Re: New behaviors making me worry.

December 15, 2006

The research paper written by Tamaro is very new stuff.... it will

take a while to filter down to the docs. She happened upon this connection when

researching why a lot of the kids with autism have calcium oxalate crystals.

Some parents had been putting their kids on low-oxalate diets, and from what

found out, she thinks they were on the wrong track.

She thinks the low levels of those fat-soluable vitamins (A, D and K) are the

reason why the body is socking away the free calcium, attaching it to oxalate

and stashing it in this crystal form. Yes, if you follow 's K

protocol, you do have to give the A and D with it. It's easy to find out " how

much " of all of these.... just go to her files section at the K list (

http://groups.yahoo.com/group/VitaminK/ ) .... she's got it all outlined

there.

No need to worry so much.... just print 's article out and bring it to

the doc. If you start that supplement protocol, you will begin first with

supplementing the A and D in the form of a good cod liver oil. First things

first.... and CLO can't hurt, even if you decide not to do the K.

It does sound to me like the stimming and other behavior you're seeing is

probably die-off related. I know it's hard.... but it is temporary. Are you

seeing ANYthing positive since starting SCD? How are his BMs? Adding magnesium

(I like mag glycinate) may help to calm him somewhat.

Patti

New behaviors making me worry.

G is 3 and has been on the diet almost a month now, within the last

8 or so days he has turned into an ADHD child. He is in constant

motion, it's hard to get him to focus, when you do he can answer

your question, but then goes right back. He is watching his hands,

spinning, writing his letters on the carpet, echolalia etc.. He's

always had mild autistic traits but within the last 2 months they

have really seemed to manifest themselves (even prior to the diet).

It's almost obvious that he is uncomfortable but can't stop

himself. I know everyone says this is die off, but after I read the

vitamin K article, I've started obsessing. I have been giving epsom

and baking soda baths for a few days now. I called one of the DAN

doctors we see and she suggested charcol. I asked about vitamin K

(per the article by the lady who's name I can't remember now),

regardless, the doctor didn't know about the vitamin K issues that

the author discussed. UUGGHH that bugged me. How the heck can you

help my child if you don't know about this. I don't want to know

more than the person I am relying on to help me with this. :>)

Anyway, I want to know has anyone used both of these (epsom, baking

soda baths and charcol) all at the same time.

Also how do you know your child has vitamin K deficiency. And if

he does don't you have to supplement with a few other vitamins A and

something else, how do you know how much of what?

I feel like everyday that passes I loose another day to help and the

bad stuff floating around is doing more damage while I am fumbling

around trying to fiqure this out on my own. Thank goodness for you

guys. I see another DAN doctor who we did all of our urine and pooh

tests with next Thursday. But all I can obsess about is that it is

6 days away and that I need to do something now. I swear I think I

am starting to loose it I am obsessing about every negative symptom

he shows. I've got to chill.

Thanks for answering any/all of my questions.

December 15, 2006

Thanks Patti

I will definately follow up on the protocol. His pooh has been pretty normal

from about day 7 when I finally stoped giving him bits of raw apple. He's been

eating the same thing since about day 7 as well. His pooh was inconsistent

runny to consitipation, but never anything severe enough to seek further medical

help (except one time for Myralax). His behaviors are what brought me to SCD.

I'm a school psychologist, so i'm probably overly sensitive to " oddities " and

since 18 months I have known " mother's instinct " that something wasn't quite

right. When I took him to the " autism guru " at Children's Hospital she agreed

with me he did have autistic traits - severe language delay and sensory at the

time, however his traits weren't " severe enough " to warrant a diagnosis. His

behaviors have been regressing and language development slow, yet he's really

smart. So in response to seeing any positives - not really. I'm seeing the

behaviors I started the diet for,

increasing. I think that is why I am becoming so stressed out. Wait let me

retract, the other night I walked by his room while he was reading/looking at

his books and out of no where he began singing Ol Mc. Not just bits and

pieces but a whole verse, picking out the animal and making the sounds- that did

stun me. I've heard of adults with autism say there were times when the fog

would lift and they would experience " normalcy " briefly only to have the window

close back up on them. I wonder if his window opened for a minute and if so

what caused it to open.

thanks for your help!!

Becky

son 3

one month SCD

Patti wrote:

The research paper written by Tamaro is very new stuff....

it will take a while to filter down to the docs. She happened upon this

connection when researching why a lot of the kids with autism have calcium

oxalate crystals. Some parents had been putting their kids on low-oxalate diets,

and from what found out, she thinks they were on the wrong track.

She thinks the low levels of those fat-soluable vitamins (A, D and K) are the

reason why the body is socking away the free calcium, attaching it to oxalate

and stashing it in this crystal form. Yes, if you follow 's K protocol,

you do have to give the A and D with it. It's easy to find out " how much " of all

of these.... just go to her files section at the K list (

http://groups.yahoo.com/group/VitaminK/ ) .... she's got it all outlined there.