Recognized?

[Guest guest]

Hello, just want to test. Feel so lonely and read the mail where I pick

up one or two of my own symptoms.

What do you eat. I take 8-9 Creon Forte and sometimes some Creon with a

banana or fruit in between. Even if I take this much I dont tolerate

much food.Verty little protein, 1-2 ounces at the most some low fat

cottage cheese, spreedcheese lowfat, cracker bread and some of the

deepfrozen glutenfresbread ( tastes like paper) boiled potatoes,

carrots, but now raw vegs except for lettuce, yellow tomatoes and

cucumbers. Lowlactos lowfat milk and sweets without fat (and gluten and

lactose). My stomach is very hard and I try all kinds of meds by mouth

and rear to loosen it up but not much of a result. I eat ricecakes of

all sorts, lowfat and ricenudels. But I dread the meat as it seems to

give me reactions all through noisy stomach, ribpain, awful gassmells.

Sorbet I do eat and sweets, could eat a pound easily, get up at night

and cant stop myself, crave for it. My skin specially my face and head

is very dry and dandruffy and red itching spots. I feel smells of food

everywhere and try lowfat, glutenfree sausage now and then but with bad

results. I want to quit eating, do anyone feel the same. I am so tired

and just about manage my job but at home I can hardly do anything, just

on my sofa and feeling as if life just gradually is turned off. I want

so much, can so little.I am always hungry longing for something tasty

and something to chew.

I havent eaten without a creon tablet since a year back when they put me

on it. I hate shops, streets with the smells of food and going to

friends for a meal, try to avoid as much as possible of this. Have tried

to invite people to my place said I could cook (used to be a good one)

and offer them wine, have had an open house before, but it its only my

sister and a friend with a sick daughter who pops in and they just want

a cup of tea, I have tried plenty of teas and am so tired of the

tastes-my home is cosy, flowers, warm colours, I have a cat thank God. I

feel I am loosing track with the rest of the world. My docs always

forget to call when I have left a message, I try again and then they say

sorry. Well you seem to do well they say, as if life was normal. Yes I

have put on 22 pounds since I got all the good advice from Liverpool and

the pancorg. Here in Sweden they have done nothing, just said they have

reached dead end street, eat more fat and meat were their advice, gave

me thick creamy soups in hospital and creamy chocolate drinks. They dont

beleive in low fat diet ...

Sorry I am tired of it all, the attacks coming when least expected, not

as bad as a year ago and last spring. Tired of the food which is bread,

yogurt, spreadcheese and two pieces of turkey or cheese. Sweets, dried

fruits boiled. I dont want any of it, another pill would be fine. Am I

too ungrateful, I feel i will be severly punished because I am well

aware i was like a skeleton this April and am now standing on my feet

solid on the ground. Should be grateful but just want to get going and

leave, dont want to know whats ahead of me, now too much of what can

come.

It is just that my soul doesnt want to live in this body anymore. (I

also have MS not the worst kind, peanuts compared to CP and

Glutenintolerance, I have had breastcancer and a 2 pound lipoma removed

in my hip. But this CP and gluten condition tops it all. I just want to

say goodbye and leave. No tears left. Nothing drastical, just very tired

and fed up putting up a face, my work means meeting a lot of people. I

separate my soul and body and for a while I am only Sonja until the body

take over and runs the show again. Sorry for my bad mood, I am looking

for someone feeling the same or someone telling me off like the

ungreatful person I am. Love Sonja on a sunny day in Stockholm