Re: Re: Please help - our 18 mo baby plagiocephaly is not getting better

[Guest guest]

I'd like to second everything that said. There are moms of babies/toddlers that were banded older on this list. I have to warn you that some band companies may not want to do it at that age. is right that cranial technologies seems to be the most open to banding older, but there are some exceptions right here in this group. Those parents all went with STARbands. I don't remember any experiences with Hanger or other bands beside the doc band or starband.

My daughter was older as well, but a little younger than yours. She got her STARband at 14.75 months and wore it until nearly 21 months full time and a little longer part time. The improvement will not be complete, but I was willing to treat for whatever I could. You may get some people that will tell you that you are wasting your money (although not here), but I say "who is to judge how I spend my money?" If it is worth it to you to get whatever improvement you can, then go for it. You just don't have any time to lose.

I believe that the nearest cranial technologies is in southern california, but I have seen others post about CIRS (I believe this is correct?) in northern cal (oakland maybe?). They do the starband and I've heard good things about them. I believe that Kathy is in the bay area and her son is an older baby as well. Her ortho has been open to her keeping the band on longer and he is now approaching age 2 years. She has gotten good results there even though her ortho is the skeptical kind (she says).

I just did an search and found this information for you:

I believe that Kathy sees Bob, but I think I may remember hearing good things about the Oakland location as well.

Center for Independent Rehabilitative Services, Inc.

Bob Paterson, COAmy , CPO 3260 Ash Street Palo Alto, CA 94306650-462-0102, FAX 650-462-0107Email: amynfoster@...Email: bobco1238@...

Trish , CO430 40th Street Oakland, CA 94609510-653-9834Email: tcollins22@...

They use the starscanner and the starband.

It may help if you go in telling them that you know that you will not be able to get as much improvement as younger babies, but that you want to do the band to get whatever improvement you can.

I hope this helps.

, mom to , 2 2/3 years

STARband grad May 11, 2009

Chiro and CST

land Re: Please help - our 18 mo baby plagiocephaly is not getting better

I was told the same thing, that my son's head would round out by 2 or 3, but I broke down and got him a band at 17 months old because there had been little to know improvement from the time he was 6 months old and mobile. He wore 2 DOCBands for 8 months and we saw significant improvement, however his head was not perfect at graduation and is still the same shape now at age 3.5 (I still notice the forehead bossing and flat spot though no one else does). I would get her a helmet/band as soon as possible. Any little correction you can get now before she turns one is better than none. From my experience, the head does not round out on it's own, it just continues to grow evenly in the same shape. Cranial Tech has typically the most experience in treating "older" babies, but STARBands are good too. I had to keep going to doctors until one was willing to write a script. Don't give up if it's something you really want to treat. My son's before and after photos are in the Older Plagio photo folder under Jake W. if you want to check them out. Good luck! Jake-3.5 (DOCBand Grad 9/08)Raleigh, NC>> Hi,> > Our daughter is almost 18 months. We have observed her plagiocephaly since she was 7 months (mainly). We then asked the pediatrician what we should do and she said that we simply should force her to sleep on her side with a blanket behind her back. As you might know, it is not really efficient and it didn't change a thing. The doctor also said that it should also round up on its own over time (by the time she is 2 or 3 yo). We were not convinced and actually switched to a second pediatrician. Same conclusion but this time we finally got an appointment with a specialist. He acknowledged the plagiocephaly but said that it was really mild and wasn't even sure that he would have recommended a helmet when she was 7/8 month old. He said that it will round up a little more but slower. Our daughter is now 18 mo and I am VERY worried that the "triangle" shape of her head is getting worse. My wife and I are miserable on this topic and have NO idea what to do at this point. My wife believes the pediatrician when he promises us that our baby's head will round up by the time she is 2.5 or 3. My wife thinks she sees it getting better but I don't.> > I think I am observing her head grow in the wrong direction (top right and left sides - like in a triangular shape) rather than pushing towards the back. How is a baby's head supposed to grow? Is it possible that due to the plagiocephaly, the skull plates are evolving in the wrong directions?> > Any feedback, advice etc. is welcome. What can we do? Do you know the best specialist on this matter in San Francisco?> > Thanks,> > -G.>

