When meds are not SCD Legal

January 31, 2007

My DS is currently on Prevacid for reflux, in addition to Pentasa for

his bowel inflammation. I haven't looked into the Pentasa yet, but I

know the Prevacid is definitely not legal. I'd been wanting to take him

off the Prevacid anyway, as I just don't think it's good to suppress

stomach acid long term, but even the more gentle herbal remedies are

not legal. The one our nutritionist recommended contains marshmallow

root.

So two questtions ..

1) Generally speaking, what do you do when meds are not legal?

2) Specifically, does anyone know of any legal reflux meds? Is Zantac

legal?

Thanks!

Sharon

mom to Nate, 2yo, enterocolitis & reflux;strongly considering SCD

January 31, 2007

Sharon,

The general consensus is that if you can find a compounding pharmacy to make

your meds without those illegals then that is a great option. However, for many

that is not an option. Necessity of taking meds is very real and so if there are

illegals in the meds then we just must deal with that. I take salofalk and there

is lactose in it but I take it anyway. We don't want anyone to stop their meds

for that small amount of illegals.

As for the recommendations from a nutritionist: unfortunately, they are

generally not versed in SCD and don't understand that the very remedy they are

giving will actually cause more problems than solve. Reflux does usually go away

after some time on SCD. As the bacterial balance improves so does the ability to

break food down. Enzymes and probiotics can be helpful in easing reflux. So if

your nutritionist suggests something, you can post what it is here and then we

will be able to tell you whether its ok or not.

hope this helps, Charlene

UC 8 years

SCD 6 years