To Chrissy re Creon

[Guest guest]

Hi Chrissy,

More on creon!

I have only twice forgotten to take my normal Creon supplies out

with me. Once we had gone out for lunch when I realised what I'd

done. I ran out of the restaurant and went to find a healthfood

store. I bought the digestive enzymes which they sell.....not the

same type, strength, proportions etc. as the prescribed ones. I ate

very little though and nothing bad happened.

The other occasion is something which I don't think I mentioned

before. (If I did, sorry for the repetition! Senior moment again,

perhaps!)When I was in London at New Year I went to a particular

store and, after hours shopping on Oxford St, I was tired, hungry

and thirsty. I went to the store's coffee shop. At the time I had

just been told I was coeliac after all, as well as having

CP....the " double whammie " !! I could find not one thing gluten-

free. I asked the pleasant waitress if I could eat the fruit and

gluten-free biscuits I had in my bag as they had nothing suitable

for me. She became quite excited and said that the very best cake

they had was gluten-free but she would have to go down to the main

restaurant to get it!! i just couldn't stop her! She came back with

a HUGE wedge of delicious-looking cake covered in a thick layer of

chocolate and nuts. She read out the ingredients to assure me that

the cake was gluten-free. It WAS......BUT the main ingredients were

butter, cream and chocolate!!!!

She was so enthusiastic for me and so pleased with herself that I

had a moment of utter madness and ate the cake. Now you would have

to know me to appreciate just how out-of-character this is. I NEVER

break medical diets. I can't explain my action. (BTW, it was the

best thing I've eaten in YEARS!!!!!) To make matters worse, I only

had 2 Creon 40000 with me. I then became very upset because we were

all going to the theatre in the evening and I thought that I would

be sitting there in terrible pain while everyone else enjoyed

themselves. I just couldn't understand how I could have done

something so stupid, initially just so as not to disappoint the

helpful waitress and then tempted by the wicked deliciousness of the

cake!

Well....I did have pain....but no more than I often have anyway! I

ate nothing else all day until after the show so I suppose that

helped. Anyway, I haven't repeated the experiment!!!

To answer your question properly, Chrissy, I can't really say what

would happen because I have never had a normal full meal without

taking my Creon.....at least, not since it was prescribed in April

2003. Before that I certainly had a lot more severe pain. However, I

do think it takes time for the body to adjust to the medication so

maybe it takes time before ill-effects would kick in if one didn't

take it. I can't really explain that one but my initial abdominal

cramps over a few weeks when I first started Creon and my adventure

with the cake both possibly support this idea. It's probably not

very scientific!

BTW, please remember us on Tuesday when Jim will get the full

picture on his cancer from his consultant. I'll be going with him.

Good luck with it.

With love,

Fliss (UK)