new here

[Guest guest]

I have talked to a few of you, I am really new here and really don't

know what to say to a lot of people. So far I think this is a

wonderfull thing. For those of you who don't know me I have a 11

month old daughter with cf. We found out she had CF when she was 5

weeks old. It is very hard to deal with. We go to clinic in Iowa

City, wonderfull place just a 3 1/2 hour drive. I also have 2 boys,

one is 8 the other is 4. Right now I think she is doing pretty

good. She seems to have colds and ear infections alot but besides

that she is pretty good. We only have to using breathing treatments

when she gets a cold in here chest. We do the chest therapy every

day and beside her emyzems, vitamins and here 24 calorie formula

thats about all we have to do. Oh she gets a shot every month to

prevent RSV. I have to wonder, I know everyone is different, but do

alot of them start out this way, or what? We were looking a buying a

new double wide because we just have a small old 2 bedroom house and

it is drafty, but I am so afraid to do it because if she gets bad one

of us would have to stay home with her. Are these common fears or am

I just being dumb about the whole thing. I know this is going to

sound weird, but I live my life to the point that if something would

happen to anyone I love, I don't wanna have any regrets. What I mean

by this is, if I have a fight with my parents or someone I have to

make sure it is all ok before I hang up with them or I leave them

because I don't want something to happen to them and them not know

how much they ment to me. I know that probably sounds stange, but

thats just the way I am. I always feel bad if I dont' take her

everywhere I go. I know I have probably bored you all enough, but I

just wanted to know how everyone else deals with things.