Re: [RPSupportandAwarenessFoundation]/ sleep disorders consult

[Guest guest]

,

Thanks for the information but I was wondering if he talked about any other

" sleep disorders " -- mainly, inability to sleep. Although I have had a

problem sleeping for a long time, the problem became SIGNIFICANTLY worse

when I started taking Cellcept. Two different times they have tried to do a

sleep study on me but have been unable to because they can't get me to

sleep. We have tried MANY different meds and nothing has worked. Dr.

Trentham says that he has never heard of sleep problems with the Cellcept

but I know this is what is causing the problem to be so much worse because

it started when I started the cellcept and every time we increase the dose,

I go through about a week of virtually no sleep. It is as if my body then

tolerates the new dose and I can then get SOME sleep. Any information you

may have gotten on this I would appreciate.

Thank you so much,

Kathi

>

>Reply-To: RPSupportandAwarenessFoundation

>To: RPSupportandAwarenessFoundation

>Subject: [RPSupportandAwarenessFoundation] sleep disorders consult

>Date: Fri, 18 Oct 2002 16:30:37 -0000

>

>Hello,

>I had a very interesting appointment with a sleep disorders

>specialist yesterday. He works with quite a few of Dr Buckner's

>patients, in addition to me. He said that he thinks there is a high

>correlation between people having diagnoses of RP and sleep apnea,

>although there haven't been any official studies to correlate the

>two. He also stated that quite frequently he observes that when

>people who have rheumatic diseases begin to use a CPAP, or similar,

>their medications begin to work better than they had before the

>patient began the sleep apnea treatments. He said that this is just

>something that he has observed over time, but he works closely with a

>rheumatic disease clinic, so he has seen this a lot.

>All of that to say, if you haven't been assessed for sleep apnea, you

>may want to consider doing that. If you have it, you may improve

>your health in several ways by beginning treatment.

>Take care,

> M

>

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