Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 My son has not made the kind of progress we hoped to see on the diet, though we have seen some improvement.we already knew he had multiple sensitivities from our own observation, so have been taking it very slow. We have had him scratch tested, and it came up inconclusive. We went to see a naturopath (also a DAN member) who ran multiple food allergy tests and others. Today the results came back-he has severe allergies/sensitivities to peanuts, coconut and the worst one-eggs. Which of course I have been feeding him nonstop since day one on the diet. In all, he had 31 thing we have to avoid, which Dr. Mark said is very unusual. I know he will get better, but now I have to figure out how to get him to eat without eggs, or any of the oils except olive oil. To top it off, my mom had to give me a big lecture about believing in a doctor-who's not a " real doctor " (she didn't believe the " real doctors " diagnosis either. So we leave on a trip tomorrow, and I just want to feed my little boy something that is not making him sick! My son is only mildly autistic, but has several issues occuring-I have great hope for recovery, but it's such a long road. My brain is so full of therapies, diagnosis, this diet, the " other " diet, supplements. I 'm exhausted, my husband had a nervous breakdown, and my other two kids desperately need me. Somebody tell me this too will pass, we will survive, and I CAN figure out how to meet ALL my sons' special needs. Thanks Teena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 Hello Teena, I understand you very well, my situation is similar. My daughter has PDD-NOS and I have hope for recovery too. I have read so much and want to do so much for her but I have also a family to take care of. My husband works all day and my other daughter needs me so much that sometimes I think I can't do it any more but then I remember that all I have to do is the best I can and for now. Every day brings its own work so try to do one thing at a time. You're doing great and just the fact that you are trying should give you peace of mind. The first days trying anything new are usually hard but after a while things get easier. Just give some time to your son, to yourself and try to enjoy every little thing that he accomplishes. I'll have you in my prayers, Ximena. 's mom. 3yo PDD-NOS, SCD since Feb11 aneetw wrote: My son has not made the kind of progress we hoped to see on the diet, though we have seen some improvement.we already knew he had multiple sensitivities from our own observation, so have been taking it very slow. We have had him scratch tested, and it came up inconclusive. We went to see a naturopath (also a DAN member) who ran multiple food allergy tests and others. Today the results came back-he has severe allergies/sensitivities to peanuts, coconut and the worst one-eggs. Which of course I have been feeding him nonstop since day one on the diet. In all, he had 31 thing we have to avoid, which Dr. Mark said is very unusual. I know he will get better, but now I have to figure out how to get him to eat without eggs, or any of the oils except olive oil. To top it off, my mom had to give me a big lecture about believing in a doctor-who's not a " real doctor " (she didn't believe the " real doctors " diagnosis either. So we leave on a trip tomorrow, and I just want to feed my little boy something that is not making him sick! My son is only mildly autistic, but has several issues occuring-I have great hope for recovery, but it's such a long road. My brain is so full of therapies, diagnosis, this diet, the " other " diet, supplements. I 'm exhausted, my husband had a nervous breakdown, and my other two kids desperately need me. Somebody tell me this too will pass, we will survive, and I CAN figure out how to meet ALL my sons' special needs. Thanks Teena --------------------------------- No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 Teena, I think we all can relate to how you are feeling. Sometimes I wake up and Im so exhausted from staying up all night reading about diets, supplements , therapists ect. It is very overwhelming and sometimes I feel like i cant keep going. But then I come home and look at my son 's face ( Javi is 4) and it makes it all worth it. My best advise is to find support!!! Talk to people and take small " break " in between so you wont burn out. My mother is a GREAT!!!!!! support for me. I could not do this w/o her.. When im feeling weak she is there to pick me up and it works the same when she is down. Sometimes I leave Javi with her and take a day off just with my husband and I feel refreshed when I come back to " start again " with everything. I think is normal to feel like you do .... but you are not alone .. just know that a lot of mothers are going through the same thing and share emotions. We are here for you ... just hang in there and take it one day at a