last week. I ended up with a sore throat 2 days later...ughhhhhhhhh So I'm headed back in on Monday (Doctor in NC doesn't see patients on Friday....) They did give me a dose of Zosyn in Florida and Levaquin to tide me over until my retard of a doc can see me here. My poor nose is running so much it gets stuck on my 02 cannula and makes my nose raw...=( Ever tried to sneeze with oxygen up your nose...its kinda messy. I'm still realing from the total differences in results of my tests.I mean how do you miss a hole in the heart? I had an acho and bubble study at UNC ?Also, how do you miss only 25% of the air I breathe in goes to the Rt lung? There's a bunch of stuff.Blood flow problems, Pulmo hypertension,collapsed airways, yada yada yada Anyways...I'll write late about the whole thing.I totally recommend them to everyone. Say a prayer for me tonight ....I really need these lungs. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 My prayers are for YOU tonight, i have not met anyone funnier that deserved them more. Honestly...your sense of humor is so hilarious. Patty, whos praying over time for the best set of lungs this side of the equator. > Hey There > I'm back from my transpnat eval.I was there for almost 2 weeks ! ! ! My case > went befiore the TX board today (Thursday). I hope to God they accept me. > Without it they said I won't last 2 years...or so they say....lol > I absolutetly love the whole team though.They are also thinking about a > Pancrease TX too b/c of some extra stuff dealing with that. Unfortunately though, > one of the docs was sick when I saw him last week. I ended up with a sore > throat 2 days later...ughhhhhhhhh > So I'm headed back in on Monday (Doctor in NC doesn't see patients on > Friday....) > They did give me a dose of Zosyn in Florida and Levaquin to tide me over > until my retard of a doc can see me here. My poor nose is running so much it gets > stuck on my 02 cannula and makes my nose raw...=( > Ever tried to sneeze with oxygen up your nose...its kinda messy. > I'm still realing from the total differences in results of my tests.I mean > how do you miss a hole in the heart? I had an acho and bubble study at UNC > ?Also, how do you miss only 25% of the air I breathe in goes to the Rt lung? > There's a bunch of stuff.Blood flow problems, Pulmo hypertension,collapsed airways, > yada yada yada > Anyways...I'll write late about the whole thing.I totally recommend them to > everyone. > Say a prayer for me tonight ....I really need these lungs. > > Becki > YOUR FAVORITE LilGooberGirl > YOUNGLUNG EMAIL SUPPORT LIST > www.topica.com/lists/younglung > Pediatric Interstitial Lung Disease Society > http://groups.yahoo.com/group/InterstitialLung_Kids/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 I pray for yours and you pray for mine. I am going for the evaluation soon. I need those lungs too!! I hope to god that everything works out for you. I'm getting good vibes for you Becki!!! Sleep well. On Thursday, January 15, 2004, at 08:49 PM, MissGooberGirl@... wrote: > Hey There > I'm back from my transpnat eval.I was there for almost 2 weeks ! ! ! > My case > went befiore the TX board today (Thursday). I hope to God they accept > me. > Without it they said I won't last 2 years...or so they say....lol > I absolutetly love the whole team though.They are also thinking about a > Pancrease TX too b/c of some extra stuff dealing with that. > Unfortunately though, > one of the docs was sick when I saw him last week. I ended up with a > sore > throat 2 days later...ughhhhhhhhh > So I'm headed back in on Monday (Doctor in NC doesn't see patients on > Friday....) > They did give me a dose of Zosyn in Florida and Levaquin to tide me > over > until my retard of a doc can see me here. My poor nose is running so > much it gets > stuck on my 02 cannula and makes my nose raw...=( > Ever tried to sneeze with oxygen up your nose...its kinda messy. > I'm still realing from the total differences in results of my tests.I > mean > how do you miss a hole in the heart? I had an acho and bubble study at > UNC > ?Also, how do you miss only 25% of the air I breathe in goes to the Rt > lung? > There's a bunch of stuff.Blood flow problems, Pulmo > hypertension,collapsed airways, > yada yada yada > Anyways...I'll write late about the whole thing.I totally recommend > them to > everyone. > Say a prayer for me tonight ....I really need these lungs. > > Becki > YOUR FAVORITE LilGooberGirl > YOUNGLUNG EMAIL SUPPORT LIST > www.topica.com/lists/younglung > Pediatric Interstitial Lung Disease Society > http://groups.yahoo.com/group/InterstitialLung_Kids/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 We have been praying for you everynight! Please keep us informed about what the docs say and what the news is on the TX. Take care of yourself. Tina W. Im home from the Transplant evaluation Hey There I'm back from my transpnat eval.I was there for almost 2 weeks ! ! ! My case went befiore the TX board today (Thursday). I hope to God they accept me. Without it they said I won't last 2 years...or so they say....lol I absolutetly love the whole team though.They are also thinking about a Pancrease TX too b/c of some extra stuff dealing with that. Unfortunately though, one of the docs was sick when I saw him last week. I ended up with a sore throat 2 days later...ughhhhhhhhh So I'm headed back in on Monday (Doctor in NC doesn't see patients on Friday....) They did give me a dose of Zosyn in Florida and Levaquin to tide me over until my retard of a doc can see me here. My poor nose is running so much it gets stuck on my 02 cannula and makes my nose raw...=( Ever tried to sneeze with oxygen up your nose...its kinda messy. I'm still realing from the total differences in results of my tests.I mean how do you miss a hole in the heart? I had an acho and bubble study at UNC ?Also, how do you miss only 25% of the air I breathe in goes to the Rt lung? There's a bunch of stuff.Blood flow problems, Pulmo hypertension,collapsed airways, yada yada yada Anyways...I'll write late about the whole thing.I totally recommend them to everyone. Say a prayer for me tonight ....I really need these lungs. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ <http://groups.yahoo.com/group/InterstitialLung_Kids/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Becki, I really am praying for you and those new lungs!!!!!! Im home from the Transplant evaluation Hey There I'm back from my transpnat eval.I was there for almost 2 weeks ! ! ! My case went befiore the TX board today (Thursday). I hope to God they accept me. Without it they said I won't last 2 years...or so they say....lol I absolutetly love the whole team though.They are also thinking about a Pancrease TX too b/c of some extra stuff dealing with that. Unfortunately though, one of the docs was sick when I saw him last week. I ended up with a sore throat 2 days later...ughhhhhhhhh So I'm headed back in on Monday (Doctor in NC doesn't see patients on Friday....) They did give me a dose of Zosyn in Florida and Levaquin to tide me over until my retard of a doc can see me here. My poor nose is running so much it gets stuck on my 02 cannula and makes my nose raw...=( Ever tried to sneeze with oxygen up your nose...its kinda messy. I'm still realing from the total differences in results of my tests.I mean how do you miss a hole in the heart? I had an acho and bubble study at UNC ?Also, how do you miss only 25% of the air I breathe in goes to the Rt lung? There's a bunch of stuff.Blood flow problems, Pulmo hypertension,collapsed airways, yada yada yada Anyways...I'll write late about the whole thing.I totally recommend them to everyone. Say a prayer for me tonight ....I really need these lungs. Becki YOUR FAVORITE LilGooberGirl YOUNGLUNG EMAIL SUPPORT LIST www.topica.com/lists/younglung Pediatric Interstitial Lung Disease Society http://groups.yahoo.com/group/InterstitialLung_Kids/ Quote Link to comment Share on other sites More sharing options...
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