Guest guest Posted December 8, 2002 Report Share Posted December 8, 2002 Hi Jo, I am also a new member, just diagnosed. My experience sounds soumething like yours. I also have 2 other immune diseases and I was on pred. when my ear began to swell, turn bright red and was very painful. Felt like a nerve ending in pain. It really hurt when I forgot and put the telephone up to that ear. They could not find anything wrong with it, so in about a week it went away. Then it began to hurt each day, no swelling, just pain. Finally I went to an ear doctor and he diagnosed it RP. but with no biopsey. Seeing as I had been on pred and still remain on it, I felt it was helping my ear not to be so painful. So far it has not spread, except my ribs are beginning to hurt, don't know if that is related or not. I also belieave that the exercises are the best. I go to the gym every other day for weights and leg exercises plus walking each day. Of courseit is also for my " Termporal Arteritis and Polymylagia " that I have. I feel the RP was caught very early and am thankful for that. I hope you are feeling better and I know this support group will help. Maybe some of the other members could give us their experience to help both of us understand this strange disease more. Also how rare is it, I hear not many people havae ever heard of this. Take care of Quote Link to comment Share on other sites More sharing options...
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