Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 In a message dated 9/10/02 1:51:41 PM Pacific Daylight Time, hcf@... writes: << , you are so right!!!! Roy has done a lot for the foundation and its beginning. He is so great!!!!!! Talented too. guess who? >> Mom, I couldn't have said it better. Although, we know he is your favorite. LOL You know I'm just kidding........well, a little.. LOL How are you? I hope you are doing well. I miss talking to you. Know I'm thinking of you all the time. hugs ( Roy's little sis) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 This may be a stupid question but is the book in Brail??? Or can we read it without brail Carol A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 In a message dated 9/10/02 2:23:17 PM Pacific Daylight Time, Kenocarol@... writes: << This may be a stupid question but is the book in Brail??? Or can we read it without brail Carol A >> Carol, the book was written in Braile for . She lost her site to RP. But the book is not in Braile for us. So you won't have to learn it. LOL The publishers thought it was so great they wanted to publish it. So WE can ALL read it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 GREAT!~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Hey, I like that title. Can you, or anyone, tell me what hospital Lu is in? Thanks Re: Great News!!!! >In a message dated 9/10/02 1:51:41 PM Pacific Daylight Time, hcf@... >writes: > ><< , you are so right!!!! Roy has done a lot for the foundation and its > beginning. He is so great!!!!!! Talented too. > guess who? > > >> >Mom, I couldn't have said it better. Although, we know he is your favorite. >LOL You know I'm just kidding........well, a little.. LOL How are you? I >hope you are doing well. I miss talking to you. Know I'm thinking of you >all the time. >hugs > ( Roy's little sis) > > >DISCLAIMER!! >WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 , you are so right!!!! Roy has done a lot for the foundation and its beginning. He is so great!!!!!! Talented too. guess who? Great News!!!! > >I have some great news for everyone and feel very privileged to be the one to >announce this. > >We have an Author in the group!!! Yes, Roy on has just had his first >book published!!!! > >Let me tell you a bit about how this happened. Roy wrote this book a few >years ago and just now decided that he would like to have it written in >Braille, so his wife could read it. ( has RP). When he sent it >in, the company who translated it was interested in publishing it. SO..... >the rest is history. It is now available through and Noble. > >BUT.... Roy is so generous that he is going to sell us the book for $10.95, >plus shipping ($2.00) Total of $12.95. He will donate $2.00 to the >Foundation for every book ordered through him. He will also personally sign >the book for you. > >This book is an Irish Romance titled " MaChree " . You may go to the >Foundation's site at www.polychondritis.org/ and click on " Machree " or go to >www.polychondritis.org/machree.htm to find all the information you need. > >You will find reviews and info on the book. You may also order a copy. This >money will be going to the Foundation for research. > >If you are interested in ordering a copy, please fill out the order form >there. If you want a special inscription, please give that information too. >This would make a wonderful Christmas present. > >The cost is $12.95 and you may make your check or money order out to Roy >on. He needs to know how many copies he will need, so reserve your >book now. Once he receives your money, you will receive your book. > >Let's hear it for Roy!!!! CONGRATULATIONS!!!!! AND thanks for all you do >for the Foundation.!! > > > > >DISCLAIMER!! >WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 > > I have some great news for everyone and feel very privileged to be the one to announce this. We have an Author in the group!!! Yes, Roy on has just had his first book published!!!! > Roy wrote a book! Let's take a look! blue wrote one too! It's in her shoe! Roy, I know the pain of giving life to something in your head that just has to be said. Congratulations on the completion of the process! Wish I could too! blue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 In a message dated 9/10/02 6:43:04 PM Pacific Daylight Time, hcf@... writes: << Can you, or anyone, tell me what hospital Lu is in? Thanks Mom Jo, I'm sorry I don't know. I will ask Bill when I talk to him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 GREAT GOING ROY!!! LUCY HERE, I KNOW THAT JULIE IS PROUD OF YOU! REAL HAPPY FOR YOU. KEEP UP THE GOOD WORK! LOVE AND PRAYERS, LUCY -- Great News!!!! I have some great news for everyone and feel very privileged to be the one to announce this. We have an Author in the group!!! Yes, Roy on has just had his first book published!!!! Let me tell you a bit about how this happened. Roy wrote this book a few years ago and just now decided that he would like to have it written in Braille, so his wife could read it. ( has RP). When he sent it in, the company who translated it was interested in publishing it. SO..... the rest is history. It is now available through and Noble. BUT.... Roy is so generous that he is going to sell us the book for $10.95, plus shipping ($2.00) Total of $12.95. He will donate $2.00 to the Foundation for every book ordered through him. He will also personally sign the book for you. This book is an Irish Romance titled "MaChree". You may go to the Foundation's site at www.polychondritis.org/ and click on " Machree" or go to www.polychondritis.org/machree.htm to find all the information you need.You will find reviews and info on the book. You may also order a copy. This money will be going to the Foundation for research. If you are interested in ordering a copy, please fill out the order form there. If you want a special inscription, please give that information too. This would make a wonderful Christmas present. The cost is $12.95 and you may make your check or money order out to Roy on. He needs to know how many copies he will need, so reserve your book now. Once he receives your money, you will receive your book. Let's hear it for Roy!!!! CONGRATULATIONS!!!!! AND thanks for all you do for the Foundation.!! Quote Link to comment Share on other sites More sharing options...
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