[Guest guest]

Yes, we see Bob.  He is a great ortho and nice guy, and let us keep the

band on longer, and we got additional results.  I think 's head may

have improved a tiny bit more within the past month.  Bob comes across

as skeptical, and I've heard other people have had similar impressions,

but what ultimately matters to me is the results.  Amy is really nice

and good too.  I was told they usually do not band much after 14

months, but they sometimes make exceptions.   If I had to band again, I

would go here again for sure, and I'm really picky about having the

best medical providers.  (Except we accidentally made a poor choice for

a pediatrician.)  If I had another plagio/brachy baby, I would travel

to southern CA if I thought CT was better, but I don't think they are. 

Some people may disagree.  If CIRS won't band because of age, then I

would travel to CT. 

Best,

Kathy, mom to 23 months, in Starband since 12 months

wrote:

 

I'd like to second everything that said. There are moms of

babies/toddlers that were banded older on this list. I have to warn you

that some band companies may not want to do it at that age. is

right that cranial technologies seems to be the most open to banding

older, but there are some exceptions right here in this group. Those

parents all went with STARbands. I don't remember any experiences with

Hanger or other bands beside the doc band or starband.

 

My daughter was older as well, but a little younger than yours.

She got her STARband at 14.75 months and wore it until nearly 21 months

full time and a little longer part time. The improvement will not be

complete, but I was willing to treat for whatever I could. You may get

some people that will tell you that you are wasting your money

(although not here), but I say "who is to judge how I spend my money?"

If it is worth it to you to get whatever improvement you can, then go

for it. You just don't have any time to lose.

 

I believe that the nearest cranial technologies is in southern

california, but I have seen others post about CIRS (I believe this is

correct?) in northern cal (oakland maybe?). They do the starband and

I've heard good things about them. I believe that Kathy is in the bay

area and her son is an older baby as well. Her ortho has been open

to her keeping the band on longer and he is now approaching age 2

years. She has gotten good results there even though her ortho is the

skeptical kind (she says).

 

I just did an search and found this information for you:

I believe that Kathy sees Bob, but I think I may remember hearing

good things about the Oakland location as well.

Center for Independent Rehabilitative Services, Inc.

Bob Paterson, CO

Amy , CPO

3260 Ash Street

Palo Alto, CA 94306

650-462-0102, FAX 650-462-0107

Email: amynfostergmail

Email: bobco1238aol

 

Trish , CO

430 40th Street

Oakland, CA 94609

510-653-9834

Email: tcollins22gmail

 

They use the starscanner and the starband.

 

It may help if you go in telling them that you know that you will

not be able to get as much improvement as younger babies, but that you

want to do the band to get whatever improvement you can.

 

I hope this helps.

 

, mom to , 2 2/3 years

STARband grad May 11, 2009

Chiro and CST

land

Re: Please help - our 18 mo baby plagiocephaly is not

getting better

 

I was told the same thing, that my son's head would round out by 2

or 3, but I broke down and got him a band at 17 months old because

there had been little to know improvement from the time he was 6 months

old and mobile. He wore 2 DOCBands for 8 months and we saw significant

improvement, however his head was not perfect at graduation and is

still the same shape now at age 3.5 (I still notice the forehead

bossing and flat spot though no one else does). I would get her a

helmet/band as soon as possible. Any little correction you can get now

before she turns one is better than none. From my experience, the head

does not round out on it's own, it just continues to grow evenly in the

same shape. Cranial Tech has typically the most experience in treating

"older" babies, but STARBands are good too. I had to keep going to

doctors until one was willing to write a script. Don't give up if it's

something you really want to treat. My son's before and after photos

are in the Older Plagio photo folder under Jake W. if you want to check

them out.

Good luck!

