Re: new member-FOR STEPHANIE

[Guest guest]

,

Welcome to this list. You will find a wealth of experience,

helpfulness, advice and even humour. It is very overwhelming in the

early days of cf but it does get better. My daughter is 61/2 with cf

and she does pretty well.

Where do you live? Do you have any family support?

(from Australia)

Mummy to Liam 9.8yrs wocf & Eilish 6.7yrs wcf

new member

Hello to All,

I am new to this group. I am 17 years old and the mother of a

beautiful nine month old girl. She has been through so much all ready

it has been so hard to take. She had bowel obstruction right at birth

and with in two weeks she was diagnosed with CF. Then her liver

functions became elevated and they thought it was her Cf makin her

liver act up but went for a liver biospy and then was diagnosed with

a rare liver disease. After three and half months in the hospital she

came home. Since then it has been in and out of the hospital as she

fights the battle with pseudomas twice. She is happy, sweet baby with

a smile always on her face you would never know to look at her that

she ever had any difficulties. Though there are times when I feel no

one else really understands the pain I feel and fears I carry for my

baby girl. That is why I have come here. Just to hear from others who

understand.

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

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[Guest guest]

My! Eilish Is getting up there. And how old are YOU ??? LOL

My daughter is 61/2 with cf

and she does pretty well.

Where do you live?