Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Hello, I have a 7 year old daughter with CF.We live in Orange County California. We were with Kaiser Permante insurance until the end of last year. It was the only option my company offered that would cover pre-existing conditions for both me and her (I have severe rheumatoid arthritis and of cousre she has CF). However, this year Cigna opened up coverage to pre-existing and we moved over to seeing the CF team at CHOC (Childrens Hospital Orange County). They have been wonderful and much more through than Kaiser was. I don't have to jump thru any hoops to have here be seen by the CF hanks,docs. With Kaiser, I would always have to take her to her pediatrician first and then they would determine whether she could go and see the out of network CF doctor. She also had to hospitalized at Kaiser Hospital, and the resident pedricians would play telephone tag with the CF doc about how to handle her care. However, Kaiser was really good about providing all the necessary meds. I always just got her enzymes, ADEK, antiobotics, and all her innhaled drugs from them with no hassle. Now that we are with Cigna I am having trouble getting her ADEK though. The nurse at the CHOC CF clinic suggested we switch from Pancrease to Ultrase because Scandipharm has a program to provde free ADEK to CF patients who are on Ultrase. She said it was on their website, but I can't find it. I just paid for her first big prescripion of Ultrase, but I don't know what to do next. Can any one out there assist me? Thanks, DD Quote Link to comment Share on other sites More sharing options...
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