Jake-3.5 (DOCBand Grad 9/08)

Raleigh, NC

>

> Hi,

>

> Our daughter is almost 18 months. We have observed her

plagiocephaly since she was 7 months (mainly). We then asked the

pediatrician what we should do and she said that we simply should force

her to sleep on her side with a blanket behind her back. As you might

know, it is not really efficient and it didn't change a thing. The

doctor also said that it should also round up on its own over time (by

the time she is 2 or 3 yo). We were not convinced and actually switched

to a second pediatrician. Same conclusion but this time we finally got

an appointment with a specialist. He acknowledged the plagiocephaly but

said that it was really mild and wasn't even sure that he would have

recommended a helmet when she was 7/8 month old. He said that it will

round up a little more but slower. Our daughter is now 18 mo and I am

VERY worried that the "triangle" shape of her head is getting worse. My

wife and I are miserable on this topic and have NO idea what to do at

this point. My wife believes the pediatrician when he promises us that

our baby's head will round up by the time she is 2.5 or 3. My wife

thinks she sees it getting better but I don't.

>

> I think I am observing her head grow in the wrong direction (top

right and left sides - like in a triangular shape) rather than pushing

towards the back. How is a baby's head supposed to grow? Is it possible

that due to the plagiocephaly, the skull plates are evolving in the

wrong directions?

>

> Any feedback, advice etc. is welcome. What can we do? Do you know

the best specialist on this matter in San Francisco?

>

> Thanks,

>

> -G.

>

[Guest guest]

Hi,

I agree that I doubt that there is something seriously wrong with the

skull plates. However, I believe there can be misalignments in the

skull bones that are not serious, but that contribute to the plagio.

Either that or the plagio contributes to the misalignments. 's

bone structure still looks off to me, and it looked much worse. I

never saw this so much in my older son's head, and I think his mild

plagio was caused more from back sleeping with mild tort.

Best,

Kathy

wrote:

Hello,

Not sure if you got it, but here's CIRS Palo Alto contact info:

3260 Ash St Palo Alto

650-426-0102

We saw Bob and I would highly recommend him. They use to be a

part of Standford hospital but broke off from them a couple years ago.

Bob has been doing this for YEARS so he knows his stuff.

My son graduated from his Starband 7 months ago and his head looks

great. However we started him at 4 months. I'm sure you may be able to

squeeze in some results in the next couple of months if you get .

the helmet ASAP. At 18 months their heads don't grow as fast as infants

so the results prob won't be dramatic. However, sometimes a little bit

can go a long way. I noticed an immediate difference in my son's head

shape after 2 weeks.

Also, I doubt there's anything wrong with your little one's skull

plates. That's something your pedi would have caught immediately (it's

a serious condition). Most likely the misshapen head is caused by

sleeping on her back and genetics.

If you have any questions feel free to email me: mcdietrich1979

I'm happy to show you before and after pics.

good luck. I know this process can be EXTREMELY stressful

>

> Hi,

>

> Our daughter is almost 18 months. We have observed her

plagiocephaly since she was 7 months (mainly). We then asked the

pediatrician what we should do and she said that we simply should force

her to sleep on her side with a blanket behind her back. As you might

know, it is not really efficient and it didn't change a thing. The

doctor also said that it should also round up on its own over time (by

the time she is 2 or 3 yo). We were not convinced and actually switched

to a second pediatrician. Same conclusion but this time we finally got

an appointment with a specialist. He acknowledged the plagiocephaly but

said that it was really mild and wasn't even sure that he would have

recommended a helmet when she was 7/8 month old. He said that it will

round up a little more but slower. Our daughter is now 18 mo and I am

VERY worried that the "triangle" shape of her head is getting worse. My

wife and I are miserable on this topic and have NO idea what to do at

this point. My wife believes the pediatrician when he promises us that

our baby's head will round up by the time she is 2.5 or 3. My wife

thinks she sees it getting better but I don't.

>

> I think I am observing her head grow in the wrong direction (top

right and left sides - like in a triangular shape) rather than pushing

towards the back. How is a baby's head supposed to grow? Is it possible

that due to the plagiocephaly, the skull plates are evolving in the

wrong directions?

>

> Any feedback, advice etc. is welcome. What can we do? Do you know

the best specialist on this matter in San Francisco?

>

> Thanks,

>

> -G.

>