time ! I will be praying for you and your family Neiza Nunez ( mother to Javi -4) Ximena Adrada wrote: Hello Teena, I understand you very well, my situation is similar. My daughter has PDD-NOS and I have hope for recovery too. I have read so much and want to do so much for her but I have also a family to take care of. My husband works all day and my other daughter needs me so much that sometimes I think I can't do it any more but then I remember that all I have to do is the best I can and for now. Every day brings its own work so try to do one thing at a time. You're doing great and just the fact that you are trying should give you peace of mind. The first days trying anything new are usually hard but after a while things get easier. Just give some time to your son, to yourself and try to enjoy every little thing that he accomplishes. I'll have you in my prayers, Ximena. 's mom. 3yo PDD-NOS, SCD since Feb11 aneetw wrote: My son has not made the kind of progress we hoped to see on the diet, though we have seen some improvement.we already knew he had multiple sensitivities from our own observation, so have been taking it very slow. We have had him scratch tested, and it came up inconclusive. We went to see a naturopath (also a DAN member) who ran multiple food allergy tests and others. Today the results came back-he has severe allergies/sensitivities to peanuts, coconut and the worst one-eggs. Which of course I have been feeding him nonstop since day one on the diet. In all, he had 31 thing we have to avoid, which Dr. Mark said is very unusual. I know he will get better, but now I have to figure out how to get him to eat without eggs, or any of the oils except olive oil. To top it off, my mom had to give me a big lecture about believing in a doctor-who's not a " real doctor " (she didn't believe the " real doctors " diagnosis either. So we leave on a trip tomorrow, and I just want to feed my little boy something that is not making him sick! My son is only mildly autistic, but has several issues occuring-I have great hope for recovery, but it's such a long road. My brain is so full of therapies, diagnosis, this diet, the " other " diet, supplements. I 'm exhausted, my husband had a nervous breakdown, and my other two kids desperately need me. Somebody tell me this too will pass, we will survive, and I CAN figure out how to meet ALL my sons' special needs. Thanks Teena --------------------------------- No need to miss a message. Get email on-the-go with Yahoo! Mail for Mobile. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 Hang in there gf. Things are about to get much better. Remember what Elaine said: if we don't need an epi pen, it isn't truely a food alergy, but a sensitivity brought on by a sick gut. As the gut heals, many of these sensitivities vanish. Eggs are something that might really be a food alergy though. My daughter has this. It's really not difficult to live without them, chances are that once they are gone your son won't even notice. You are a great mom, taking on the world for your son! Stick with it and when his little belly starts feelng better and he starts to show some awesome improvement, they will all act like it was their idea. : D aneetw wrote: My son has not made the kind of progress we hoped to see on the diet, though we have seen some improvement.we already knew he had multiple sensitivities from our own observation, so have been taking it very slow. We have had him scratch tested, and it came up inconclusive. We went to see a naturopath (also a DAN member) who ran multiple food allergy tests and others. Today the results came back-he has severe allergies/sensitivities to peanuts, coconut and the worst one-eggs. Which of course I have been feeding him nonstop since day one on the diet. In all, he had 31 thing we have to avoid, which Dr. Mark said is very unusual. I know he will get better, but now I have to figure out how to get him to eat without eggs, or any of the oils except olive oil. To top it off, my mom had to give me a big lecture about believing in a doctor-who's not a " real doctor " (she didn't believe the " real doctors " diagnosis either. So we leave on a trip tomorrow, and I just want to feed my little boy something that is not making him sick! My son is only mildly autistic, but has several issues occuring-I have great hope for recovery, but it's such a long road. My brain is so full of therapies, diagnosis, this diet, the " other " diet, supplements. I 'm exhausted, my husband had a nervous breakdown, and my other two kids desperately need me. Somebody tell me this too will pass, we will survive, and I CAN figure out how to meet ALL my sons' special needs. Thanks Teena --------------------------------- Finding fabulous fares is fun. Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains. Quote Link to comment Share on other sites More sharing options...
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